Aa
multi symptoms (mine)-help
I will try to be brief, even though it will not. On top of symptoms I've listed in another post regarding blisters in my mouth (which includes all things respiratory).
This is very difficult for me to type. First, it's overwhelming. Secondly, I hate seeing my life in print-it further reminds me of my misery. Even though I feel it everyday.
This began around May of last year, for the most part but a few things cropped up prior. Such as: hair falling out, fatigue, a little difficulty in swallowing but I was able to deal with it.
May of 05: respiratory: spitting up orange flecks, nose plugging, thick clear mucus plugs from my nostrils, aching neck. Left wrist aching.
I finally went to the doc in Aug 05. I wouldn't have but everything continued to cycle. Doctor checked lungs and sinus via x-ray: clean. She did a CBC and according to her, fine. Months ago, I went through my files and see that my WBC was elevated in August. She reported it as fine.
My stools began to change: first they floated, then they became thin. In December, I was getting terrible left side gut aches. I attributed it to stress. When this happened, I gingerly took myself to bed.
My stools are still thin (not constipated). I am taking SAM-e and this does seem to help there a little.
Fast forward, December...felt weak. Begining of January, spit and found pus down my chin (gross, I know!). In looking in my throat, saw white gunk within tonsil crypt. Covered by a clear, glue like substance. My ears began plugging. In taking Afrin, blew out a-lot of orangish flecks. Helped my ears.
Cont...
This is very difficult for me to type. First, it's overwhelming. Secondly, I hate seeing my life in print-it further reminds me of my misery. Even though I feel it everyday.
This began around May of last year, for the most part but a few things cropped up prior. Such as: hair falling out, fatigue, a little difficulty in swallowing but I was able to deal with it.
May of 05: respiratory: spitting up orange flecks, nose plugging, thick clear mucus plugs from my nostrils, aching neck. Left wrist aching.
I finally went to the doc in Aug 05. I wouldn't have but everything continued to cycle. Doctor checked lungs and sinus via x-ray: clean. She did a CBC and according to her, fine. Months ago, I went through my files and see that my WBC was elevated in August. She reported it as fine.
My stools began to change: first they floated, then they became thin. In December, I was getting terrible left side gut aches. I attributed it to stress. When this happened, I gingerly took myself to bed.
My stools are still thin (not constipated). I am taking SAM-e and this does seem to help there a little.
Fast forward, December...felt weak. Begining of January, spit and found pus down my chin (gross, I know!). In looking in my throat, saw white gunk within tonsil crypt. Covered by a clear, glue like substance. My ears began plugging. In taking Afrin, blew out a-lot of orangish flecks. Helped my ears.
Cont...
No worries, I'm not confused. I am overwhelmed by the responses but in a positive way.
I had to sit down with the kids for awhile, tuck them in and now, it's time to tuck myself in. My intent was to come back in tomorrow to reply. I'll be back here. Thank you so much...and I'll be saying it again.
Talk to you soon.
Good night and God bless...
Sincerely,
~Kate
I had to sit down with the kids for awhile, tuck them in and now, it's time to tuck myself in. My intent was to come back in tomorrow to reply. I'll be back here. Thank you so much...and I'll be saying it again.
Talk to you soon.
Good night and God bless...
Sincerely,
~Kate
I sure feel for you. I wish that you could know reasons and answers. I don't like doctors and have a problem trusting them. I am going this morning. Just wanted to let you know that I care.
Debbie
Debbie
>funny - I work in mental health for people over 65 (admin only) but have learnt so much,<
This doesn't surprise me.;-) Just from reading your posts, sounds like it's very suitable work for you.
I would like to get involved with long term care and an outreach program (non profit). Purely volunteer work. Just over 2 years ago, after having my son, I walked myself to the end of the hall, to go outside to smoke a cigarette. In the same hall as I was in, at the end, was long term care. I was really struck, that one hall represented the beginning of life and life nearing the end. I wasn't hurt but over-taken with long thoughts about this.
Since young, I always had an opinion of the way our elderly, in the care of others, should be treated. Too, that I think they need good company sometimes. There's plenty I think here but will cut it short.
I went to about.com and took their thyroid quiz (both hper/hypo) and answered yes to many of the questions. My new doctor (without my prompt)definitely thought it was thyroid. Yet TSH came back as 2.1
I have yet to set another appointment with my doctor. He wants me back in to review my recent menstrual history. I wanted to try to organize everything, on paper and hand him my file. Address the hormones and respiratory (which is what the doctor up north wanted me to do and was forgotten-due to stress)and hand him my file, asking him how he wants to approach this. I don't know of any other way to do it. It certainly can not all be addressed in one appointment.
I am going to record my a.m. temperatures and as for Iodine absorption. Does this mean that the Iodine "painting" ;-) disappear completely (meaning color too)?
I'm going to be printing this thread for my records. Thank you, thank you.
Sincerely,
~Kate
This doesn't surprise me.;-) Just from reading your posts, sounds like it's very suitable work for you.
I would like to get involved with long term care and an outreach program (non profit). Purely volunteer work. Just over 2 years ago, after having my son, I walked myself to the end of the hall, to go outside to smoke a cigarette. In the same hall as I was in, at the end, was long term care. I was really struck, that one hall represented the beginning of life and life nearing the end. I wasn't hurt but over-taken with long thoughts about this.
Since young, I always had an opinion of the way our elderly, in the care of others, should be treated. Too, that I think they need good company sometimes. There's plenty I think here but will cut it short.
I went to about.com and took their thyroid quiz (both hper/hypo) and answered yes to many of the questions. My new doctor (without my prompt)definitely thought it was thyroid. Yet TSH came back as 2.1
I have yet to set another appointment with my doctor. He wants me back in to review my recent menstrual history. I wanted to try to organize everything, on paper and hand him my file. Address the hormones and respiratory (which is what the doctor up north wanted me to do and was forgotten-due to stress)and hand him my file, asking him how he wants to approach this. I don't know of any other way to do it. It certainly can not all be addressed in one appointment.
I am going to record my a.m. temperatures and as for Iodine absorption. Does this mean that the Iodine "painting" ;-) disappear completely (meaning color too)?
I'm going to be printing this thread for my records. Thank you, thank you.
Sincerely,
~Kate
>Sounds like you are going in the right direction and if you feel good with your new one - WONDERFUL!<
I went in, nervous as I became "gun shy" with my last GP. He was calm, unrushed...I kept expecting him to look at his watch, fidget (needing to tend to someone else) give quick responses but he didn't. He explained things and admitted to his not immediately knowing what was wrong. He wanted me to follow-up as apposed to leaving me hanging.
>If that doesn't work, can you call that doctor who told you to find a good physician and ask him for referrals? He sounds amazing and honest in a way that is hard to find.<
If it were to become the case, I'd go up and see him as I have a place to stay there. He told me, if I ever had problems, to please come back there..."We will take care of you."
So little that I said, yet...he seemed to read me like a book.
Do you have any opinions on a good glucose meter?
>A thyroid ultrasound is non-invasive and will show if there is a growth. I didn't have any symptoms and my thyroid levels were fine but the ultrasound did find a "mixed nodule" which turned out to be cancer. I'm NOT saying that may be your problem but getting an ultrasound will help with a good diagnosis.<
Outside of ultrasound, did you have any indicators or reveals in blood work?
How long have you been in remission?
>As for firing doctors: I went through 6 OB/GYNs this year alone - I had huge, recurrent, hemorrhagic ovarian cysts and all of the OB/GYNs wanted to either do a complete hysterectomy or put me on some very frightening medication. I finally found one who would just remove the ovary and it took me 7 months to find him but thank god it did!<
I'm exactly like you, here. I too am somebody who thinks it's best to take the least "offensive" approach first.
>My best to you Kate, I wish you were somewhere where you had more choice in medical care but it does sound like you things are looking up with your new MD. And, as a fallback, you found an honest, caring doctor who might be able to lead you to a good one nearer to your home.<
I'm keeping my fingers crossed. If I take in my file and find that he is willing to actually deal with my problem, thoroughly, then I will be very happy and trusting of him.
I plan to keep on this board and will definitely follow up with what I learn.
Much thanks, again.
Sincerely,
~Kate
I went in, nervous as I became "gun shy" with my last GP. He was calm, unrushed...I kept expecting him to look at his watch, fidget (needing to tend to someone else) give quick responses but he didn't. He explained things and admitted to his not immediately knowing what was wrong. He wanted me to follow-up as apposed to leaving me hanging.
>If that doesn't work, can you call that doctor who told you to find a good physician and ask him for referrals? He sounds amazing and honest in a way that is hard to find.<
If it were to become the case, I'd go up and see him as I have a place to stay there. He told me, if I ever had problems, to please come back there..."We will take care of you."
So little that I said, yet...he seemed to read me like a book.
Do you have any opinions on a good glucose meter?
>A thyroid ultrasound is non-invasive and will show if there is a growth. I didn't have any symptoms and my thyroid levels were fine but the ultrasound did find a "mixed nodule" which turned out to be cancer. I'm NOT saying that may be your problem but getting an ultrasound will help with a good diagnosis.<
Outside of ultrasound, did you have any indicators or reveals in blood work?
How long have you been in remission?
>As for firing doctors: I went through 6 OB/GYNs this year alone - I had huge, recurrent, hemorrhagic ovarian cysts and all of the OB/GYNs wanted to either do a complete hysterectomy or put me on some very frightening medication. I finally found one who would just remove the ovary and it took me 7 months to find him but thank god it did!<
I'm exactly like you, here. I too am somebody who thinks it's best to take the least "offensive" approach first.
>My best to you Kate, I wish you were somewhere where you had more choice in medical care but it does sound like you things are looking up with your new MD. And, as a fallback, you found an honest, caring doctor who might be able to lead you to a good one nearer to your home.<
I'm keeping my fingers crossed. If I take in my file and find that he is willing to actually deal with my problem, thoroughly, then I will be very happy and trusting of him.
I plan to keep on this board and will definitely follow up with what I learn.
Much thanks, again.
Sincerely,
~Kate
>That's all the testing they've done?! I strongly recommend that you have autoimmune testing done.<
To date, yes. My new doctor wanted a repeat WBC (as it was elevated)after treatment with Nistatin (oral thrush). Waiting in the wings, in case my WBC came back elevated, was numerous other blood work he wanted done (and blood actually drawn for it). I gather, though, that no follow up as CBC was within range.
>You have symptoms that seem in line with autoimune disorders, particularly Lupus and Scleroderma.<
Funny, because I did happen upon Lupus. Scleroderma: my hands aren't tight/bend or shiney.
Isn't the ANA the test for autoimminue issues?
>You should ask for a full set of Pulmonary Function Tests.<
What does that consist of? I doubt we'd have the equipment. Put it to you this way, many people have to leave town for medical treatment and those that fall in a grave situation, medi-vaced out. We lack equipment. The basics, that's it.
Population here (island)is under 2k.
>To be thoroughly evaluated, you need to see a Rheumatologist.<
My hope is, that pointers (such as blood work) will give a general idea and then seek out an appropriate specialist.
>Take a list of your symptoms, all typed up, and ask him to go over it with you, and put it in your file. I did this for my internal medicine specialist, and he actually appreciated it. It also made my visit much more productive.<
Doctors seem to either appreciate this or disregard it. My (ex) GP didn't appreciate it, my ENT did. My new doctor does, the second ENT I had seen, didn't. I prefer those who do. It makes it easier and there is a permanent record. No trying to remember or guess.
>Part of the reason it took so long is that some of the Dr.'s I saw just didn't think I was that bad off, or were too busy to look very deep.<
I have heard people complain of hearing, "But you look alright or you look good."
Just fine when it's a genuine compliment but when it is dismissive...and you feel so bad...not a good thing to say.
>The Dr. I have now has taken time outside of our office visits to make lists of my problems to try to categorize me. He still says I'm an enigma, and has certainly said "I just don't know." more than once.<
He sounds like a very good doctor. The fact that he's involved outside his office says a-lot about him.
I will peruse your links further. I really appreciate this.
Many thanks,
~Kate
To date, yes. My new doctor wanted a repeat WBC (as it was elevated)after treatment with Nistatin (oral thrush). Waiting in the wings, in case my WBC came back elevated, was numerous other blood work he wanted done (and blood actually drawn for it). I gather, though, that no follow up as CBC was within range.
>You have symptoms that seem in line with autoimune disorders, particularly Lupus and Scleroderma.<
Funny, because I did happen upon Lupus. Scleroderma: my hands aren't tight/bend or shiney.
Isn't the ANA the test for autoimminue issues?
>You should ask for a full set of Pulmonary Function Tests.<
What does that consist of? I doubt we'd have the equipment. Put it to you this way, many people have to leave town for medical treatment and those that fall in a grave situation, medi-vaced out. We lack equipment. The basics, that's it.
Population here (island)is under 2k.
>To be thoroughly evaluated, you need to see a Rheumatologist.<
My hope is, that pointers (such as blood work) will give a general idea and then seek out an appropriate specialist.
>Take a list of your symptoms, all typed up, and ask him to go over it with you, and put it in your file. I did this for my internal medicine specialist, and he actually appreciated it. It also made my visit much more productive.<
Doctors seem to either appreciate this or disregard it. My (ex) GP didn't appreciate it, my ENT did. My new doctor does, the second ENT I had seen, didn't. I prefer those who do. It makes it easier and there is a permanent record. No trying to remember or guess.
>Part of the reason it took so long is that some of the Dr.'s I saw just didn't think I was that bad off, or were too busy to look very deep.<
I have heard people complain of hearing, "But you look alright or you look good."
Just fine when it's a genuine compliment but when it is dismissive...and you feel so bad...not a good thing to say.
>The Dr. I have now has taken time outside of our office visits to make lists of my problems to try to categorize me. He still says I'm an enigma, and has certainly said "I just don't know." more than once.<
He sounds like a very good doctor. The fact that he's involved outside his office says a-lot about him.
I will peruse your links further. I really appreciate this.
Many thanks,
~Kate
>I wish that you could know reasons and answers.<
I sat here the other day and partly frustrated but humor still present, I thought: if we are going to live with these things...at least God could have built within us a diagnostic center. lol
>I don't like doctors and have a problem trusting them.<
I was just about there (mindset) but the doctor up North quickly pulled me out of that decent. Now, I hope that I can feel comfortable and trust my new one. Time will tell.
>I am going this morning.<
How are you? The results?
>Just wanted to let you know that I care.<
Thank you, Debbie. Please keep us posted. I'm glad that I found this site. It's bad enough to feel this bad but horrible in thinking we are alone.
I am thankful for the internet- the people I've met along the way.
Take care,
~Kate
I sat here the other day and partly frustrated but humor still present, I thought: if we are going to live with these things...at least God could have built within us a diagnostic center. lol
>I don't like doctors and have a problem trusting them.<
I was just about there (mindset) but the doctor up North quickly pulled me out of that decent. Now, I hope that I can feel comfortable and trust my new one. Time will tell.
>I am going this morning.<
How are you? The results?
>Just wanted to let you know that I care.<
Thank you, Debbie. Please keep us posted. I'm glad that I found this site. It's bad enough to feel this bad but horrible in thinking we are alone.
I am thankful for the internet- the people I've met along the way.
Take care,
~Kate
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