Aa
multi symptoms (mine)-help
I will try to be brief, even though it will not. On top of symptoms I've listed in another post regarding blisters in my mouth (which includes all things respiratory).
This is very difficult for me to type. First, it's overwhelming. Secondly, I hate seeing my life in print-it further reminds me of my misery. Even though I feel it everyday.
This began around May of last year, for the most part but a few things cropped up prior. Such as: hair falling out, fatigue, a little difficulty in swallowing but I was able to deal with it.
May of 05: respiratory: spitting up orange flecks, nose plugging, thick clear mucus plugs from my nostrils, aching neck. Left wrist aching.
I finally went to the doc in Aug 05. I wouldn't have but everything continued to cycle. Doctor checked lungs and sinus via x-ray: clean. She did a CBC and according to her, fine. Months ago, I went through my files and see that my WBC was elevated in August. She reported it as fine.
My stools began to change: first they floated, then they became thin. In December, I was getting terrible left side gut aches. I attributed it to stress. When this happened, I gingerly took myself to bed.
My stools are still thin (not constipated). I am taking SAM-e and this does seem to help there a little.
Fast forward, December...felt weak. Begining of January, spit and found pus down my chin (gross, I know!). In looking in my throat, saw white gunk within tonsil crypt. Covered by a clear, glue like substance. My ears began plugging. In taking Afrin, blew out a-lot of orangish flecks. Helped my ears.
Cont...
This is very difficult for me to type. First, it's overwhelming. Secondly, I hate seeing my life in print-it further reminds me of my misery. Even though I feel it everyday.
This began around May of last year, for the most part but a few things cropped up prior. Such as: hair falling out, fatigue, a little difficulty in swallowing but I was able to deal with it.
May of 05: respiratory: spitting up orange flecks, nose plugging, thick clear mucus plugs from my nostrils, aching neck. Left wrist aching.
I finally went to the doc in Aug 05. I wouldn't have but everything continued to cycle. Doctor checked lungs and sinus via x-ray: clean. She did a CBC and according to her, fine. Months ago, I went through my files and see that my WBC was elevated in August. She reported it as fine.
My stools began to change: first they floated, then they became thin. In December, I was getting terrible left side gut aches. I attributed it to stress. When this happened, I gingerly took myself to bed.
My stools are still thin (not constipated). I am taking SAM-e and this does seem to help there a little.
Fast forward, December...felt weak. Begining of January, spit and found pus down my chin (gross, I know!). In looking in my throat, saw white gunk within tonsil crypt. Covered by a clear, glue like substance. My ears began plugging. In taking Afrin, blew out a-lot of orangish flecks. Helped my ears.
Cont...
Your "tone" reminds me of my mother, for which I can appreicate. Thank you.
I do have fairly good insurance (husband works for the city) and I have a secondary insurance, though only fullfilled if they approve...which, usually they don't...they want to see me in their clinic which isn't located on my island.
Yes, I do feel a mess-certainly what I've been reduced down to...yet, this is not the real me. I shouldn't feel this way. I have 4 children, good marriage, love life and have so many interests. This has definately wrecked things for the time being. That being an entire year.
Have a good thought as to what kind of doctor I should see? If a specialist, I would have to travel out of town.
I did see an ENT, the one who removed my tonsils this April.
Outside of CT scan of head/neck...the only blood work I have had is CBC.
Thanks again, merlo.
~Kate
I do have fairly good insurance (husband works for the city) and I have a secondary insurance, though only fullfilled if they approve...which, usually they don't...they want to see me in their clinic which isn't located on my island.
Yes, I do feel a mess-certainly what I've been reduced down to...yet, this is not the real me. I shouldn't feel this way. I have 4 children, good marriage, love life and have so many interests. This has definately wrecked things for the time being. That being an entire year.
Have a good thought as to what kind of doctor I should see? If a specialist, I would have to travel out of town.
I did see an ENT, the one who removed my tonsils this April.
Outside of CT scan of head/neck...the only blood work I have had is CBC.
Thanks again, merlo.
~Kate
I'll take a doctor who says "I don't know" over one that makes a snap diagnosis any day. Don't feel bad about switching doctors - this is YOUR health and YOUR life. Here's a few things that my doctors and I have done for my symptoms which are much like yours.
Have you had an ultrasound of your thyroid? An increasing TSH may, or may not, indicate something amiss in the thyroid that you can't pick up on a blood test.
Has anyone done a glucose tolerance test on you? Some of your symptoms could be attributed to hypoglycemia or diabetes.
There are many things that mimic IBS and many, many more that can aggravate IBS. Since you said you've had your neck pain for over 20 years, let's just assume you are older than 21?!? :-) Schedule a colonoscopy to make sure that it is only IBS. Drinks lots of water and use fiber supplements (not laxatives)
Your nasal problems: have the doctors tried decongestants or nasal sprays on you to see if the sore throat and stuffiness is relieved? You may have an allergy, chronic sinusitis, etc.
Can you schedule an appointment with a neurologist? The numbness, stiffness, pain in the back, etc. could all be signs of a neurological situation.
Here's another suggestion: write down ALL your symptoms, your family history, your medications, and any surgeries/medical procedures. Make copies of this list and take one to each doctor (or specialist) when you go. (I also keep one on me for the emergency room). Many symptoms may seem unrelated to you but might put a piece of your health puzzle together for a specialist.
Good luck and keep auditioning doctors until you find one that will listen to you and care! (Remember, THEY don't have to live with your pain and symptoms - YOU do!)
Have you had an ultrasound of your thyroid? An increasing TSH may, or may not, indicate something amiss in the thyroid that you can't pick up on a blood test.
Has anyone done a glucose tolerance test on you? Some of your symptoms could be attributed to hypoglycemia or diabetes.
There are many things that mimic IBS and many, many more that can aggravate IBS. Since you said you've had your neck pain for over 20 years, let's just assume you are older than 21?!? :-) Schedule a colonoscopy to make sure that it is only IBS. Drinks lots of water and use fiber supplements (not laxatives)
Your nasal problems: have the doctors tried decongestants or nasal sprays on you to see if the sore throat and stuffiness is relieved? You may have an allergy, chronic sinusitis, etc.
Can you schedule an appointment with a neurologist? The numbness, stiffness, pain in the back, etc. could all be signs of a neurological situation.
Here's another suggestion: write down ALL your symptoms, your family history, your medications, and any surgeries/medical procedures. Make copies of this list and take one to each doctor (or specialist) when you go. (I also keep one on me for the emergency room). Many symptoms may seem unrelated to you but might put a piece of your health puzzle together for a specialist.
Good luck and keep auditioning doctors until you find one that will listen to you and care! (Remember, THEY don't have to live with your pain and symptoms - YOU do!)
you poor thing you sound a mess. Doctors can never have all the answers. You need to get referred to a specialists if you haven't already done...someone that is an expert in all areas not just a specific area. you sound a bit menopausal as well, this in itself can have horrific side effects. I made them put me in hospital to monitor all my problems a few years ago...depends on your insurance I suppose....
keep fighting though - don't give up,
god bless
keep fighting though - don't give up,
god bless
Yes, I have had my thyroid checked (TSH) Aug 05: 1.54 Jan. 06: 1.19 and Aug. 06: 2.1
Have to say, in March I felt the worst and wouldn't be surprised if my TSH dipped further. It was like one month long anxiety attack.
In some ways, I am surprised that doctors don't know and on the other hand, not. For them to be a cut above, they'd have to study outside their average work day.
Not only on other conditions but currently understandings of all conditions.
I changed doctors (same clinic) as she was quick to diagnose: change in bowels=IBS, can't see your problem and CBC normal: anxiety. Yet, in looking at those labs, my WBC was high.
She was hurried and frustrated (I think) and gave knee jerk conclusions.
It's imperative that we try to learn and find a good, caring doctor. One unrushed and willing to thoroughly listen. If we fail to mention, the doctors should be asking the questions.
On account of her, I've become "gun shy." My problems seem so complex now, I just don't know how to begin or approach my new doctor with this. It's overwhelming for me and I know, would be for him also. Having said that, I do have a good feeling about him.
Thank you for your responce, merlo (nice wine, by the way;-)
~Kate
Have to say, in March I felt the worst and wouldn't be surprised if my TSH dipped further. It was like one month long anxiety attack.
In some ways, I am surprised that doctors don't know and on the other hand, not. For them to be a cut above, they'd have to study outside their average work day.
Not only on other conditions but currently understandings of all conditions.
I changed doctors (same clinic) as she was quick to diagnose: change in bowels=IBS, can't see your problem and CBC normal: anxiety. Yet, in looking at those labs, my WBC was high.
She was hurried and frustrated (I think) and gave knee jerk conclusions.
It's imperative that we try to learn and find a good, caring doctor. One unrushed and willing to thoroughly listen. If we fail to mention, the doctors should be asking the questions.
On account of her, I've become "gun shy." My problems seem so complex now, I just don't know how to begin or approach my new doctor with this. It's overwhelming for me and I know, would be for him also. Having said that, I do have a good feeling about him.
Thank you for your responce, merlo (nice wine, by the way;-)
~Kate
I was prescribed Ery tab. Things were going along fine (save for stomach aches)until just before I ended the rx, felt like I received a Karate chop across my throat and painful to swallow. I woke up the next day, jaw almost seemingly dislocated, face in a puddle of saliva. I felt so sick. My eyes were swollen underneath the lower lids. I went completely dumb, confused and frightened.
I couldn't remember some basic things: releasing the tape measure, spelling a simple word, verbally got hung up on: do re me fa so la ti do. Instead: do re me fo so (fo not fa) and couldn't remember the rest). I went to spell a word out loud and the only way that I can describe it, is it was as if a light switch was turning off and on. I knew I had it and then, off. Try again and finally, after about the 6th time, got it.
Anxiety struck around this time (March, this year.)
I had vertigo, poor balance (yet retained super quick reflexes), developed eye floaters (no, they were not there before, I use my eyes: photography as do I frequently see masses of light colored areas: clouds and ceilings. Those floaters were not there before), a "disconnect" feeling-especially around dinner time, high BP, neck (stiffness and pain) and gums seemingly swelling.
Fast forward, I was given another round of anti-biotics prior to tonsillectomy and after.
Tonsillectomy was a very painful and slow recovery. To date, my voice still sounds...different. Words are rounded, as apposed to sharp and I was told by a doctor that my phonation is slow. It wasn't in the past.
I won't go on about the rest during that time. It in itself is a long read.
Today, along with the respiratory and oral symptoms, I have very irregular periods. Likened to perimenopause. Apparently, easily confused with thyroid conditions.
As for aches:
Neck (chronic, 20 years and feeling worse this year-tender)
Sporadically or once (this year):
left knee (tender-sporadic)
left wrist and left ring finger (sporadic)
right foot (tender-once, lasted 3 months)
thighs (once-tender and weak)
lower back (once-tender and sore)
My hands have become weaker (past 2 years). Most times, I am unable to open a jar. On occasion, my hands and feet feel abit stiff and find that I am rubbing them often. Perhaps poor circulation.
Skin changes: from oily and fine (including hair) to dry (though not flaky), course skin <----even my husband noticed, to oily course skin and now, no longer oily but course.
As my hair is also.
My nails have changed and a post can be found in dermatology about this: ctrl + F and borninquisitive once there.
My system is acting so out of whack!
My voice, oral and throat sensations is what bothers me most today. It's what keeps me on edge. We eat, speak and breath using this area. We are constantly aware of it.
I do not deny that I have had anxious bouts and suffer from mild depression BUT it can not be denied that there is something here outside anxiety.
My mistake was not in tending to things when they cropped up. I'm a "wait and see." Everything always cleared up in the past. I had assumed that they would, until after my tonsils were removed...and I still suffered.
Despite my smoking, I was always a picture of good health and very strong too. Not just in body but mind also. I have since been reduced to a state that is so much unlike me.
My hat is off to anyone who has bothered to take the time in reading this. It's a poor example, I know. I think I need to draw up a timeline and diagram for my doctor. I think sequences matter.
I can not tell you how frequently I've prayed over this matter...and since, over those who suffer as badly and worse.
My only wish was, that God installed a "diagnostic" system within us. If we are going to live with it...at least know what the problem is, in an instance. lol Albeit, a weak laughter.
Thanks so much for your time. Any specific questions, ask. I appreciate anyone willing to tackle this. You're like me...it isn't fun, something you are compelled to do and despite it being no fun, happy to do it. God bless you!
I am sure I've left things out but can't retain it all at this moment.
Sincerely,
~Kate
I couldn't remember some basic things: releasing the tape measure, spelling a simple word, verbally got hung up on: do re me fa so la ti do. Instead: do re me fo so (fo not fa) and couldn't remember the rest). I went to spell a word out loud and the only way that I can describe it, is it was as if a light switch was turning off and on. I knew I had it and then, off. Try again and finally, after about the 6th time, got it.
Anxiety struck around this time (March, this year.)
I had vertigo, poor balance (yet retained super quick reflexes), developed eye floaters (no, they were not there before, I use my eyes: photography as do I frequently see masses of light colored areas: clouds and ceilings. Those floaters were not there before), a "disconnect" feeling-especially around dinner time, high BP, neck (stiffness and pain) and gums seemingly swelling.
Fast forward, I was given another round of anti-biotics prior to tonsillectomy and after.
Tonsillectomy was a very painful and slow recovery. To date, my voice still sounds...different. Words are rounded, as apposed to sharp and I was told by a doctor that my phonation is slow. It wasn't in the past.
I won't go on about the rest during that time. It in itself is a long read.
Today, along with the respiratory and oral symptoms, I have very irregular periods. Likened to perimenopause. Apparently, easily confused with thyroid conditions.
As for aches:
Neck (chronic, 20 years and feeling worse this year-tender)
Sporadically or once (this year):
left knee (tender-sporadic)
left wrist and left ring finger (sporadic)
right foot (tender-once, lasted 3 months)
thighs (once-tender and weak)
lower back (once-tender and sore)
My hands have become weaker (past 2 years). Most times, I am unable to open a jar. On occasion, my hands and feet feel abit stiff and find that I am rubbing them often. Perhaps poor circulation.
Skin changes: from oily and fine (including hair) to dry (though not flaky), course skin <----even my husband noticed, to oily course skin and now, no longer oily but course.
As my hair is also.
My nails have changed and a post can be found in dermatology about this: ctrl + F and borninquisitive once there.
My system is acting so out of whack!
My voice, oral and throat sensations is what bothers me most today. It's what keeps me on edge. We eat, speak and breath using this area. We are constantly aware of it.
I do not deny that I have had anxious bouts and suffer from mild depression BUT it can not be denied that there is something here outside anxiety.
My mistake was not in tending to things when they cropped up. I'm a "wait and see." Everything always cleared up in the past. I had assumed that they would, until after my tonsils were removed...and I still suffered.
Despite my smoking, I was always a picture of good health and very strong too. Not just in body but mind also. I have since been reduced to a state that is so much unlike me.
My hat is off to anyone who has bothered to take the time in reading this. It's a poor example, I know. I think I need to draw up a timeline and diagram for my doctor. I think sequences matter.
I can not tell you how frequently I've prayed over this matter...and since, over those who suffer as badly and worse.
My only wish was, that God installed a "diagnostic" system within us. If we are going to live with it...at least know what the problem is, in an instance. lol Albeit, a weak laughter.
Thanks so much for your time. Any specific questions, ask. I appreciate anyone willing to tackle this. You're like me...it isn't fun, something you are compelled to do and despite it being no fun, happy to do it. God bless you!
I am sure I've left things out but can't retain it all at this moment.
Sincerely,
~Kate
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