unfortunately i am not diagnosed as anything at this point. i have been in pain for twelve years and it is progressing. i am losing strength in my arms now.
but i have read my x ray report and it says i have pannus on my odontoid peg.
no doctors will help me figure all this out.
so i have to constantly come up with directions to point the doctors in.
i truly believe i have chiari and a syrinx. among other things.
i am trying to convince them to do an mri. i thought the abnormal odontoid would do it. but they just suggested physical therapy which i think could be dangerous.
i thought if i could say that syrinxes were often over looked then i might get their attention.
i am so tired of all this.
Hi...I saw ur post and wondered if u also have a DX of Ehlers-Danlos since u have a tag to ur post of a retroflexed odontoid...and if u might also have Chiari Malformation?
We do have a Chiari forum were we also have members with Syringomyelia (syrinx)-
http://www.medhelp.org/forums/Chiari-Malformation/show/257?controller=forums&action=show&id=257&camp=msc
I hope u stop by : )