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Avatar universal

undiagnosed severe full body nerve pain, twitching and spasms.

HI

I have been having this problem for 8 years, started in 1998.
getting worse in 2003 three days into flu shot.

Have had several mri of brain with and without contrast all normal. emgs over the years normal, spinal tap normal, several blood test normal (sed rate elavated over the yeras up to 30).

I see a neuromuscular doc now who did a muscle biopsy which is normal, test me for stiff man-syndrome (normal.) he has no idea.
took lyrica for a month and now zanaflex up to 20mg in a day. (no help yet.)

The rhumatologist said fibro and neuro disagrees.  he says the twitching and spasms and nerve pain can be due to signal in nerves not traveling properly.  why he dosent know.
i read on my brain mri single left frontal lobe white mater but doc said normal? why?

my sysptoms
twitching in whole body
muscle jumping like popcorn poppin all over
muscle spasms all over body( throat spasms, svere tightness in throat, stabbing sharp pain in thraot with it, literally feels like sking bieng pulled apart.)
nerve pain all over body (burning, tingling, pins and needles)
nerve pain(stabing, electriclike sudden jads that are horendous and take the life out of me, piercing shooting in nature like some thing lashing me from inside.  lasts seconds but it is in multiple places in my body at the same time.)
at times when stabbs hit i get a single twitch.
my qustion what could this be.  is it possible to have nerve pain of this nature in the entire body and all together.
with my research i cant find anyreason for such pain in entire body all together
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Avatar universal
The answer is in your spine. I had this condition for 8 yrs and now live an awesome pain free life again. Stretch on an inversion table consistently 3 times a day (it's not fun but it works!). I did this and with in three weeks my spine started to pop many times and three weeks after that the pain went away 90%.All glory to God whom lead me to the cure!
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Avatar universal
For a few years i have been experiencing shocking nerve pains all through my body, form my toes to my fingers through my back, neck, legs, everywhere. Also experience muscle spasms and sharp shooting pains. I have had mri's and tests for neuro diseases a year ago and all came back fine. The pains come and go every few months. What can i do in my situation?
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Avatar universal
Full body pain and your other symptoms do sound like magnesium depletion, but you will never be able to replenish the mag levels with oral supplementation alone. I have had full body pain and many other symptoms. nothing seemed to help, so, being a science geek, I developed a very effective therapy, a product called Magnion ( www.imagenlabs.net ), and also  Magic Oil. They are both transdermal forms of magnesium and The magnion has transdermal antioxidants and anti-inflammatories added as well. It took a few weeks of therapy, magnion in a bath and magic oil rubbed on the skin.....but my symptoms are nearly gone..migraines too. Too cheap and simple not to try. I used to hate baths...now, i take them instead of showers. also works good for exercise recovery
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Avatar universal
hi

yes i have had cervical mri.  i do have copies of everything and i have read doctors dictations.  its said severe carpal tunnel in arms.  but this year was the first time emg ever done on arms.  before this alwas in legs.  in legs it has always been normal.  the dictation by the neuro dosent sya much just excluding things like ms, als and stiff mans syndrome.  

this is what it says for mri of cervical without contrast
mild disc desiccation at c3-4, c-5, c5-6
straigtening of the -spine with slight reversal of lordosis in the midportion.
no evidence of abnormal signal intensity within the vertebral bodies.

the mri of brain
nonspecific T2 and flair hyperintensity in the left frontal white mattter.

dictation of neuromuscular doc.
extraocular movements are intact.  facial stregnth normal, speech clear. normal muscle bulk, tone and tregnth.  sensory exam in symetrical to fine touch. reflex normal.

we completed muscle biopsy which demonstrated no diagnostic abnormalities.  blood work for cpk, anti GAD antibodies and parvo B-19 were negative.  extensive imaging studies of brain and spine and other rhumatalogic exam , thyroid, and blood all negative.  unremarkable emg accept for carpel tunnel. chemistry level unremarkable except for mildy elevated globulin and protien.  sed rate elavated in past.

so basically i have in all gone too 3 different neurologist and one neuromuscular doc.  no one has a clue.

my sysptom for last few days are crazy.  my toes and finger are on fire along with rest of body and sharp electric horendous jabs of pain.
i  hate it when its in my throat. all i know flu shot made all this go to another level in 2003.
i am in a pretty bad shape.  i might go to the er tonight.  eventhough the never do ****.

my strenght is normal, walking rmal, but the nerve pain is really bad and just the zanafles is not working.

I DO HAVE SUDDEN JERK WHILE I AM SLEPING..  ESPECIALLY WHEN I AM DOZING OFF TO SLEEP.  THE OTHER DAY IT LITERALLY PUT ME IN A SITTING POSITION. AS FAR AS WHEN I AM AWAKE, ITS NEVER THAT DRAMATIC.  I MEAN I HAVE A LOT OF TWITCHING IN MUSCLES.

THERE ARE SO MANY SYSMPTOMS IN SO MANY PLACES.  MY EAR LOBE VIBRATES.  WIERED

ANYWAYS I DONT KNOW WHAT TO DO ANY MORE .

the doc said its normal.
Helpful - 0
Avatar universal
The Marshall Protocol website does indeed mention Th1 inflammation because that is the sole source of a lot of illness': the inflammation, so yeah, they're going to "mention it!" I don't have the ability to debate how it works, the website, (that NO ONE IS MAKING MONEY OFF OF) explains it all well. It does of course sound odd & yes, some question the Vit D aspect, that's normal, especially when we're mislead into believing something is good for us our whole lives. Vit D/sun light is not good for people w/a Th1 inflammation disease, as their site explains. Mercury was viewed as something harmless & even beneficial; its good thing we all benefit from advancements made by science. Why is it so hard to believe that we still can be making more discoveries? I was just suggesting looking into the MP, if after researching it you do not find it an appropriate treatment for you, fine, but I don't discredit anyone else's advice, so I don't understand why anyone is discrediting mine. It IS a fairly new treatment; I bet a lot of people were probably skeptic to things like penicillin & Novocain when they were new, too.

I'm not looking for spam opportunities, there's no pyramid scheme involved, as I already said, it's a website, explaining a treatment used to help a lot of sick people. (BTW, I haven't had 1 spam email sent to me by way of them.) They ALWAYS insist on being under the care of a physician for whatever illness we may have. Doc
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Avatar universal
one more thing i forgot

gagging is another sysmptom

read a dictation from second neurologist said possible dymlinating disease.

i have a 21 yr old sis recently diagnosed of ms.
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