Aa
undiagnosed severe full body nerve pain, twitching and spasms.
HI
I have been having this problem for 8 years, started in 1998.
getting worse in 2003 three days into flu shot.
Have had several mri of brain with and without contrast all normal. emgs over the years normal, spinal tap normal, several blood test normal (sed rate elavated over the yeras up to 30).
I see a neuromuscular doc now who did a muscle biopsy which is normal, test me for stiff man-syndrome (normal.) he has no idea.
took lyrica for a month and now zanaflex up to 20mg in a day. (no help yet.)
The rhumatologist said fibro and neuro disagrees. he says the twitching and spasms and nerve pain can be due to signal in nerves not traveling properly. why he dosent know.
i read on my brain mri single left frontal lobe white mater but doc said normal? why?
my sysptoms
twitching in whole body
muscle jumping like popcorn poppin all over
muscle spasms all over body( throat spasms, svere tightness in throat, stabbing sharp pain in thraot with it, literally feels like sking bieng pulled apart.)
nerve pain all over body (burning, tingling, pins and needles)
nerve pain(stabing, electriclike sudden jads that are horendous and take the life out of me, piercing shooting in nature like some thing lashing me from inside. lasts seconds but it is in multiple places in my body at the same time.)
at times when stabbs hit i get a single twitch.
my qustion what could this be. is it possible to have nerve pain of this nature in the entire body and all together.
with my research i cant find anyreason for such pain in entire body all together
I have been having this problem for 8 years, started in 1998.
getting worse in 2003 three days into flu shot.
Have had several mri of brain with and without contrast all normal. emgs over the years normal, spinal tap normal, several blood test normal (sed rate elavated over the yeras up to 30).
I see a neuromuscular doc now who did a muscle biopsy which is normal, test me for stiff man-syndrome (normal.) he has no idea.
took lyrica for a month and now zanaflex up to 20mg in a day. (no help yet.)
The rhumatologist said fibro and neuro disagrees. he says the twitching and spasms and nerve pain can be due to signal in nerves not traveling properly. why he dosent know.
i read on my brain mri single left frontal lobe white mater but doc said normal? why?
my sysptoms
twitching in whole body
muscle jumping like popcorn poppin all over
muscle spasms all over body( throat spasms, svere tightness in throat, stabbing sharp pain in thraot with it, literally feels like sking bieng pulled apart.)
nerve pain all over body (burning, tingling, pins and needles)
nerve pain(stabing, electriclike sudden jads that are horendous and take the life out of me, piercing shooting in nature like some thing lashing me from inside. lasts seconds but it is in multiple places in my body at the same time.)
at times when stabbs hit i get a single twitch.
my qustion what could this be. is it possible to have nerve pain of this nature in the entire body and all together.
with my research i cant find anyreason for such pain in entire body all together
ya possibly
the docotrs dont say anything. but the er doctor at that time said serum sickness from the flu shot. whe i researched about it back then i remembr it said its short lived but three years later here i am. the neuromuscular doc says whatever is going on it has not cause muscle weakness, atrophy or actual nerve damage. (emg of legs normal)
i dont know what to do. at my end of rope with this. ok i know this is bad language. i have to fight this
you know my first neurologist just termed as hypochondria and anxiety. i read hi dictaion and it says she mentioned fera of death. i mean so unfair becaus he asked me wierd questions back in 1999. sure i am afraid of death who the hell is not. so i feel like a new doc gonna read that and peg me like this from start.
i wish docs could just be more better listners. 99 percent of symptoms they dont even listen just nod their heads.
the docotrs dont say anything. but the er doctor at that time said serum sickness from the flu shot. whe i researched about it back then i remembr it said its short lived but three years later here i am. the neuromuscular doc says whatever is going on it has not cause muscle weakness, atrophy or actual nerve damage. (emg of legs normal)
i dont know what to do. at my end of rope with this. ok i know this is bad language. i have to fight this
you know my first neurologist just termed as hypochondria and anxiety. i read hi dictaion and it says she mentioned fera of death. i mean so unfair becaus he asked me wierd questions back in 1999. sure i am afraid of death who the hell is not. so i feel like a new doc gonna read that and peg me like this from start.
i wish docs could just be more better listners. 99 percent of symptoms they dont even listen just nod their heads.
Makina, I read that millions of flu vaccines given last year & previous years were filled with mercury or thimersol, could you be experiencing mercury poisoning? It can really cause some major health problems. One website I saw this at was mercola.com, run a search of "mercury flu" in the Mercola search box. This of course, is JUST a suggestion.
one more thing i forgot
gagging is another sysmptom
read a dictation from second neurologist said possible dymlinating disease.
i have a 21 yr old sis recently diagnosed of ms.
gagging is another sysmptom
read a dictation from second neurologist said possible dymlinating disease.
i have a 21 yr old sis recently diagnosed of ms.
The Marshall Protocol website does indeed mention Th1 inflammation because that is the sole source of a lot of illness': the inflammation, so yeah, they're going to "mention it!" I don't have the ability to debate how it works, the website, (that NO ONE IS MAKING MONEY OFF OF) explains it all well. It does of course sound odd & yes, some question the Vit D aspect, that's normal, especially when we're mislead into believing something is good for us our whole lives. Vit D/sun light is not good for people w/a Th1 inflammation disease, as their site explains. Mercury was viewed as something harmless & even beneficial; its good thing we all benefit from advancements made by science. Why is it so hard to believe that we still can be making more discoveries? I was just suggesting looking into the MP, if after researching it you do not find it an appropriate treatment for you, fine, but I don't discredit anyone else's advice, so I don't understand why anyone is discrediting mine. It IS a fairly new treatment; I bet a lot of people were probably skeptic to things like penicillin & Novocain when they were new, too.
I'm not looking for spam opportunities, there's no pyramid scheme involved, as I already said, it's a website, explaining a treatment used to help a lot of sick people. (BTW, I haven't had 1 spam email sent to me by way of them.) They ALWAYS insist on being under the care of a physician for whatever illness we may have. Doc
I'm not looking for spam opportunities, there's no pyramid scheme involved, as I already said, it's a website, explaining a treatment used to help a lot of sick people. (BTW, I haven't had 1 spam email sent to me by way of them.) They ALWAYS insist on being under the care of a physician for whatever illness we may have. Doc
one more thing
stabing pain in eye so bad knocked me from sleeping up.
u asked for copies of test. how could i get them to you.
stabing pain in eye so bad knocked me from sleeping up.
u asked for copies of test. how could i get them to you.
A BIT MORE DETAILS.
I remember before 1998, when i was a teenager i use to wakee up in the middle of night with my ears on fire. (dont remember one or both) and i would rub them for a while ten when it ok i go back to sleep. another this is for a few months i had burning in left elbow.
the forward 1998, newly married and suddenly started feeling starnge sensation in neck. odd sensatons that made it hard for me to look at people. ( not visualy just by sensation) still have this problem. it was a wiered pain in neck. then i started to have the same thing in my haands. i had hard time touching metal. it would send firy feeling up arms. the thraot tightness started with lump to swallow. went to ent who couldnt figure it out. a month later it all goes away and i became pregnant. in midd pregnancy legs tingle and feel numb. dc says norml. then tingling around lips. goes away. 3 days after labor boom all sysmptoms haywire. severe left sided at first and then both. numbness, tingling type stuff. lot of inflamation in muscle and joints. muscle cramp in legs at this point. see a neuro, mri and eeg normal.
sountil 2003 i see 2 differnt docs. all work up normal. 2003 flu shot and all hell breaks loose.
always sick with upper respitory stuff.
before the flu shot stabbing pain had already stated but flu shot made it worse.
my hol face in vibrating.
i have also felt my eyeball shake. when close like vibrating
I remember before 1998, when i was a teenager i use to wakee up in the middle of night with my ears on fire. (dont remember one or both) and i would rub them for a while ten when it ok i go back to sleep. another this is for a few months i had burning in left elbow.
the forward 1998, newly married and suddenly started feeling starnge sensation in neck. odd sensatons that made it hard for me to look at people. ( not visualy just by sensation) still have this problem. it was a wiered pain in neck. then i started to have the same thing in my haands. i had hard time touching metal. it would send firy feeling up arms. the thraot tightness started with lump to swallow. went to ent who couldnt figure it out. a month later it all goes away and i became pregnant. in midd pregnancy legs tingle and feel numb. dc says norml. then tingling around lips. goes away. 3 days after labor boom all sysmptoms haywire. severe left sided at first and then both. numbness, tingling type stuff. lot of inflamation in muscle and joints. muscle cramp in legs at this point. see a neuro, mri and eeg normal.
sountil 2003 i see 2 differnt docs. all work up normal. 2003 flu shot and all hell breaks loose.
always sick with upper respitory stuff.
before the flu shot stabbing pain had already stated but flu shot made it worse.
my hol face in vibrating.
i have also felt my eyeball shake. when close like vibrating
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