undiagnosed severe full body nerve pain, twitching and spasms.

[makina]

HI

I have been having this problem for 8 years, started in 1998.
getting worse in 2003 three days into flu shot.

Have had several mri of brain with and without contrast all normal. emgs over the years normal, spinal tap normal, several blood test normal (sed rate elavated over the yeras up to 30).

I see a neuromuscular doc now who did a muscle biopsy which is normal, test me for stiff man-syndrome (normal.) he has no idea.
took lyrica for a month and now zanaflex up to 20mg in a day. (no help yet.)

The rhumatologist said fibro and neuro disagrees.  he says the twitching and spasms and nerve pain can be due to signal in nerves not traveling properly.  why he dosent know.
i read on my brain mri single left frontal lobe white mater but doc said normal? why?

my sysptoms
twitching in whole body
muscle jumping like popcorn poppin all over
muscle spasms all over body( throat spasms, svere tightness in throat, stabbing sharp pain in thraot with it, literally feels like sking bieng pulled apart.)
nerve pain all over body (burning, tingling, pins and needles)
nerve pain(stabing, electriclike sudden jads that are horendous and take the life out of me, piercing shooting in nature like some thing lashing me from inside.  lasts seconds but it is in multiple places in my body at the same time.)
at times when stabbs hit i get a single twitch.
my qustion what could this be.  is it possible to have nerve pain of this nature in the entire body and all together.
with my research i cant find anyreason for such pain in entire body all together

[Hityty]

First... You're NOT alone, your description of symp's & pain sounds a lot like mine & several others here. To me it feels like electrical shocks,(that take my breath away) & sometimes it even feels like there's a constant electrical current running through me, not to mention the muscle pain & twitches. So, we understand how frustrating it is being told our tests come back "normal."
Try checking out Marshall Protocol at marshallprotocol.com, it's a treatment for autoimmune diseases, I started in August, it's long term, but it's a curative treatment not just a treatment of symptoms. Look up Hypervitaminosis-D, & read the symptoms of this, also look through the "Essential information about the MP" link on there homepage.
I would also recommend running a search on Lyme, Fibromyalgia, CFS & CFIDS, MS, Thyroid & liver, & lupus. Here's some links that helped me, but I believe you will find what you're looking for on the Marshall Protocol website, I did after searching for answers for 15 years.
http://www.anapsid.org/lyme/symptoms/tbi-symptoms.html
http://www.aarda.org/women.html
http://www.Diagnose-Me.com
Keep in touch, K!

[borninquisitive]

This may not be your problem at all but I suggest you look into Magnesium and Potassium. Worth a shot.

In my early years, I had bad muscle spasms. Which later seemed to be resolved with higher Potassium intake. During a very stressful time (and taking a powerful anti-biotic), I developed twitches during the day and bad "jolts" when sleeping. I tried Magnesium supplementation and relaxation. This helped, considerably. Read up on these two minerals and be certain they don't interact with any current medication that you may be taking.

http://dietary-supplements.info.nih.gov/factsheets/magnesium.asp