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Avatar universal

undiagnosed severe full body nerve pain, twitching and spasms.

HI

I have been having this problem for 8 years, started in 1998.
getting worse in 2003 three days into flu shot.

Have had several mri of brain with and without contrast all normal. emgs over the years normal, spinal tap normal, several blood test normal (sed rate elavated over the yeras up to 30).

I see a neuromuscular doc now who did a muscle biopsy which is normal, test me for stiff man-syndrome (normal.) he has no idea.
took lyrica for a month and now zanaflex up to 20mg in a day. (no help yet.)

The rhumatologist said fibro and neuro disagrees.  he says the twitching and spasms and nerve pain can be due to signal in nerves not traveling properly.  why he dosent know.
i read on my brain mri single left frontal lobe white mater but doc said normal? why?

my sysptoms
twitching in whole body
muscle jumping like popcorn poppin all over
muscle spasms all over body( throat spasms, svere tightness in throat, stabbing sharp pain in thraot with it, literally feels like sking bieng pulled apart.)
nerve pain all over body (burning, tingling, pins and needles)
nerve pain(stabing, electriclike sudden jads that are horendous and take the life out of me, piercing shooting in nature like some thing lashing me from inside.  lasts seconds but it is in multiple places in my body at the same time.)
at times when stabbs hit i get a single twitch.
my qustion what could this be.  is it possible to have nerve pain of this nature in the entire body and all together.
with my research i cant find anyreason for such pain in entire body all together
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Avatar universal
The answer is in your spine. I had this condition for 8 yrs and now live an awesome pain free life again. Stretch on an inversion table consistently 3 times a day (it's not fun but it works!). I did this and with in three weeks my spine started to pop many times and three weeks after that the pain went away 90%.All glory to God whom lead me to the cure!
Helpful - 0
Avatar universal
For a few years i have been experiencing shocking nerve pains all through my body, form my toes to my fingers through my back, neck, legs, everywhere. Also experience muscle spasms and sharp shooting pains. I have had mri's and tests for neuro diseases a year ago and all came back fine. The pains come and go every few months. What can i do in my situation?
Helpful - 0
Avatar universal
Full body pain and your other symptoms do sound like magnesium depletion, but you will never be able to replenish the mag levels with oral supplementation alone. I have had full body pain and many other symptoms. nothing seemed to help, so, being a science geek, I developed a very effective therapy, a product called Magnion ( www.imagenlabs.net ), and also  Magic Oil. They are both transdermal forms of magnesium and The magnion has transdermal antioxidants and anti-inflammatories added as well. It took a few weeks of therapy, magnion in a bath and magic oil rubbed on the skin.....but my symptoms are nearly gone..migraines too. Too cheap and simple not to try. I used to hate baths...now, i take them instead of showers. also works good for exercise recovery
Helpful - 0
Avatar universal
Yes its an evoked potental.If you had this in 1999,you want to have it repeated.Technology has changed and equipment more efficient.What actually is wrong with the c-spine,this could be attributing to the spasms,nerves and pain
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Avatar universal
what kind of test is it .  how is it done.  is it same thing as evkoe potential.  it was done  1999 normal.

one thing i have noticed past yrs my -spine mri normal and recent one mentioned some deformity typ stufff and said one causes spasms.
Helpful - 0
Avatar universal
Ask the muscular specialist to do a samotosensory test.This can detect abnormal spots of the spine and back to the brain.
My neuromuscular DR ran this test after I had ask,okay I begged,this is how they detected the lesions in my spine.MRi's don't always detect the small things.
Helpful - 0
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