Chronic Kidney Stones Doc's Don't take me seriously

[Kidneystoned55]

I am a 25 yr old male who has suffered with kidney stones periodically throughout my life.  I passed my first kidney stone when I was 11 years old, and didn't really have a big problem until i hit my late teens.  The worst of it has been the last two years-soon after i was diagnosed with Ulcerative colitis. My first question is could these be related?  My other concearn is Doctors don't seem to be taking me seriously about the pain, I recently was admitted to the hospital for pain control...They did a CT scan that showed no blockage...only a 5 mm stone in the kidney..The doc told me i couldn't possibly be having pain unless there was a blockage and that he couldn't really continue treating me (despite a long history, blood in my urine and extreme pain) because the ct scan was neg for ureteral stones.  After a week and a half of periodic pain i passed a 3 mm stone and my pain has subsided.  What do I do?

[Momofpatients]

My daughter is 16.  I've taken her to the ER 3 times and she has been hospitalized twice in the last month.  They finally diagnosed her with FOS - Full of Stool.  The stones show on the Ultrasound (5 mm in each kidney plus small ones) but not on IVP or CT.  They sent her home with stool softener.  Last night she had severe pain and passed another stone.  It is so frustrating.  They wanted to do a full GYN exam, which I refused and gave her a full sex education class, but did not resolve her problem.  I am very angry.

My other daughter is 26 and has had them since she was 14.  So I have been down this road before.

[surfwalkers]

I am a 62 year old male and have had persistent CAOX kidney stones since I was 22.  That is 40 years of kidney stones.  I have learned to live with them and have seen the same doctor all those years.  I now have two stones, one in each kidney and both are >9mm.  I hurt all the time but my doctor says that there is no hydronephrosis and the stones are in a position of the kidney where I should not be having pain.  Well guess what?  I do have pain and I am sure it is from the stone.

I have used pain killers all my life and have never had a problem with addiction, however that seems to consume my doctor's thinking and he is very reluctant to provide me with what gives relief.  I feel for all of you who have this same problem.  It is hard enough to deal with it...and then have to have the added guilt trip of being made to feel like it is all in your head and you just want the meds.  I think I would rather deal with the pain as to have to deal with the feeling that someone who knows your history and knows your past....now doubts your integrity.

An old man with stones....forever

[sevenoctober]

did UltraSound can help to detect kidney stones?

i've just completed the ureteral stent removal for the final step of kidney stone treatment.
really had a hard time for the past 1 month.. i feel so bad to cause a trouble to my family: they have to take leave to send me to hospital, they have to use their money for treatment that was exceed my insurance allowance.
i can say, from the passing kidney stones until the removal of stent, i was suffer so much!
=(

[museumsiren]

First off ((((HUGS)))) for your trouble. I imagine it's slightly worse for guys because you have an extra organ for those to go through. I know exactly how you feel when the doctors say "It's not moving so it shouldn't be hurting." Well it IS hurting sunshine, so thanks much. The others are 100% correct about the CT scans not showing all possible stones. Next time you have to go in demand an ultrasound. I got so lucky with one of my last visits because the doc said "CT only shows one small stone in your right kidney but I can see the pain you're in so I'm doing an ultrasound." Viola! SIX stones in my right kidney and 2 in my left, plus one moving. When I say DEMAND an ultrasound I mean it. Just try to remember that ER and Urgent Care docs are SO overwhelmed and it's really nothing personal against you. So many times I've hit the ER and it "looked" dead but they had ONE doc and three gunshot wounds that I couldn't see. I know when you're in pain the last thing you want to do is feel sorry for the doctors but believe me when I say it really actually helps alot when you remember what they're dealing with. Remember, waiting is good and getting sent home is good because it means you're not going to die.

I hope you get some REAL answers very soon hon!

[sleepytea]

If it helps, I suggest going to sites with doctor reviews and ratings, or the "Suggest a doctor" places.  That is how I FINALLY found a doctor who will listen and believe me.  Consider the searches in you your quest for a decent doctor!  And if you find a good one, please let others know!

[CANDYGIRL85]

im 24 years old i had my first stone when I was 15. and have had 300 since then I produce 3 types of stones so the drs can not help me  they can only do surgery when its needed. Ive had over 22 surgeries on my kidneys. the best way to get help for the pain from chronic stones is to find a pain management doctor they are wonderful and that's what they do best. So if your struggling with other doctors thinking your addict find a doctor who specializes in pain believe me it will change your life.