Did you have herpes blood or culture test?
I must agree, I have been fighting IC and Trigonitis for years. I finally took matters in my own hands and knew that the pain was so similar to a cold sore (only it felt like a giant one on my bladder) that I took Acyclovir and within 4 days I feel 90% better.
I also took the soda baths and added some essential oils.
I have not felt this good in years.
Well, if doctors are unsure what the cause of I.C is then i'm sure you yourself without any medical knowledge can NOT say what the cause of I.C is either ? I have had I.C since the age of 5 years old, Herpes is either a virus which gives you cold sores and makes you run down, or an S.T.I, to what i understand anyway ? I've never had cold sores and I can tell you for sure i know i didnt get an S.T.I at the age of 5. It's people like you that make people with a health problem (To no fault of there own, may i add) less able to look for help and understanding, this is a disease, it effects the bladder wall, it becomes inflamed due to many infections. it's something we all as I.C sufferers will have to deal with, so if seeing other peoples NICE comments helps us a little get on with are illness and manage are day to day life a little easier. "Thank you" to everyone for your helpful comments, it's nice to know i'm not alone. And for people with the silly nasty comments "i think" you need to read more information before going onto a site that deals with patient comments looking for help off of (helpful people with the same problems, and doctors who are looking to help answer are questions) not be slandered
I am trying to find out more information about this myself. I was diagnosed with Herpes 2 about 6 years ago and it was that same month that my IC started. I've always been convinced that the two were connected, even though I never really had any outbreaks with the Herpes. The funny thing about Herpes(or maybe not so funny) is that many people have it and never know because they do not have outbreaks. I had a doctor tell me that about 90% of my generation (late-20's now) will acquire this diesease at some point. If you look up the statistics its staggering. That being said, it doesn't mean that Herpes 2 is the only virus that could cause IC, perhaps it is an unknown, you really need a sleuth sometimes....
I agree with you that herpes could be a cause for IC; there are probably others. But the case known to me is caused by herpes, I'm absolutely sure. Could you PLEASE tell what it was that came to your knowlege about it? Desperate to find help and herpes is a hard thing to deal with. Thank you.
yea, I agree with Hayley723. Not everyone who has IC has herpes.