Penile pain, burning and itching genitals

[confused1234]

I am a 28 year old male. The symptoms I am about to describe began suddenly around August 2005. At first they were chronic; lasting all the time for about 2 weeks, after which I would be symptom free for a month or so. Gradually over time, the period in which I sufferred the symptoms lengthened and the period for which I was symptom free shortnened, to the point where I would say for the last 9 months I have sufferred these symptoms 24 hours a day, 7 days a week.

My groin area constantly feels "clammy" and sticky, much like you might feel after a long run. My genitals are constantly itchy in various places on my penis, testicles and pubic area. When I sit down, I experience a burning / prickling feeling in my groin, buttocks and thighs. The feeling is constant but is not generally felt when standing up or lying down. Minimal alleviation from the burning feeling is gained if I sit on a donut shaped cushion, but it does not help much. I also experience sharp stabbing pains in my penis from time to time, which was in fact the very first symptom I felt when this all started happening.

More recently now I do not seem to have the same pressure when urinating and I can't seem to squeeze everything out like I used to. No matter how much I shake afterwards, a little more urine always seems to drip into my pants afterwards.

I saw a urologist very early on in the picture; he performed a cystoscopy and prostatic massage which did not show any abnormal results, however it was likely that when he performed this it was in between times where I was sufferring symptoms. I also took a couple of courses of Ciprofloxacin which did not help at all. I have also been checked, re-checked and cleared on any STDs. I should also mention that there are no visual symptoms; sores or rash etc.

I have seen a neurologist who has tested me to the limits of his field of expertise, including MRI, nerve conduction studies, a lumbar puncture and various blood tests. He was unable to find a neurological reason for my symptoms.

I am now going to seek a second opinion from a urologist given the progression of my symptoms over time. In the mean time, if anyone can relate to these symptoms and offer some kind of advice or guidance that would be much appreciated. I am sufferring from this 24 hours a day 7 days a week and it is destroying my quality of life. The most frustrating thing is that as yet no one has been able to give me a definitive diagnosis of what this is.

Please help

[lookingforanswers175]

im experiencing all the same symptoms. did the diet work?

[rmd1986]

So I had a small bump in my pubic area (not characteristic of a herpes bump more like a pimple) I popped it and it had puss & blood in it & it immediately start going down/healing. I also have two very tiny white bumps right below the head of my penus. They are exactly the same size and side by side.  They don't hurt at all but they have been there for months. I also experience periodic minor itching & mild chronic burning in my penus that has been going on for 6 months plus. Any thoughts?

[Hsv1700]

This is my story. Had protected sex with a woman with HSV2. 9 days later started itching in the groin area and constantly self examined my penis, looking for lesions. 5 weeks later developed a burning pain in the penis, heavy feeling in my pelvis, and difficulty urinating. Have had negative HerpeSelect HSV2 tests at 8 and 11 week post exposure. The pain in the penis is horrible. Starting to believe this is all related to herpes. Again, never had any lesions suggestive of herpes. Saw an STD doc and he reassured me it was not herpes. Don't know what to believe. Maybe I should just concede and accept that this is herpes and start antivirals.

[larry123456]

Time is the only thing that brought relief for me. The small bumps were on my penis, but I've had red sensitive skin moving around the dermatome.

[SALTDOG]

Thanks.  I fear that I have exact same situation.  I have negative WB and close to 8 hsv test.  One was low hsv1 positive but since WB came back negative my ID doc says it was a false positive. I have red inflamed skin in crease of buttocks that fades from time to time (it is now like a red sunburn type rash)  It hurts to sit for long period of time. The nerve pain in penis is the killer.  I have been fighting this 19 months now

Where were your small bumps located?  Has anything helped.  I am daily acyclovir Gabapentin and amatryptyline.   I don't know if I will ever get complete relief.  Good luck and thanks for sharing

[larry123456]

I never had a blister type outbreak.  I had a rash and a lot of redness.  I fought for 11 months to figure out what it was with all doctors saying it definitely wasn't herpes.  All the medhelp docs told me nothing was suggestive of herpes as well.

At 11.5 months after exposure I had a surgery, all of a sudden about 4 tiny little red bumps developed, think size of a pinhead.  I quick ran in to the doctor to get them swabbed, they came back as HSV1.

It's been the only time I've had something physical to have someone really look at, otherwise it's just been sensitive skin and all the stuff people described in this post, to a T.

My blood tests are negative, including Western Blot.

It's coming up on two years now since exposure, around the one year mark is when it slowly started to get better.  Some days it still annoys the crap out of me though.