Hi all, sorry for my English, it is not my language.
Everything started 4 months ago. First tingling in my hands, after that tingling in my feet. I went to a neurologist, MR, EMG, tests, everything came normal. But my symptomps got worse.
The tingling sometimes is burning (burning feet) and burning arms, with muscle pain.
I went to many different doctors, at the end, an internist discovered I had vitamin d deficiency at 11, and my PTH came at 155 (due to my severe vitamin d deficiency)
I am on 8.000 ui per week, this is my 4th week.
I thought it would take time, of course, but instead of feeling better, I'm feeling worse. The burning is worse, the pain in my arms and joints is worse. I am absolutely desperate.
I have seen another two neurologists and they tell me everything is in my head or I have anxiety... But I know something wrong is going on.
My internist told me (based on my symptoms) that I could have small feber neuropathy. I am going to have more tests done, more lab tests and I am very scared.
They have put me on gabapentin (I couldn't tolerate it) cymbalta (I couldn't either) and now I am on tryptizol (only for 4 days).
I have read that all kinds of neuropathy, can get good results with alpha lipoic acid, so I am taking it since two days ago.
I am only 39 years old with two small twins, I am so scared, I cry almost every night. I still have the hope that all of these is due to my low vitamin d levels, but many doctors tell me that vitamin d only affects muscles and bones (not tingling or burning sensation)
I am so desperate!!!!