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Avatar universal

Sorry! just had to vent! Thank you!

ok I guess I just needed to talk to somebody! and nobody is around right now! Im about to go kaboom!!! well here's the sotry I'll try to make it short..two yrs ago my mom was diagnosed with Meniere's Disease which is caused by the inner ear, symptoms are so bad! nauceas, vertigo, everything spins around...anyways she had surgery for her ear and everything seemed to be going wonderful! I moved out of my house about 3 months ago...and now the attacka are back again she wakes up at night with this vertigo, can't even walk it's horrible I've experienced having to call 911 and take her in ambulance several times..it kills me to see her like this! and doctor's can't find a cure for her! I feel so useless. today was my day off and I had so manyt hings to do, of course had to stop them since she ended up in the hospital again, I just came back from her house she is all settled in, but looks so weak! it kills me not to be able to help her and sometimes I get really frustrated.I know she has nobody else to call or relay on, I've had to call off work so many times for her sleep at the hospital! ='( Im sorry Im just venting...I wish there was something I could do.
not only that but Im dealing with my own things here, went to the docs because I was going to the bathrrom so much they took my temp told me I had an infection somewhere but I had no UTI they gave me antibiotics to get rid of whatever it was but Im the same! they don't know what it is and Im tired of going back so I stopped! but I keep feeling the same, wake up at 5am everyday to go pee! discomfort down there! grrrrrr =/
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Avatar universal
sorry everytime I write a post I have to say! excuse my english! Im so bad trying to express myself! hope it wasn't too confusing to read!
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107860 tn?1302926740
I'm so sorry what your going through, It must be real hard for you, but your mom probably thanks you for what all your doing for her.
Do you have a friend or someone that can help you? so you can rest and take time off for yourself, and she can help your mom?
I know it's alot of work, but  you seem like you really care, and u seem like a loving person to go through all of this..
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Avatar universal
Thanks for answering =)  no I have no real friends around here, I moved here like 4 yrs ago and never made any friends besides my bf, he's been there for her, we both have slept on the floor many times at the hospital! makes me remember I got a cold because of that =/ hehe . it really hurts me to see the person who took care of me when I was little go through all that, I mean she was able to make me feel better anytime,the person who took care of me when I was sick and now that she is I can't do anything but just sit next to her while it happens. and doctors can't find anything to help her, pills are not working anymore. I love my mom to death. and all this is not helping my depression, I've been crying more often and feel like I have no energy..of course I don't show her this. She told me yesterday after the hospital that she saw a movie where a guy decided top die instead of going through pain, and hse said she thopugh she better be dead than go through the attacks, but she looked at me and said don't worry I would never do that, but it broke my heart. I guess I just need to know Im not alone and keep strong for her =)
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107860 tn?1302926740
Can one of the doctor's make house calls to check up on her? or is she spending most of her time in the hospital?

I know it must be tough for you, do what you can, and dont try to drain yourself.

I know you love your mom, and I know she loves you. Have you asked her what she wants??
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Avatar universal
She has a doctor all the way in other city because in the town we live in nobody knows how to treat Meniere's Disease, lately it's been every two days she has this attacks, and after one of those she can't even walk for about two days...makes her look so weak and sleeps all day. She doesn't know what to do, we've been with her doctor many times, she had that ear surgery and everything was going great and then the attacks came back, she has another appointment and they said they'll try to see what's causing it again, but the doctor said he really doesn't know. there's another procedure they can do or it could be the other ear giving the problems now (surgery was the right one). she says she gives up, she complains about her bills...in between ambulance and hospital bills she's spend almost 3,000. I reallly don't know what to do, Im here for her anytime she needs me. and I really pray and wish they can find some cure to stop those attacks.
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Avatar universal
"I can't do anything but just sit next to her while it happens."

"sitting next to her" while she goes through all this is probably the BEST thing you can do for her, don't feel helpless, you're helping her so much.

Google "The Marshall Protocol." Its a treatment for many disorders. Its not one of the many cure all wonder drugs that we all fall for when we're desperate enough, rather its a treatment using common med's. Their main website explains how it works, no one is selling anything or making anything from this website, it is solely to help many sick people. Look up "Essential information about the MP" and "Marshall Protocol FAQ's" on their website. I've been sick for 18 years, and last year I became so ill I was bedridden, and in pain 24/7 with lots of symptoms, I never would ever EVER take my life for any reason, but its an odd feeling, that this is the only relief we could have. It IS heart breaking to hear people we love talk about that, but understand that she just needs relief, and expressing that to you probably gives her a little. Just by being there is helping her in ways that you don't even know. I was at my wits end when my doc prescribed the Marshall Protocol, I've been on it since August, and I KNOW it's working. And though its a long term treatment, involving a lot of guidelines, its worth knowing that there is a cure at the end of all this, and a couple years on this treatment is so much better then being in pain or sick for the rest of your life. Please look into it, K!

Take care of yourself. Your mother of course wants you there, but I'm sure she would also want you to get the attention you need. Let us know how you and your mom are doing, okay?
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Avatar universal
Thank you for your reply, I'll look into it.
Thank you also for your words! I just wish I could do more, but I do anything that is at my hands to help her.
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Avatar universal
wow...im so sorry!!! you are young too right? probably more to be handling than you really should be!!! could you go stay with your mom for a while? until things calm down?
you ARE doing a lot and dont realize it. like the other poster said, you are there for her, even if its just sitting and you posted here in hopes to help her. maybe someone knows about all of this and can point you in the right direction. its happened before.
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Avatar universal
Thanks for answering =) ya Im still young only 19, it makes it real hard to see my mom going through all this, I've been crying so much, I deal with my mom and show strength for her, and when I get home I breakdown and then my bf deals with me hehe it works out for now..I really hope she gets an answer in her next appointment. I've looked though so many pages trying to find a cure and they all say the same. she already had one of the proicedures to be done. but I guess it didn't work. It's hard Im the only family my mom has here, we came to America both together, all my family is back in my native country, last resource my mom said she would go back because treatment would be much cheaper there, but I don't want her to leave me, selfish I know, that's how I feel but she is free to go, anything to make her feel better! Thanks for the support I really needed it.
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Avatar universal
forgot to add, about staying with her, she is married at the moment but her husband is not a good man I should add, Im glad he's there to take her to the hospital when she is not well and call me to let me know, I thank him for that, other than that he acts like he's fed up with it and sometimes doesn't take care of her like she needs to be taken care of.
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Avatar universal
where are you two origionally from? does your mom stay home by herself or is she staying at the hospital? i am sure also, if she is in the hospital, she'd love it if you took care of stuff (general life stuff) at the house ya know? who lives back where you are from? like, who do you have for family?
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Avatar universal
My mom is staying in her house, she gets those attacks just whenever, and we take her to emergency everytime, they treat her and send her home since there's not much they can do but just give a shot to calm the vertigo and nauceas, but she always get's bed rest for four days after every attack. she has had two of them in only one week. We are originally from Peru, by all family over there I mean the whole thing! =) my brother, grandchild, uncle, aunts (like 3), my mom's parents. Im almost always at her house when Im able to, I always come to check on her, I do soem of her chores, double house keeping! like today I had to run around stores to get her some things. Im sure she wqould love to go back there with everybody, selfish enough from me but I would never tell her, Im scared to be here by myself, I know I have my bf but my mom gives me that feeling of being home.
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Avatar universal
i guess we were posting at the same time! may i ask why just you 2 came here? would  it be unheard of for you to go back if it came down to that? seriously sliga, you are doing a ton...why dont you see that?
you are just 19. most 19 yr olds sorry to say dont give a rats a** about parents. its all about themselves (until they smarten up and realize it later on and end up being close with them). you on the other hand are doing a lot. you just need to see it. you're doing what you can.
wheres lucy? probably taking her baby oil bath and trying to pop her bump behind her ear! she's always on here 24/7!!
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Avatar universal
lol ocean3 that last line made me smile! my mom actually got married back in Peru with this guy, he's from here, they were in love but I guess it didn't turn out to be the perfect love story, I was almost 15 at the time and didn't know anything until my mom said we are going to florida!!  they drag me almost to the plane lol but Im here now! ...I don't wanna go back, I found the most perfect guy I don't want to leave behind, we have our own place right now and have plans of getting married soon. I don't want to leave him. and I know if my mom goes back she will have more than enough people around but I still wanna be there for her, I just don't wanna be left alone. I guess you always need your mommy around =)
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Avatar universal
yes thats true, when moms around no matter where you are its home. i love the saying...when mamas not happy, aint nobody happy!
well, moving, staying is not what you should think about right now. i was just trying to get an idea of your situation/thoughts. cross that bridge when you come to it.
try to get a good nights sleep tonight. i am off to take my shower and go watch some tv in bed. i usually watch house hunters on hgtv. i live vicariously through the people who move to warm places. where are you in FL? i was just there in april for a week (daytona beach shores) hence my nickname..oceans3. thats why i have been so down in the dumps. cold weather, holidays...but compared to what you are dealing with i shouldnt feel this way.
i will be thinking of you tonight. hey, if you stay on long enough juicy lucy may come on.  sleep well okay....everything will turn out the way its supposed to. "see you" in the morning!
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Avatar universal
My grandmother has that and me and my Mom feel the same way. My grandpa is dead now:(, but when he was around he was so sick and in and out of the hospitals and nursing homes that it was harder on her. She would have to put aside that even though she really couldn't and deal with him. Ever since he died she gets them all the time. They used to be once every now and then, but now they are like every week. I feel so sorry for her, b/c like you said you just have to sit and watch. I just had a baby and she always plans to come over with my Mom and then she has to back out b/c they pop up out of the blue. She has been to so many doctors and had so many tests and they just recently told her that it was that, but really can't do much for her. Venting is good. I am sorry to hear about you being sick and not being able to get things done b/c of your Mom, but I know she appreciates and loves what you do for her. I hope everything gets better for you. Take time to take care of yourself and figure out whats wrong before you end up in the hospital. Take care and keep us informed!
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Avatar universal
I live in a dead town lolthat's how we call it nothing happens here!!!! it's so boring! it's called Ocala...ya I was just feeling drained tonight, it was my day off and I was thinking some time for myself but I was wrong, it's ok tomorrow will be better! eventhough tomorrow I have to work lol I love Daytona beach been there a couple of times, I like been around the beach its so peaceful but a Im terrified of the water lol anyways I gotta gotta go to bed in a bit too...didn't answer right away because I had toi rush out with my bf, his mom's car got stuck somewhere and we had to go pick her up! =S good night!!!! and Thank you for the support, I very much appreciated! =D
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Avatar universal
Im glad to find somebody that also is familiar with this, but not happy that somebody else suffers from it, Im sorry for your grandma. like you say there's no telling when this will happen it just pops out and there is the attack and there is no real procedure so secure that the doctor we'll say it;'s over, they told my mom there's no way to cure it 100% you can just try to prevent. I hope your grandma gets better and has less of the attacks as much as I wish my mom does too. As for whatever I have I don't think it can be too bad, I went because I felt like going to the bathroom a lot, they looked for a UTI but it was neg, they gave mt antibiotics to take to get rid of any infection, doctor said my high temperature showed that I had an infection somehwere,anyways everything is the same, I feel like cramps every once in a while and going pee a lot, I took a hpt like three days ago I thought just "maybe" but it was neg. and my period was sep. 22nd so it would have showed up...I just don't know what to think but i'll deal with having to get up at 5am to pee for now hehe
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