adenomyosis

[shellant]

I was just diagnosed with adenomyosis. This took almost a year to diagnose. Any one have any info about it. I am 33 and discussed surgery with my Dr. He said if it is in an isolated area he does not have to do a hyterectomy. He also said this could have been caused by my c-section I had in 2004 i also had stage 3 enometreosis at the time of the c-section. I am considering surgery because of the pain I experience almost 3wks out of the month. any info would be helpful.

Thanks :)

[Wendy38]

I went for my yearly paps and mentioned to my obgyn the pelvic pain I was experiencing. He decided to send me for a vaginal ultrasound. I was diagnosed about five mths ago with endometrosis and I alo have ov cysts. In terms of measurement my dr was not too concerned and wanted me to go back for a vaginal sonogram in two months and so I did. Now today I went in for followup and was told by my obgyn that I also have Adenomyosis, he gave me oral contraceptive for treatment and will schedule me for D&C in the new year. I do not bleed a lot nor do I have any severe pain. I am 38ys, 5' 6 125lbs, I eat well. I have one child. When D&C is done I guess he'll be testing whatever he remove. What should I expect after D&C? Why am I not experiencing these severe symptoms.

[Trecala]

I am a 47 year old just diagnosed with Adenomyosis through an MRI.  I have suffered with blood clots and 9 day periods since i was 13 years old. I have two children a 7 year old and 27 year old. I have been going to gyn for years and they all told me i had fibriods which was causing my problems. A hystogram ,multiple ultrasounds and CT scan of pelvis did not show this problem.  My uterus is the size of a 4mo pregnancy and i am severly anemic. I am on iron supplements and get dizzy at times and tired a lot.  The Dr. that ordered the MRI is a robotic surgeon and does hysterectomies. I have heard all kinds of neg things about hysterectomies changing sex life, heart disease, bladder prolapse, back pain, early menapause even when overies are left. My dr says hormones are not a good option at my age. Anybody have any luck with the IUD ? There are a few surgeons who will operate on this condition and cut out the part of the uterus  that is most affected and restructure the rest of the uterus. Anybody have any info on this? Thanks. Renee  

[dnlboudoin]

ANDEMYOSIS.... I am 33 and didn't even find out that I had it until they took my uterus & cervix out. It is a disease of the uterus, which is almost like endymetriosis but a little different. Alot of times they think that your uterus is enlarged because of fibroid tumors, but that isn't always the case. ANDEMYOSIS is sooo painful during periods (monthly cycles) because the lining of your uterus is forming somewhat of the same this as a gall stone. Instead of shedding with your uterus, the stone moves upwards into the uterine wall muscle. It cannot be diagnosed with blood tests or anything else. You find out after a pathology report  is done following a hysterectomy. I hope that you have had all the children you are planning to have, because you have to get this out of your body or you will suffer... Maybe even beyond menstraul cramps.. Please talk to you doctor. I am 8 weeks after my surgery, and it was worth  5 weeks of pain to release me of an agonizing pain each month and to take the disease out of my body..Please email me if you need to. ***@****... GOD BLESS

[jam914]

my girl friend has been told by here gyno she has ando its good cause now we no what the problem is but there is no cure the doc said she will need a hysto before she is 30 she has tried everything she is 22 the doc also said she will never carry but we had alresdy found that out. i find it hard cause i dont realise how much pain she is in cause she does not look ill i try helping her as much as i can but stuggle. if she has a hysto will she still want me and how will it change her/us i dont no much about them. thank you

[MusicalNotes]

Hi, I was finally diagnosed with Adenomyosis in 2001 after having problems since I was 11 years old. In 1998 my iron level was down to 4. Sex was horribly painful. I told my female ob/gyn that I didn't think having a seriously heavy 9 day period every month and sometimes more plus all the other symptoms was normal. She referred me to an ob/gyn who did the SAME exam the other one just did and then she said she thought I had adenomyosis. My uterus was the size of a woman's who was 3 months pregnant. I had a complete hysterectomy in 2002 and do not regret it at all! They found that I also had endometriosis. I have not had the problems I did before, and sex isn't painful!!! I did not have a loss of desire either. One doctor wanted me to use a special IUD, but I've heard they can cause heavier periods and more pain and I wouldn't try that at all. The only real cure is a hysterectomy. If you want to and can wait so you can have kids before taking care of it do so - they are a blessing. I had my surgery when I was 41 and I am now 47. In retrospect I still wouldn't change my decision.

[mylovewiley]

I was the one that posted about the natural bioidentical progesterone.....everyone with estrogen dominance should try it....Low dose over the counter will not work you need higher dose. I was diagnosed with adenomyosis basically had surgeries nothing worked but this is working!! I was bleeding for almost 3 yrs straight..Please ladies try it...its worth it...they were offering me a hysterectomy as the only source of relief and this is working...no pain, no bleeding and most dr's do not know about it....It worked for me! Its working! I am so happy! Please try it dr's will try to change your mind but dont give in its worth the try...I finally have my life back!