Aa
adenomyosis
I was just diagnosed with adenomyosis. This took almost a year to diagnose. Any one have any info about it. I am 33 and discussed surgery with my Dr. He said if it is in an isolated area he does not have to do a hyterectomy. He also said this could have been caused by my c-section I had in 2004 i also had stage 3 enometreosis at the time of the c-section. I am considering surgery because of the pain I experience almost 3wks out of the month. any info would be helpful.
Thanks :)
Thanks :)
Hey everyone...I have also been diagnosed with adenomyosis....I was never also told I had ovarian cysts....I have decided to try a new Doctor because my obgyn knew nothing about bioidentical hormones ( progesterone cream natural) I made another appt with another obgyn but she isnt taking new patients until the end of april. I have been bleeding for 3 yrs straight with a small break after my 1st D and C last april. I tried birthcontrol pills but they just made me hemorroage. Pain isnt too much of an issue...have back pain but it is tolerable. The problem is these doctors do not want to investigate these new natural hormones. Bioidentical hormones mimic exactly how our body makes progesterone. My sister had gone to a regular Doctor for menapausel symptoms and he prescribed her Natural progesterone testosterone and DHEA. to help. Since I could not get this doc to prescribe for me since he wanted me to see my OBGYN to get a diagnosis my sister gave me her bioidentical progesterone cream and made him take out all the other stuff ( testosterone,DHEA). the reason why I am writing this is because even though you can get Natural progesterone cream over the counter at health food stores or via the internet it isnt strong enough for adenomyosis. I have been using her 200mg cream thru out the day. I take almost 800mgs of her dose plus when i get stressed I put the over the counter progesterone cream ( NATPRO) on. I have to be taking 900mgs per day and my bleeding has ceased. At times i bleed but very lightly and it goes away. I am overweight and I know body weight also plays a part. People who are overweight tend to have alot of estrogen in their bodies. Adenomyosis, endometriousis, polyps, fibroids are all caused by too much estrogen. Certain foods and veggies also carry alot of estrogen(ex: spinach and Broccoli) All these things are awful for adenomyosis...In fact as an example....I stopped bleeding with high doses of progesterone cream but then i said Oh let me lower it a bit just a bit. That same week of lowering I had tons of broccoli...( I happen to love broccoli and spinach) and sure enough! The bleeding started. Eventually I will start to cycle with the cream but being that I am just fighting the estrogen dominance...I take the cream every day. I sleep so good...Have no hot flashes, feel a sense of calm....no anxiety.....Dr's will not know how to dose you...You need to work with the cream in order to find the right dose for your body....But really....the ones over the counter....will not help much with adenomyosis...You need a good compounding pharmacy!! Will try to keep in contact as in april I have an appt with a new OBGYN who specializes in the natural bioidentical hormones....I am 37 yrs old and do not want children..never had children...just 2 D and C's The first one was to remove 2 endometrial polyps..... that I think really screwed me up more! I also believe that since before the 3 yrs of bleeding I was on the birth control pill and not bleeding at all ( I had always had regular periods) that the synthetic BC pills really screwed me up and helped with the estrogen dominance....We have to be strong as women and be aggressive with our dr;s to get the best care!! I wouldnt wish the suffering that I had the past 3 yrs on anyone even my worst enemy so Im with all of you! Try your hardest to not get the hysterectomy with removal of those vital organs there has to be consequences....my best regards to you all!!!
Sincerely,
Christina
Sincerely,
Christina
I am a 27 year old diagnosed with adenomyosis. I am not yet ready to have a hysterectomy I have two children but would like more. I am not sure though if i can get pregant because I am having a menstral cycle every 2-3 weeks, so it is hard to know when i am ovulating in that time! I am having a D&C in a few weeks and hope that she says I can wait to have a hysterectomy until I am done having children! I do however have severe menstral cramps and the leg pain nausea ect....but I am only 27 and everything i read suggests you get a diagnosis later inlife! Just stressed right now!!!!!!!!!
I have adenomyosis and have so much pain in my right leg. Sometimes it goes all the way down to my foot. Have you suffered from this at all?
My Dr. told me the area where I have adenomyosis is very vascular (bloody) and when he does my surgery he is going to enter the area where the least amount of blood is. I have read alot about adeno and lots of times the cure is a hysterectomy but I do beleive there are some Dr.'s who do not beleive in taking out body parts. I think the problem is Dr.'s have a huge problem admitting they do not understand these gyno issues esp adeno and endo and in reality there surgerys are useless. Anyway there has been many reports on women who have had a hysterectomy and they are still in pain tell your Dr.to explain that one!! I am having my lap on 2/22 and my Dr. says he feels confident he can remove the 1.6cm mass he is calling adenomyosis in the wall of my Uterus. i am 33 with one child and would like another one and the thought of menopause does not seem like a great option but at the same time I can't go on living in pain and trying to raise a 2yo work and be a wife. I also think our whole healthcare system sucks and dr.'s care more about $$ and quaintity of patients. You are right if a man had pain in his penis everyday I bet they would find a cure :)
Sorry it took so long to get back to you. I tried this site yesterday and it was down for maintenance or something. I'm in Alaska, what state are you in? The specific cream I bought is from a company called emerita.....go to their website of emerita.com, they have all kinds of products, but like I said, I got it in the health food section of my grocery store. It is progesterone cream. You are supposed to rub it on any hairless spot on your body once a day if you haven't entered menopause yet. I did belly, then inside of the upper arms, then buttocks, and switched around so I never put it on the same place two days in a row. I don't know if that matters or not. Also, check out website womentowomen.com. I really find some useful articles and help on that site. They sell progesterone cream too. Good luck to you!
Amy
Amy
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