endometriosis

[FACS_lady]

I am 31.  Have had 13 laparoscopies with laser for endometriosis since I was 10.  I have two children now and recently had to have another surgery for endo.  My gyn says it is time to have a hysterectomy.  I am unsure that this is my best route.  I have never had much pain.  My symptomps have always been fatigue and emotional in nature.  Help!

[aylin32]

I have terrible vertebral column crisis....  I know I have vertebral column problems , but I have also Endometriosis. I had aa single laser surgery, but I will not doing other anymore. I am suffering of terrible pains ! I can't walk now  because of vertebral column ! My pains appear after the period, at day 6 -6 of period when the period stop in fact, or at the ovulation.  I am doing treatment with Endovan for 1 years and half and it helpt me very much for other local pains ( I have endo on intestines ) and I try also some Chinese medicines called Ankun Zanyu Wan , you can find them on alibaba.com.  It helped me a lot, but how to do with the vertebral column ??? I don't want have surgery on vertebral column , I am not married, I am single,  I am alone  ( I am from Europe) , I have no medical insurance, my situation is so bad....  If anyone who suffer the same want to talk with me, add me in your yahoo : *****.*****    You are not alone ! We are so many with this problem...., But I cannot work, I cannot have a normak life...  I have a boyfriend, he support me now here, but how long could he do this ?? Is so hard....   And I can't tell to a man about this illness.....  I am afraid......

[bowlingchick]

Thank you for sharing your experience.  It's such a shame that there is no cure for endo and that a hysterectomy is our only choice.  Too many young women are having to go through this and lose their natural hormones way too soon.  I wish you the best, let me know what you decide about the surgery.  

[scaredinIL]

I am a 32-year-old female with two children.  A few years ago, I was diagnosed with endometriosis via lap.  I think she said I was about a Stage II but I have horrible pain with ovulation and my periods.  She burnt off what she could and I felt pretty good for a while after that.  I also have had laser surgery on my cervix due to abnormal cells, with a negative HPV test.  Fast forward to last fall.  I start bleeding after intercourse with my then husband, which would last for days afterwards.  I went to the doctor and tested negative for everything (STDs and infections).  She had me track when I would start bleeding and for how long.  She suggested that I might have adenomyosis (sp?) but oddly enough, the bleeding went away.  Fast forward to now.  Over the last three to four months, I have had horrible pain with my periods on the left side.  It lasts only the first two days of my period and the pain is so intense that I can hardly walk.  A week ago, I had sex with my current boyfriend, who happens to be a little larger than I am used to.  During intercourse, he kept hitting my cervix and I bled A LOT.  The next morning, the bleeding stopped.  

I know I need to go to the doctor, but I just moved and I don't know who to go to.  I miss my old doctor because she specialized in endometriosis.  I have no idea who to go to now.  

My question is, do you think this is really serious?  I am scared to death because I don't want a hysterectomy.   Does anyone know of a good GYN in St. Louis?

[FACS_lady]

Also, the doctor said the fatigue was caused by the endo and the emotional roller coaster I stay on was hormone related.  My endo caused sever pain during menstruation but I was put on Birth Control at 14 and my periods became much shorter and lighter and the pain lessened.  I still take birth control.  Now the pain is all in my lower back and it causes problems with IBS during a flare up.  I have chronic constipation and then uncontrollable diarrhea.  Then endo was found all over my colon and bladder and lower back.

[FACS_lady]

I started my period at 9.  At 10 my parents took me to the ER for appendicitis.  They found a cyst on my ovary and the endo during that surgery.  The surgeries do cause scar tissue, but my doctor felt the best way to preserve my fertility was to be very aggressive.  At 10 it was already blocking a fallopian tube.  Since the birth of my children it has not been as frequent but I have tried all the other therapies and surgery is the only one that works.  It is bad when you wake up from surgery feeling good.  The doctor said this was it however since I had two children and my husband does not want more he says the next surgery he performs will be a hysterectomy.  I just think this is extreme for my age

[bowlingchick]

How did they learn you had endometriosis at age 10?  That must mean you were having monthly cycles by age 10?  I had stage 4 endometriosis which wasn't found until I had a hysterectomy at age 40.  I have a daughter who just turned 15, she has already had a cyst on her ovary.  So it worries me that she might also have endometriosis.  So if you wouldn't mind sharing more of your story...I'd appreciate it.

[TLOW1212]

I am 38 and have endometrosis.  I have had 4 laparoscopies and on the last one my doctor told me it could cause more harm than good to have more because of scare tissue caused from the surgerys.  I had a lot of pain though.  13 seems so extreme to me.  What was the reason for so many?  I didn't know emdometriosis cases fatigue and emotional issues.  Is that what your doc said?