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My Daughter was diagnosed "GM"
I'm a father of 52 years old living in Houston TX my daughter of 27 years old was diagnosed with granulomatous mastitis last week, she lives in Oregon , she is mom of one boy and one little girl.
She has one cyst in her breast and have anything in her legs too. So much pain
The doctor prescribed her prednisolone
We are worried about this, I was looking for more info in the web but I think this is the best forum place.
Sorry because I’m a man in a women forum, we only need help.
Thank you
She has one cyst in her breast and have anything in her legs too. So much pain
The doctor prescribed her prednisolone
We are worried about this, I was looking for more info in the web but I think this is the best forum place.
Sorry because I’m a man in a women forum, we only need help.
Thank you
Hi
Sorry to hear about your daughter. I have been a member of medhelp for approximately a year, after been diagnosed with Granulomatous mastitis (GM) in July 2010. I read all the new posts here (which are invaluable to me), but I am (unfortunately) not very active myself. One day when I get the time (I do have two small children) and a very god Norwegian - English Dictionary (I live in Norway), I`ll try to write my story too...
Anyway, since I read about your daughter having lumps in her legs, I just wanted to say (or inform you about the fact) that I did have joint pain and lumps several places in front off my right leg, in my right ankle and left wrist about the same time as the GM started. My doctors told me that this most likely was/is Erythema Nodosum and/or reactive arthritis (they also checked me for Sarcadosis, but the x-rays etc. was fine). The symptoms and pain in my leg and wrist was worst the first months before it slowly got better. There has been a few cases reporting granulomatous mastitis accompanied by erythema nodosum. Maybe you could ask the doctors about their opinion regarding this....
Sorry to hear about your daughter. I have been a member of medhelp for approximately a year, after been diagnosed with Granulomatous mastitis (GM) in July 2010. I read all the new posts here (which are invaluable to me), but I am (unfortunately) not very active myself. One day when I get the time (I do have two small children) and a very god Norwegian - English Dictionary (I live in Norway), I`ll try to write my story too...
Anyway, since I read about your daughter having lumps in her legs, I just wanted to say (or inform you about the fact) that I did have joint pain and lumps several places in front off my right leg, in my right ankle and left wrist about the same time as the GM started. My doctors told me that this most likely was/is Erythema Nodosum and/or reactive arthritis (they also checked me for Sarcadosis, but the x-rays etc. was fine). The symptoms and pain in my leg and wrist was worst the first months before it slowly got better. There has been a few cases reporting granulomatous mastitis accompanied by erythema nodosum. Maybe you could ask the doctors about their opinion regarding this....
Hi Suzanne
Thank you for your post, next time when I talk my daughter I will ask her about the tests that you have mentioned, very important , when I told her about the opinions in this forum, and I sent her the opinion of the dr. Dr.Ahmet Bahadir Ergin about that is not good idea the open breast biopsy, she told me that she is confuse, I understand her, so much pressure, I prefer no every day ask her about the problem, she is very young same to you, but she is married and mom, I have to respect her decisions. I know she is taking prednisone, I hope this help her the pain and inflammation, I know she was reading my posts in this forum but I don’t know if she wants to participate in the future, I will talk her about the sarcoidosis maybe this can help her doctor to find the correct way.
Thank you for your post, next time when I talk my daughter I will ask her about the tests that you have mentioned, very important , when I told her about the opinions in this forum, and I sent her the opinion of the dr. Dr.Ahmet Bahadir Ergin about that is not good idea the open breast biopsy, she told me that she is confuse, I understand her, so much pressure, I prefer no every day ask her about the problem, she is very young same to you, but she is married and mom, I have to respect her decisions. I know she is taking prednisone, I hope this help her the pain and inflammation, I know she was reading my posts in this forum but I don’t know if she wants to participate in the future, I will talk her about the sarcoidosis maybe this can help her doctor to find the correct way.
Hi,
First of all it is very nice that you are taking such an interest in your daugther's health. I really hope everything works out well for her and maybe she can find some support in this forum when she is ready.
Your daughter does seem to have symptoms similar to mine at the time of my diagnosis. She should mention sarcoidosis to her doctors and they will no doubt do a complete physical assessment to rule out the involvement of any other body systems and possibly diagnose sarcoidosis. Do you know if she had a CRP or ESR drawn from her blood? (Im from Canada so Im not sure if they do the same tests where you are). I know with mine I had several lumps on my legs that were extremely painful, especially after putting my feet down after having them raised. Also, a lot of swelling. On the bright side, although the prednisone didn't have an effect on my breast, it did help the inflammation in my legs and joints VERY quickly. I hope your daughter has even more relief from it. Please keep us updated on how she is doing and post if you have any questions.
First of all it is very nice that you are taking such an interest in your daugther's health. I really hope everything works out well for her and maybe she can find some support in this forum when she is ready.
Your daughter does seem to have symptoms similar to mine at the time of my diagnosis. She should mention sarcoidosis to her doctors and they will no doubt do a complete physical assessment to rule out the involvement of any other body systems and possibly diagnose sarcoidosis. Do you know if she had a CRP or ESR drawn from her blood? (Im from Canada so Im not sure if they do the same tests where you are). I know with mine I had several lumps on my legs that were extremely painful, especially after putting my feet down after having them raised. Also, a lot of swelling. On the bright side, although the prednisone didn't have an effect on my breast, it did help the inflammation in my legs and joints VERY quickly. I hope your daughter has even more relief from it. Please keep us updated on how she is doing and post if you have any questions.
As you are finding, there is a lot of information packed in these pages. When first discovered this I spent hours on the computer reading up on things. I hope your daughter takes some time to discover these pages herself. You are being a huge support to her. When you mentioned the leg sores I immediately thought of the Sarcadosis that Suzanne was dealing with. I am glad you found the entry as I didn't have the energy to dig for it at the time.
I found in the same forum a post talking about Sarcoidosis, looks like the symptoms of my daughter
by Suzanne128462, Mar 27, 2011 09:05PM
Thank you both for your responses. It is so helpful to read and learn from other women's experiences, especially since I was told this is such a rare medical condition. I had not heard of sarcoidosis either until I was diagnosed with it. It is an inflammatory disease of unknown cause that can cause clusters of cells in almost any organ system in your body (it usually affects the lungs, but luckily mine didn't). It took the doctors a while to link all the symptoms together but they finally decided that I had sarcoidosis which caused the GM as well and inflammation in my joints ( I also, at the same time had mono). Pandora, your story sounds so similar to mine. It could be the antibiotics causing the joint pain-but it could be sarcoidosis. do you have any red lumps on your shins or feet (that was what happened to me). I noticed that both of you were prescribed antibiotics. I am a nurse and of course, when i heard mastitis i initially questioned why the doctors did not want to put me on antibiotics. They said that antibiotics would help only with mastitis but not granulomatous mastitis. My family and I are still convinced that antibiotics would help, especially since i now have a new hot sore red lump on my breast.
by Suzanne128462, Mar 27, 2011 09:05PM
Thank you both for your responses. It is so helpful to read and learn from other women's experiences, especially since I was told this is such a rare medical condition. I had not heard of sarcoidosis either until I was diagnosed with it. It is an inflammatory disease of unknown cause that can cause clusters of cells in almost any organ system in your body (it usually affects the lungs, but luckily mine didn't). It took the doctors a while to link all the symptoms together but they finally decided that I had sarcoidosis which caused the GM as well and inflammation in my joints ( I also, at the same time had mono). Pandora, your story sounds so similar to mine. It could be the antibiotics causing the joint pain-but it could be sarcoidosis. do you have any red lumps on your shins or feet (that was what happened to me). I noticed that both of you were prescribed antibiotics. I am a nurse and of course, when i heard mastitis i initially questioned why the doctors did not want to put me on antibiotics. They said that antibiotics would help only with mastitis but not granulomatous mastitis. My family and I are still convinced that antibiotics would help, especially since i now have a new hot sore red lump on my breast.
My daughter toldme the two lumps in her leg are located below the knee in the back muscle, size one inch and a half reddish color all blood test are good and the niddle biopsies are fine too
Dr Laya is in vacations
thank you JoJo and eluriajen
Dr Laya is in vacations
thank you JoJo and eluriajen
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