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My Daughter was diagnosed "GM"
I'm a father of 52 years old living in Houston TX my daughter of 27 years old was diagnosed with granulomatous mastitis last week, she lives in Oregon , she is mom of one boy and one little girl.
She has one cyst in her breast and have anything in her legs too. So much pain
The doctor prescribed her prednisolone
We are worried about this, I was looking for more info in the web but I think this is the best forum place.
Sorry because I’m a man in a women forum, we only need help.
Thank you
She has one cyst in her breast and have anything in her legs too. So much pain
The doctor prescribed her prednisolone
We are worried about this, I was looking for more info in the web but I think this is the best forum place.
Sorry because I’m a man in a women forum, we only need help.
Thank you
Thank you so much to Pandora1962 and JoJo45 for the soon response and for the valuable info given.
My daughter have 2 lumps in her leg the same size like the breast, she has joint pain in her legs too.
The surgeon going to do an open Biopsy next tuesday July 5 2011, she had three weeks ago two niddle biopsies.
She is taking prednisolone.
Thank you
My daughter have 2 lumps in her leg the same size like the breast, she has joint pain in her legs too.
The surgeon going to do an open Biopsy next tuesday July 5 2011, she had three weeks ago two niddle biopsies.
She is taking prednisolone.
Thank you
Hi - I know it is you living in Houston and not your daughter but you may want to contact the Anderson Centre and see if they can help you or refer you
Here is a link to a recent article on GM with one pathologist linked to Anderson Centre in Houston - you might start there and just start asking around, ask them to refer you to a breast specialist or rheumatologist affiliated with the care of the cases they studied. I am sure they would be happy to hear from you...we are interesting!
BMJ Case Reports 2011; doi:10.1136/bcr.07.2010.3156
Reminder of important clinical lesson
Recurrent granulomatous mastitis mimicking inflammatory breast cancer
Ahmet Bahadir Ergin1, Massimo Cristofanilli2, Hamed Daw3, Gulgun Tahan4, Yun Gong5
- Author Affiliations
1Department of Internal Medicine, Fairview Hospital, Cleveland, Ohio, USA
2Department of Medical Oncology, Fox Chase Cancer Center, Philadelphia, Pennsylvania, USA
3Department of Regional Oncology, Cleveland Clinic, Cleveland, Ohio, USA
4Department of Human Resources, University of Pittsburgh Medical Center, Pittsburgh, Pennsylvania, USA
5Department of Pathology, M.D. Anderson Cancer Center, University of Texas, Houston, Texas, USA
Correspondence to
Ahmet Bahadir Ergin, ***@****
Summary
Granulomatous mastitis (GM) is an uncommon benign breast lesion. Diagnosis is a matter of exclusion from other inflammatory, infectious and granulomatous aetiologies. Here, we presented an atypical GM case, which had clinical and radiologic features overlapping with inflammatory breast cancer (IBC). The disease had multiple recurrences. The patient is a 40-year-old Caucasian woman with a sudden onset of left breast swelling accompanied by diffuse skin redness, especially of the subareolar region and malodorous yellow nipple discharge from the left nipple. The disease progressed on antibiotic treatment and recurred after local resection. A similar lesion developed even after bilateral mastectomy. GM may show clinical/radiologic features suggestive of IBC. Multiple recurrences can be occasionally encountered. GM after recurrence could be much more alarming clinically. Pathology confirmation is the key for accurate diagnosis and a multidisciplinary approach is important to rule out IBC.
Here is another link to a teaching centre- specializing in autoimmune:
http://www.uth.tmc.edu/schools/med/imed/divisions/rheumatology/index.html
Not sure if this is helpful.
Jo
Here is a link to a recent article on GM with one pathologist linked to Anderson Centre in Houston - you might start there and just start asking around, ask them to refer you to a breast specialist or rheumatologist affiliated with the care of the cases they studied. I am sure they would be happy to hear from you...we are interesting!
BMJ Case Reports 2011; doi:10.1136/bcr.07.2010.3156
Reminder of important clinical lesson
Recurrent granulomatous mastitis mimicking inflammatory breast cancer
Ahmet Bahadir Ergin1, Massimo Cristofanilli2, Hamed Daw3, Gulgun Tahan4, Yun Gong5
- Author Affiliations
1Department of Internal Medicine, Fairview Hospital, Cleveland, Ohio, USA
2Department of Medical Oncology, Fox Chase Cancer Center, Philadelphia, Pennsylvania, USA
3Department of Regional Oncology, Cleveland Clinic, Cleveland, Ohio, USA
4Department of Human Resources, University of Pittsburgh Medical Center, Pittsburgh, Pennsylvania, USA
5Department of Pathology, M.D. Anderson Cancer Center, University of Texas, Houston, Texas, USA
Correspondence to
Ahmet Bahadir Ergin, ***@****
Summary
Granulomatous mastitis (GM) is an uncommon benign breast lesion. Diagnosis is a matter of exclusion from other inflammatory, infectious and granulomatous aetiologies. Here, we presented an atypical GM case, which had clinical and radiologic features overlapping with inflammatory breast cancer (IBC). The disease had multiple recurrences. The patient is a 40-year-old Caucasian woman with a sudden onset of left breast swelling accompanied by diffuse skin redness, especially of the subareolar region and malodorous yellow nipple discharge from the left nipple. The disease progressed on antibiotic treatment and recurred after local resection. A similar lesion developed even after bilateral mastectomy. GM may show clinical/radiologic features suggestive of IBC. Multiple recurrences can be occasionally encountered. GM after recurrence could be much more alarming clinically. Pathology confirmation is the key for accurate diagnosis and a multidisciplinary approach is important to rule out IBC.
Here is another link to a teaching centre- specializing in autoimmune:
http://www.uth.tmc.edu/schools/med/imed/divisions/rheumatology/index.html
Not sure if this is helpful.
Jo
Hi -
Welcome, I hope we can assist you with some more info on this rare and bewildering disease.
First I would say to encourage your daughter by letting her know that there really are no defined outcomes for this disease...I think it is important to stay positive and assume that treatments will work, and then just deal with any complications as they come.
What do you mean about her legs...I don't understand, does she have pain in her legs...please clarify.
What are her current breast symptoms? Other symptoms?
Who is her treating doctor, do they have experience treating GM patients, are they knowledgeable? Is it a breast surgeon or a rheumatologist overseeing the prednisone therapy? What type of testing did she have done to diagnose GM?
I personally believe that informed care at the outset is a key to having this disease resolve with the least complications.
Please provide us with any information you may have in response to my questions above and please ask us any questions you may have at this point. We can go from there in trying to provide you with information and references so that you are well informed to make the necessary treatment decisions, with the least amount of worry, and hopefully the best ultimate outcome.
All of us here have come through this, or are in the stages of doing so, and so there is hope.
We are patients, not medical experts, so we can best provide information on our own experiences with treatments.
I think there is a GM expert in the Houston area, or at least someone publishing on GM...I am going to check past posts and will post if I can find anything.
Jo
Welcome, I hope we can assist you with some more info on this rare and bewildering disease.
First I would say to encourage your daughter by letting her know that there really are no defined outcomes for this disease...I think it is important to stay positive and assume that treatments will work, and then just deal with any complications as they come.
What do you mean about her legs...I don't understand, does she have pain in her legs...please clarify.
What are her current breast symptoms? Other symptoms?
Who is her treating doctor, do they have experience treating GM patients, are they knowledgeable? Is it a breast surgeon or a rheumatologist overseeing the prednisone therapy? What type of testing did she have done to diagnose GM?
I personally believe that informed care at the outset is a key to having this disease resolve with the least complications.
Please provide us with any information you may have in response to my questions above and please ask us any questions you may have at this point. We can go from there in trying to provide you with information and references so that you are well informed to make the necessary treatment decisions, with the least amount of worry, and hopefully the best ultimate outcome.
All of us here have come through this, or are in the stages of doing so, and so there is hope.
We are patients, not medical experts, so we can best provide information on our own experiences with treatments.
I think there is a GM expert in the Houston area, or at least someone publishing on GM...I am going to check past posts and will post if I can find anything.
Jo
One more thing. She should avoid having surgery if at all possible. Healing is difficult. The lumps can be drained with a fine neetle aspiration (FNA), and if they are really ready to burst, sometime a surgeon can make a small incision to drain and irrigate, but the incisions take months to heal. The women who have had doctors try to remove the lumps have not had good experiences.
It is very sweet that you are going doing this for her. I am taking Prednisone myself, and it should take the bite out of her symptoms, and give her relief from the pain. I don't believe it will cure her. However, it does buy her time to see someone and let her make a decision with a clear idea of what she wants to do.
She is living in Oregon, and there is a Breast Surgeon in Seattle WA who is treating several girls on this forum. Dr. Laya. I am sure she would either consult with her doctor, or be happy to see your daughter herself. My doctor called her, and found her very helpful. I did not use the treatment she suggested....which I regret....sice I believe the women on this forum whom she sees are experiencing healing.
This is a disease that is managed, not necessarily healed. Women do get to a point where they are free of symptoms, but it does seem to return. It is a autoimmune disease, not a cancer, so some breast surgeons feel unable to deal with it. Some Rheumatologists feel unable to deal with it....but it is their area of specialty.
The best thing she can do is read up. Get on line here herself. Pour thru these womens histories, which can be tricky, but there is a lot of information hidden in these pages.
Keep encouraging her. Try not to get frustrated if she chooses a different course of treatmet than you think. NOT treating it IS a valid choice. If you look at the Studies posted on the GranulomatousMastitis web site you will see that some women do become symptom free by doing nothing. I didn't have the fortitude for that choice.
She is living in Oregon, and there is a Breast Surgeon in Seattle WA who is treating several girls on this forum. Dr. Laya. I am sure she would either consult with her doctor, or be happy to see your daughter herself. My doctor called her, and found her very helpful. I did not use the treatment she suggested....which I regret....sice I believe the women on this forum whom she sees are experiencing healing.
This is a disease that is managed, not necessarily healed. Women do get to a point where they are free of symptoms, but it does seem to return. It is a autoimmune disease, not a cancer, so some breast surgeons feel unable to deal with it. Some Rheumatologists feel unable to deal with it....but it is their area of specialty.
The best thing she can do is read up. Get on line here herself. Pour thru these womens histories, which can be tricky, but there is a lot of information hidden in these pages.
Keep encouraging her. Try not to get frustrated if she chooses a different course of treatmet than you think. NOT treating it IS a valid choice. If you look at the Studies posted on the GranulomatousMastitis web site you will see that some women do become symptom free by doing nothing. I didn't have the fortitude for that choice.
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