My Daughter was diagnosed "GM"

[dadworried2011]

I'm a father of 52  years old living in Houston TX  my daughter of 27 years old was diagnosed with  granulomatous mastitis last week, she lives in Oregon , she is mom of one boy and one little girl.
She has one cyst in her breast and have anything in her legs too. So much pain
The doctor prescribed her prednisolone
We are worried about this, I was looking for more info in the web but I think this is the best  forum place.
Sorry because I’m a man in a women forum, we only need help.
Thank you  

[dadworried2011]

You can send me your personal email to ***@**** then I can send you the complete document that the Dr Bahadir sent me.

[eluriajen]

Thanks for sharing that response. I am happy to know that there are doctors out there who are willing to respond quickly and give good advice, even for patients who they haven't actually seen.

Is there any way that you could please send us a link to the article he sent you? I would really like to read it.

I have opted not to do any type of surgery or take medications with this disease. It has been a long, hard process (15 months so far), but I have been doing a lot better over the last few months, and am starting to think that *maybe* this will eventually go away for me. One of the things that I am thankful about is that since I never had any surgery, my breast is mostly intact. I have big scars from the biopsies, and from abscesses that burst through, but over the last 6 months with no abscesses, the scar tissue has softened some, and is lightening in color. If the GM will eventually go away, I think that my breast might be healthy and look nice again, and I am very thankful for that.

There are women who have had this disease, who have had a much worse time of things, and my heart hurts for the things they have been through. I hope that your daughter is able to come through this as painlessly as possible, even though she may have a hard road ahead of her.

Did the doctors biopsy the lumps in her legs? Are they from GM as well?

Jennifer

[dadworried2011]

I contacted the Dr.Ahmet Bahadir Ergin
and this was his response

I am attaching our article about this disease entity. I do not believe surgery is a good option for this disease. We did a extensive literature review. Please read the whole thing and rethink about it.

Good luck to you and to your daughter,

Let me know if I can help you any further.

Regards,

[dadworried2011]

I found the link
http://depts.washington.edu/gim/faculty/laya.htm

[dadworried2011]

Thank you eluriajen for your opinion
we would like to contact urgently the Surgeon Dr Laya in Seattle WA,
must be good idea the doctors can talk before surgery next tuesday.
we need the information about Dr Laya phone number or link of her website.
thank you again for your help and opinions

[eluriajen]

I don't think that an open biopsy/excision is a good idea unless the doctor has a very specific reason for wanting to do it. Often, with GM, women who have surgical excsions (like this biopsy) end up having more problems with lumps and abscesses growing in the area. Surgery often makes the disease worse, which leads to a process of the doctors having to cut chunk after chunk out of the breast. If her doctors have already been able to rule out cancer by doing the needle biopsies, I don't think that an excisional biopsy is necessary. Your daughter needs to make her own decision by reading up on this disease, but I really think she should reconsider the biopsy, and perhaps get a second opinion before doing it. It sounds like you and your daughter both live close to some doctors who have seen this disease before...those would be a good place to start.