My daughter has Noonan Syndrome, she’s 23 now. You can ask me any questions.
It's such a hard thing to digest instantly but have a look into to it and see if you can find other mums with babies that have it. And it's ok to feel bad about it I found out my son would likely have Down syndrome I cried got angry and cried all over again. When I had him he was diagnosed with downs but I wouldn't change him for the world now. At first I was unsure how people would treat him. But he is my perfect little one who I love no matter what. Also have a look on YouTube for a girl with it she lives with her fiancé and she explains how it affects her I'm not to sure of her name I will have a look if you like xx
So sorry for the news you received today! :(
Have you been given any leads on specialists that you can talk to for more information?
It's always the hardest to navigate news like this at first, as you start gathering information and figuring out who to talk to, you will be able to digest it a little bit better.