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Down syndrome Group

This group is for anyone and everyone who is interested in Down syndrome. Perhaps you have a child with Down syndrome, or family member. We all have questions and sometimes the best resources are each other. Hopefully this group can help if you are struggling with a diagnosis either prenatally or after birth. This group was created with the hopes of educating and helping those who want to know about Down syndrome. If however, you are struggling with a decision regarding termination, please know that the people who are here, are here because they have either chosen or accepted Down syndrome in their lives. Whatever your questions, stories or concerns hopefully we can help.

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1227139_tn?1367231533
Welcome everyone! If you are new here, please introduce yourself and tell us a bit about why you are here. Post any questions you have about Down syndrome. If I can help answer a question you may have that you do not wish to post, ple...
Dragon1973 | Last answer
1227139_tn?1367231533
Hi everyone, I thought I would post some great references for Ds that helped me, and my DH when we were learning about Ds. I tried to limit my references to PDF's that you can save or print out. I am not too sure if I am violating b...
Dragon1973 | Posted
Avatar_universal
Anyone have any comments on what it might be or experience same thing? Im going crazy not knowing!!
ss1212 | Posted
Avatar_universal
I have a baby with down sydrome im 18 years old and hes 7 weeks old, hes due for a heart operation when hes 3 months old, im really worried about this operation and it feels like i cant talk to anyone about it i was just wondering if any...
Avatar_universal
he just dont want to he well fall down and if you take him to the bathroom he will just sit on the toltel. he will pull out his priviate part out.and we well fined wet spots hear and ther what cand i do
deshegirl | Posted
1465162_tn?1295378462
Im 11wks 3dys prego Dr. advised my fetus tested positive for downsyndrome from my blood test, meeting w/specialist next Wed 3/9. Any one results come P but baby delivered normal & healthy? How positive are results at this point? Parents/...
Crystalgodess | Last answer
Avatar_universal
Hi-my sister, who has Down syndrome, is 29 years old and over the last couple of years she has started to develop, what now I believe are tics. We used to think she would just pick up behaviors and copy them continously until she found a...
bigsis2010 | Last answer
Avatar_universal
well i think you all know macy entered this world on friday may 14th just a bit early. she is perfect but having issues with feeding. i know it can be normal, but i want her to eat on her own (without use of her feeding tube) so she ca...
pertykitty | Last answer
1227139_tn?1367231533
Hello Everyone, Since I have seen this issue pop up from time to time, and somewhat often - I thought it would be a good idea and necessary to post this. I hope that it will help if it applies directly or indirectly to you. (To an...
Dragon1973 | Posted
1227139_tn?1367231533
For those of you who didn't see this in the Regular Ds community, There is a brand new Amusement Park for children with Special Needs! Located in Antonio Texas, USA. Check out the link: http://www.morganswonderland.com/index.html ...
Dragon1973 | Posted
Avatar_universal
i feel i need to share a few things, and since i dont have any friends or family in my shoes i will talk to my cyber friends that have been there done that. im getting closer to my due date. im 31w3d now (ya i have to add the days ...
pertykitty | Last answer
Avatar_universal
did you ladies have a private room after your baby was born? i asked my dr and he smiled and said they would do their best. i had a private room with my first and it was so much easier to work on breastfeeding and such. plus the poor ...
pertykitty | Last answer
1227139_tn?1367231533
I don't know if any of you have this struggle, but I seem to have it more now then ever in my life. "Retard/Retarded". Since Hunter was born and I became an advocate for Down syndrome it really has become one of my new struggles trying...
Dragon1973 | Last answer
Avatar_universal
Im new here adn I don't know what to do I'm on the school computers adn looking for answers for my report HEPLP PLZ!!
Mckenzie110 | Last answer
Avatar_universal
Is there a cure for down syndrome?Can they have normal lives..normal children who wouldn't have the same disibilities in their chromosomes?When was down syndrome discovered and by who?How did it get the name "down syndrome"?How do people...
Mckenzie110 | Last answer
363110_tn?1340924019
Hi all, I thought I would introduce myself!My name is Cindie and have a wonderful 19 month old son named Tyler or TJ. for short. I also have an ALMOST 4 month old named Mason who is a "typical" baby. let me start off by saying I love any...
martikadragoon | Last answer
Avatar_universal
Hello, I'm a grandmother of a 2 year old with downs syndrome. My daughter is the single mother of my grandson Camerin. She is really struggling with his outbursts. She gets frustrated easily and gives up pretty quickly when trying to w...
cpht | Last answer
1227139_tn?1367231533
Any of you out there trying to conceive another child after having a child with Down syndrome? What kinds of challenges are you facing? For us, our immediate challenge revolves around fertility issues. What are your thoughts on having...
Dragon1973 | Posted
1227139_tn?1367231533
Just wanted to let everyone know that March 21st every year (03-21) is World Down syndrome Awareness Day. This date was chosen specifically for Trisomy 21 because the Down syndrome genetic make up is a result of 3 copies of the 21st chr...
Dragon1973 | Last answer
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