Has anyone ever heard of or known anyone with loin pain hematuria syndrome? This is the hell I've been given, and I could be doomed to be in pain literally for the rest of my life. My doctors just DON'T UNDERSTAND. They all think I'm a seeker, when really, yes, I do take a good amount of perc, but it's because I really can't function with the pain I experience. I don't take it for fun, I take it because I hurt - ALL. THE. TIME. Moral of the story is, they keep cutting me off until I get seen again and without health insurance I can't keep making nephrology appointments that cost about a grand apiece; so I basically get to go through withdrawal every time I finish a bottle. This is my fourth time withdrawing and there's no end in sight; I don't have a next appointment because I'm broke, and my kidneys are back to hurting so badly I just want to scream. Does anyone have any success stories about something like this...I think I am going to end up on these pills forever, which is fine with me, if they'll keep doling them out, but I would rather hear about someone who had this disease and recovered somehow... :(
Yeas there is go for walks I take a walk every night before I go to bed it helps alot an just try an stay active as much as you can, also drink lots of water an eat soup and take hot shower or get into a hot tub. I'm 20 years young an injured my shoulder playing college soccer I have had 2 surgeries in the past 2 years. I take 10mg 6 times a day now they have me to 5mg with no tylanol 4 times a day, I get 120 a month an sometimes I run out 2 to 3 weeks early because I end up taking more than I should then I end up going threw withdrawls I mean people tell me I handle it better than eanybody they know, but I'm getting tired of feeling like **** everytime so now I have my grandma control my meds. so I don't have to threw hell. My consuler once told me " If your going threw hell just keep walking" meaning you'll get threw it and be a much better person and it builds your self confidince. I hope this helps you, I know I might be a lot younger an more head strong but at one point in time I wasn't so head strong, I was weak minded an letting pills destory my life. Good Luck
how many do you take a day, i weened down to 15mg 3x a day, first thing in the morning to when i couldn't wait no more to night time, then 2x a day morning and night then just morning .. im only 3 and a half days into taking none, it was horrible but it gets better and it roller coasters.. my best advice is ween down till ya last pill, make sure you have none left and tuff it out .. i am not sleeping and super depressed and constant chills but everyday is a little better than the last. i been takin these pills for over 10 years and didnt miss a day in the last year and a half until now.. you have to be determined, i know i will relapse eventually but my goal is to get clean now and see if i can deal with out them for a few weeks at the least, hopefully after a few weeks when the withdrawls are over i will stay off them, good luck to you
OMG!!! I haven"t been able to sleep for 6 nights now....I just went on this sight to read up and see if it is menopause or the lack of the pills...I read your whole letter...just wanted to say thank you because now I know that I am not the only person that is going through this....are you still off them? I HATE THIS TISH!!!!!!
Thanks again....
I am currently in day 4 of perc withdrawl and i honestly do not feel too bad. Ive spent the last three years jumping from perc to meth to suboxion( sp?) back to pills. I tried to just come off the subs but i was down for 8 days b4 i gave in and used something. But i had myself so terrified from the posts i read here about how bad they were but i went cold turkey from aprox 70-100mgs a day and had only 2 days of hell. Yesterday i started to feel better and today all most normal. just alot of muscle spasums so .....if u r reading previous posts, dont freak out too bad, everyone is different. If i knew it would only take two days to get over the worst of it i would have done this years ago
I've been taking percs 10/325 for about five years after my last back surgery for Shumans syndrome. I the past I have had all kinds of opiates scribed to me from vics to actiq feynal pops and the only thing that has helped me without a lot of problems Is morphine. Getting off the percs was not a problem with it and morphine for me is easier to come off of than methadone which is most doctors first choice. Now I do have a nine level fusion and a pro disc in my L5 S1 I probably won't stop taking the percs (6-8a day) for who knows how long but on days where my pain isn't bad enough to warrant the percs I just take the morphine. I have not had any percocet for seven days and the worst thing I came across was a sweaty night but I do live in LA and it's been hot lately and I do smoke pot to help me sleep and minor aches and pains. I did try to stop before with only the pot to help and it was the worst two days of my life and I hope I never go through it again.