What if my endo thought I had cushings and gave me 1mg dex and my cortisol came back 1mcg/dl. I have hashimotos and pcos. But the lastest thyroid panel showed a tsh of .499 it was just 7 six months ago. I'm still sick Alot and really tired my body aches it's so hard for me to do anything with out getting exhausted.
What if my endo thought I had cushings and gave me 1mg dex and my cortisol came back 1mcg/dl. I have hashimotos and pcos. But the lastest thyroid panel showed a tsh of .499 it was just 7 six months ago. I'm still sick Alot and really tired my body aches it's so hard for me to do anything with out getting exhausted.
Your doc gave you the dex suppression test. Technically you suppressed and to a silly doc, you failed, but to a good doctor, that should be a test of location, not exclusion - it more indicated a pituitary source (IF you have it) as no one test can rule Cushing's in or out - so your doc did you no favor.
You need more testing. That one alone is not enough and does not do enough - even the guidelines say do two or three different tests. The docs tend to do this one as they think it is easy (hah) but I failed ALL dex tests and my pathology shows I have it and know many people in my boat.
Get copies of all your testing - and find a decent doc.
mommabear0689
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I know this is an old thread. But I was curious how you are currently doing? You sounded like you are going through exactly what I am going through. My cortisol, dhea and other hormones keep coming up low but I stimulate normal on the acth stem test! I just became hypothyroid as well. my primary put me on HC and I FINALLY HAD MY LIFE BACK for the first time in years! but then...he upped the dose and my cortisol ended up too high and made me sick again (after about 2 months of being on it). I was so freaked out that I got off the steroids but then I just got sicker. My endo does not want to diagnose me with adrenal insufficiency bc I stimulate ok even though my hormone levels are too low. !!! I am going to get into a doctor who does work in bioidentical hormones and adrenals and see what he says. But I really need help and I would love to here how things turned out for you and if the HC is keeping you well. Thank you so much!
Sounds very similar to my life the last4years.acth test showed 20.1 and then 30 min later 20.2...what should that indicate? Have a previous tramatic past for years ..then twin pregnancy changed something in me...praise Jesus the trauma is over.now im trying to get my life back and be a mommy to my 7kiddos.
The doc may see it as a failure as you did not double but some docs have a magic number that you may have hit... You dropped so the doc should take that as a failure in my layman opinion.
I hope you get on replacement meds and feel better soon.