Hello, I've been dx'd with Addison's, but I really don't think they know what it is that I have...if, it is PAI or SAI? I've been to 3 different Endos and still not sure what it is that I have.
The first Endo found that my Cortisol was 1 and my ACTH was 2.7 and that was the initial testing, but they did repeat the tests and did an ACTH stem test and cortisol on Am/Pm. Still...my tests were low and they dx'd me with Addison's disease. I think...still not sure what the proper name is and that is bad. So, still looking for a GOOD Endo. :/
The second Endo that I saw...said that I was SAI. But...he just went over the last Endo's blood work. :o I just came right out and asked him what it was that I had, but he didn't do any kind of blood work or anything...to confirm it. So...not going back to him. He must not know what he is doing. I am so confused and just want to know what it is that I have.
Also, I have been dx'd with Lyme disease from Igenex. I know that IT can mimic anything and wonder, if IT isn't doing all the catastrophic mess in my body and messing with my adrenals or pituitary.
I feel that the Lyme has either infiltrated my Adrenals or Pituitary and causing ALL of this to show up. Couldn't that be a possibility? I know that Lyme can go anywhere and do anything that it wants to us. My LYME has NEVER been treated with Antibiotics. Heck, the NL couldn't even find it...but, I got IT bad!!! Also, I have candida and never took antibiotics...WHAT IS UP WITH THAT??
Well, they found the Addison's first in May of '12 and the Lyme Nov. '13.
The first Doc(Endo) even brought up the possibility of me having Cushing's disease. How? Now, I'm really confused. :o
What is so bad is...that I have so many other problems that I can barely walk. I was recently put in the Hospital and tests run to find out what was really wrong. The reason that I was put in was because my Primary had passed away and he was a D.O. that had treated me for my pain, for 7 yrs.. When, he passed...I was stuck seeing his partner and he, the first month took my breakthrough meds and cut them in half. The pain was already bad and barely being covered. The D.O. was prescribing the Norco 10/325 mg. but he put me on 5/325 mg and my pain level was awful and didn't realize how much the 10's were helping that breakthrough pain.
Then the next month, when it was time to fill my Fentanyl patch...just wouldn't fill it. He prescribed something called Flector and my husband asked the pharmacist how they compared and he said that they didn't compare at all and that we would be wasting our money, if we got them. I was so angry and in so much pain. I DIDN'T understand why he would do that and especially, after just getting a NEW dx's of Cauda Equina Syndrome and Sciatica the week before by the tests, in the Hospital. :o But, he didn't care if I was in pain or not!! Just wrong!!! >:o
I had to go to another Doc, in town and he gave me the prescription of the Fentanyl patch...Thank GOD or I would have been in pain and having to go through withdrawals. HOW CRUDE AND RUDE of a so called Doc, to do that to a person who is suffering. I wish he could have felt my pain...then, he wouldn't have done that.
Quick question...can Lyme cause Cauda equina? I think that I've read somewhere...where it can. So, IF I get the Lyme under control...you think that the CES will get better? Or...should I go see a NL or NS? I don't want to lose my legs and already have urinary incontinence BAD and have had two mishaps with bowel incontinence. IS it the Lyme doing that..or the CES?
My question and problem to you is mostly about the prednisone right now. Since, he also gave me a prescription of Prednisone and to stop taking my Hyrdocortisone. WHAT??? When, I asked the pharmacist how that I was going to do that with ADDISON'S?? She said that it would only be a month. A MONTH WITHOUT MY HYDROCORTISONE!?!?! With Addison's...I didn't think that you were suppose to EVER NOT take it. Am I right? Are these people quacks??? I know that I don't EVER suppose to stop taking it...or I could have an adsonian crisis!!
Thanks for any response...just need to know what to be doing RIGHT. :)
God Bless all... ^_^