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Extreme sacroiliac and coccyx pain.
by flutter7, Mar 12, 2009 08:00AM
I am a 25yr old female and I have suffered from pain in both my sacroiliac joints for the past 5 years. In the most recent 2 years this pain has spread into my coccyx. I have clicking going all the way up my spine, occurring mostly when I move from a sitting to standing position, and when rolling over in bed. I also suffer from other symptoms such as ankle and knee swelling, which when occurs, makes it impossible to walk. Originally I was being treated by a sports medicine doctor for Sacroiliac joint dysfunction. My treatments had consisted of weekly physiotherapy, Pilates, stretching and core strengthening exercises and corticosteroid injections into both sacroiliac joints and my coccyx. I had also trialled numerous NSAIDs.
Nine months ago I had blood tests and a bone scan. I tested positive for the HLA B27 gene and a bone scan which revealed reuptake into my ankles and sacroiliac joints. I was given the diagnosis of seronegative spondyloarthropathy and sent to a rheumatologist. I do not have the typical early morning stiffness; in fact I notice more stiffness as the day progresses. After trialling even more NSAIDs, I was switched to a DMARD (sulfasalazine) with my dose increased to 3mg and I have been on this for the past 6 months. I have received no improvement in my symptoms from any of these drugs and am living in constant pain. I have been tried several analgesic medications (paracetamol, codeine, tramadol, oxycodone) none of which have touched the pain in my sacroiliac joints, so I have not bothered to continue taking any of them. I do not understand why none of these medications, especially the oxycodone, has not touched the pain. The pain I experience in my sacroiliac joints consists of sharp clicking, stabbing and crunching-it literally feels as if bones are crushing up against one another). My coccyx also causes the same level of pain, but it also feels like it is trying to push out of my skin, causing a deep pushing pressure feeling, it’s very weird. My physiotherapist says there is not proper movement happening in my sacroiliac joints, whatever is suppose to happen, mine is doing something completely different.
I am sure that this is more of a mechanical problem and my sports medicine doctor agrees. I am not too sure where I can go from here. Is there any further types of scans I could have done (I have already had a bone scan) which would reveal what is causing this pain. I am finding it near impossible to sit for long periods, and even walk on some days. Any thoughts or suggestions would be greatly appreciated.
Thankyou.
Nine months ago I had blood tests and a bone scan. I tested positive for the HLA B27 gene and a bone scan which revealed reuptake into my ankles and sacroiliac joints. I was given the diagnosis of seronegative spondyloarthropathy and sent to a rheumatologist. I do not have the typical early morning stiffness; in fact I notice more stiffness as the day progresses. After trialling even more NSAIDs, I was switched to a DMARD (sulfasalazine) with my dose increased to 3mg and I have been on this for the past 6 months. I have received no improvement in my symptoms from any of these drugs and am living in constant pain. I have been tried several analgesic medications (paracetamol, codeine, tramadol, oxycodone) none of which have touched the pain in my sacroiliac joints, so I have not bothered to continue taking any of them. I do not understand why none of these medications, especially the oxycodone, has not touched the pain. The pain I experience in my sacroiliac joints consists of sharp clicking, stabbing and crunching-it literally feels as if bones are crushing up against one another). My coccyx also causes the same level of pain, but it also feels like it is trying to push out of my skin, causing a deep pushing pressure feeling, it’s very weird. My physiotherapist says there is not proper movement happening in my sacroiliac joints, whatever is suppose to happen, mine is doing something completely different.
I am sure that this is more of a mechanical problem and my sports medicine doctor agrees. I am not too sure where I can go from here. Is there any further types of scans I could have done (I have already had a bone scan) which would reveal what is causing this pain. I am finding it near impossible to sit for long periods, and even walk on some days. Any thoughts or suggestions would be greatly appreciated.
Thankyou.
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