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900697 tn?1246542502
lower back and hip pain
can RA start in your lower back and hips before it can be seen in your hands and feet??
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469901 tn?1276567223
There are over 100 different types of arthritis and some affect certain areas more often than others.  What has led you to look at RA as a possible cause of your back pain?  What other symptoms do you have?  Have you had blood work?
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900697 tn?1246542502
yes i have had blood work done and all comes back wiyh a very high positive for RA
I have swelling and tenderness in many joints such as my wrists ,hands ankles. I hurt when the weather is going to change suchn as thunderstorms and such.Had x-rays done of hands and feet.What would the next step be?? A MRI or C-SCAN to really see what is goimg on. All i know is this is very painful and i need to get some relief from somewhere. appreciate very much you input and suggestions.
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469901 tn?1276567223
When I was being tested, nothing showed up in my x-rays.  I had a bone and joint scan, though, which is an MRI with contrast to show inflammation, and I lit up like Christmas.  This removed any doubt about what was going on.  
When is your next doctor appointment?  Do you like your doc?  Keep on asking him/her what the next step is after each test/result.  This will help keep the momentum on your diagnosis process.
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900697 tn?1246542502
my next apppt is tomorrow 5-15-09 hope to get some good news. will let you know what happens after my appt. again thanks so much for the info
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469901 tn?1276567223
I am glad the appt is so soon!  If you read this before you go, be sure to take paper and pen.  The doctor should not mind you taking notes and it will help you remember what is said.  My doc loves it when I walk in with mine plus I take an inventory of changes (positive and negative) and any questions I have not been able to answer through research.  Good luck and write back soon!
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900697 tn?1246542502
Appt didnt go well. Said I have RA but is untreatable, didnt offer mri or anything.Blamems all my pain on my frybromyalgia witch I think is ****. the only problem i have is i cant find another rhuemy that takes my insurance.There is something going on and cant get a straight answer.Basically he told me all my pain is from my fybro and I need to loose weight and exercise more.That is hard for me because I have other problems too,such as COPD witch makes exercising very difficult as far as breathing much less all the pain Im in. What should I do- Im open for suggestions. Dont really know where to go from here.

Thanks again for all you help and support!!
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469901 tn?1276567223
Fibromyalgia is a sore spot for me.  (ok, that came out funny but you know what I mean.)  Fibro is real, but when your other condition is treated the fibro pain disappears.  
Can you get to Jacksonville to see a doctor on your insurance?  It may seem far, but if you find a good doctor, it is worth the trip.  A large number of my rheumy's patients actually come from out of state to see him.  (I considered that to bode well.)
If you cannot, I would ask the current doctor about the medications being used to treat RA.  At least some relafen, priolsec (to protect your stomach) and plaquenil.
Never mind, methotrexate, humira, enbrel and remicade.  Even if he thought it was just back pain and not RA, an antiinflammatory, muscle relaxer and something for the pain are fairly standard treatments.
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900697 tn?1246542502
I have medicaid and it is very hard to find a specialist to take it. My primary care dr is getting frusterated with this situation as well. This is not her field and feels like the dr she sent me to is just brushing me off because im not a cash paying patient. Medicaid doesnt pay him enough I guess.But in the mean time I sit and suffer Its NOT FAIR!!!! They should care about thier patients no matter what! The money shouldnt matter but I guess it takes all kinds to make the world go round.Maybe my primary dr can figure something out I HOPE for my sake that is.Can she order the bone and joint scan? I have an appt with her at the end of the month.I tried talking to this man being nice but in the end I just lost it and let him have it, left out cring was so upset.I dont see how he keeps his patience talking down to them that way. sorry Im rambling on.Got get it out somehow i guess,And you have been so helpful.If you only knew how much i appreciate your help!!!!! Thanks Again
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900697 tn?1246542502
Can my primary Dr order this bone and joint scan just to see what is going on or does a specialist have to order it?Would appreciate you input! Go back to primary Dr on the 27th and would like to be able to ask her if possible. thanks so much for you help dont really know where to go from here!!!
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469901 tn?1276567223
I believe your primary doc can order it, but I am not sure if that will impact whether or not insurance will cover it.  Might want to give them a call and investigate that.  If the rheumy is not working out, what about seeing an internist?
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900697 tn?1246542502
Thanks , I will talk to my primary DR about that. Will let you know what happens.
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900697 tn?1246542502
sorry so long before talking to you but I had the scan done and i go to DR tomorrow to find out the results!!!!!!!!! hope this is the answer I was looking for
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483733 tn?1326802046
Am I missing something?  The Rheumy said you have RA and isn't treating you for it?  
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900697 tn?1246542502
yes my numbers for the special antibody blood test were off the charts! he said he would never re-check me because i dont have the disfiguring off the hands and feet which is rediculous. That is why Im waiting for the results of the bone and joint scan to confirm what he doesnt want to treat!
Thanks for concern and pray the results come out in my favor, been suffering too long!
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469901 tn?1276567223
I am so glad to read you were able to pursue this further.  I hope the results are conclusive - one way or the other.  At the very least, I hope you find out which direction you'll be going in next.  Fingers are crossed!
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900697 tn?1246542502
YEAH found out i have RA and astioarthritis in my hips,knees ,and ankles. Thanks for allyour support and suggestions i never woild have figured it out on my own. Plus got new med for my frybro, hope allthis works and life can get back to some kind of normal anyway.
THANKS AGAIN SO MUCH!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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469901 tn?1276567223
YEAH!!!!!!!!!!!  LOL, isn't it amazing how happy we get when we find out the name of our nemesis?  There is nothing like getting a diagnosis and knowing there is something they can do to make you feel better!  I am so glad this worked out for you and thrilled that you kept us posted, too.  Please keep on posting and letting us know how you are doing.  There is still a road to travel in getting the medications right, but more on that later.  We must celebrate the victories as they come so enjoy this one.
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900697 tn?1246542502
Yes I AM EJOYING IT TO THE UTMOST AT THIS PIONT AND TIME!!!!!!! HOPE WE CAN GET THIS SHOW ON THE ROAD NOW.THANKS AGAIN AND I WILL KEEP YOU POSTED ON THE PROGRESS!!
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900697 tn?1246542502
DR put me on new med for my fybro its called sevella dont know if its working yet!! Cant really tell the difference at all!
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469901 tn?1276567223
Have not heard of that med, you are the first to mention being put on it.  Anxious to hear your reviews.  It will probably take a bit.  It seems most of these drugs have to build up in your system before you see results, but maybe this one will be faster acting :)  Keep us posted!
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900697 tn?1246542502
I dont see any difference with this new med!!!!!!!  maybe it will take longer than two weeks to know . hoping for good outcome!!!
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469901 tn?1276567223
From what I read, this medication is similar to Cymbalta and Lyrica.  I know Cymbalta takes a month or more to build up in your system.  Based on this information, I think it is also a medication that you cannot just quit, you have to gradually step down.  With Cymbalta they recommend stepping down over the course of several weeks, but it has been my experience that it is better to step down over the course of months.  
I think I would talk to the doctor and get some more info on this med and the duration you have to wait to measure results.  Hang in there!
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900697 tn?1246542502
Thanks im going to ask her this month when i go see her
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900697 tn?1246542502
sorry havent written in a while doctor still  has noooooo! clue except for the fybro.still on lyrica and lortab for the pain.think i maybe getting to use to the lortab,not work as efficently as they use to. go back to her on monday may we can figure something out!!! atleast i hope so!!!
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469901 tn?1276567223
Great to hear from you again, but sorry to read that the meds aren't helping as much as they did.  Do they have you on plaquenil for the RA?  That is usually the starting med.  It takes several months to determine if it is helping or not.  If not plaquenil, what are you taking for the RA?
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900697 tn?1246542502
no not on anything for the RA dont understand why not!!! will find out from DR tomorrow though!1
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469901 tn?1276567223
Good deal.  I will look forward to hearing what you found out.
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