so the tumor wasnt the cause of the problems?
I have a Pituitary macroadenoma, and its 16cm. It was found because of the terrible headaches I had which were postural, like when I laid down the pain disipated but when sitting up it throbbed. Like a Spinal Headache. After many surgeons, neurologists endocrinologist, I finally found one that looked at my MRI and saw something that the others didn't. My Cerebral Spinal Fluid Level was low. (low level CSF) and sent me to have a blood patch done that same day. 1 week later my headaches were gone. I still have the tumor, but get yearly MRI's. I too was mad and wanted it out, but once the pain went away I was calmer, and I see now that it hasn't grown over the past few years. I also weaned myself off Paxil. I believe antidepressants increase the chance of Pituitary Tumors. (but that's my own belief). I also had fainting, vertigo, sinus pain at the time all this was happening. Couldn't drive much cause the "attack" would make it impossible to see the road.
sorry for the typing errors.
trust me audra is ympothize with you heavily. its just hilarious that at 19, i ddiagnosed myself with this stuff, and that 3 genius specialtists keep telling me im nuts. i mean i thought neurosurgeons were freakings geniuses?
its really sad. its al l about the money.
i am telling them how big my cyst is, where its located, what symptoms i have and how long i've had them for. if anyone of them says it might even be causing my symptoms than i'll get my referral for them.
i talked to my neurosurgeons nurse today who than confirmed that the doc was leaving it in and that theres no chance my symptoms are related. i feel than why go see him at all.
i don't want this thing to consume my life. i have 4 small kids to worry about. i just think the surgeon should really listen to the patient first and than use his training to deciode, not the other way around. we know our bodies best of all and i know for a fact that my issues started 6 months ago and now i know why. i have a big brain cyst.
what are you asking when you clal lthem? i might do that. in all reality the surgeon is what counts. when i went to the surgeon he saidd ''the doctor may have felt this was symptomatic but i wont operate'' unfortunately for me tthe doctor didnt even think it was, so i insisted on seeing the surgeon.
in your case your neurologist sounded good. she got you an urgent appointment also.