Chiari Malformation Community
2 month pain
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

2 month pain

I had decompression surgery 2 years ago for chiari malformation.
I have had a horrible headache for 2 weeks now. I have had ct scans and blood work done and it comes up fine. They keep trying these other medications on me nothing works. Sometimes dilaudid doesnt even get rid of the headache. I am seeing a new neurologist wednesday and I want him to hear me! What do you do when you get such a bad chiari headache morphine doesnt even help?
2 Comments Post a Comment
Blank
620923_tn?1393294254

  Hi..U will want  to join the Chiari forum here on MedHelp-http://www.medhelp.org/forums/Chiari-Malformation/show/257?controller=forums&action=show&id=257&camp=msc

Are u sure ur HA's r all Chiari could u have a related issue like cerviocranial instability, retroflexed odontoid, Ehlers-danlos?

Ur first PFD did u have a duraplasty and laminectomy? R u sure u do not have a CSF obstruction due to scar tissue?

Have u tried a true Chiari specialist?
Blank
Avatar_f_tn
I also wonder about your neck--50% of the time there is compression in the neck, as well as in the skull.  I had that surgery first.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Chiari Malformation Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
620923_tn?1393294254
Blank
selmaS
Allentown, PA
1891806_tn?1391122637
Blank
hevnw8s
Peoria, AZ
Avatar_f_tn
Blank
girlinxile
Columbus, OH
4816750_tn?1368808270
Blank
frankie_rush
New Tazewell, TN
Avatar_f_tn
Blank
mikeysmom1995
Oxford, MI
992677_tn?1337358095
Blank
ChiariWolf
OH