Aa
Aa
A
A
A
Close
Avatar universal

2 month pain

I had decompression surgery 2 years ago for chiari malformation.
I have had a horrible headache for 2 weeks now. I have had ct scans and blood work done and it comes up fine. They keep trying these other medications on me nothing works. Sometimes dilaudid doesnt even get rid of the headache. I am seeing a new neurologist wednesday and I want him to hear me! What do you do when you get such a bad chiari headache morphine doesnt even help?
2 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I also wonder about your neck--50% of the time there is compression in the neck, as well as in the skull.  I had that surgery first.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi..U will want  to join the Chiari forum here on MedHelp-http://www.medhelp.org/forums/Chiari-Malformation/show/257?controller=forums&action=show&id=257&camp=msc

Are u sure ur HA's r all Chiari could u have a related issue like cerviocranial instability, retroflexed odontoid, Ehlers-danlos?

Ur first PFD did u have a duraplasty and laminectomy? R u sure u do not have a CSF obstruction due to scar tissue?

Have u tried a true Chiari specialist?
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease