Hello to All,
ITs been a while, been very busy mostly sick.
Just an update and what you guys think.
The first MRI, findings were borderline low lying tonsils.The second MRI showered a 4mm cerebelllar tonsillar ectopia ,with Expected overcrowding . but no visible compression of the blood vessels at the base of the skull. ( not sure what that means???)
Question: Should I ask for any other Diagnostics test. How much difference will a stand up MRI make. I have been reading and the herniation size is just a part to a whole. I have read that 5mm is the staNDARD. So does it mean that my 4mm herniation , is not considered CHiari 1?
None of the previous findings froim the last MRI were even mentioned.in the was even mentioned at all. Likely not important.
I see the Neurologist Thursday, has been scheduled for 2 months, and its finally here. Yeah I know 2 months is crazy. I dont even know if this neuro( second opinion) , 2nd visit ever with a Neurologist. Just very scared he will dismiss it , just as the previous neurologist. And it willl all be a a waste of time.
Hi....I get so frustrated by the way so many Drs determine if WE have Chiari...chiari is the malformation of the skull not the herniation, that is a result of chiari....and it is so frustrating to hear people ask this question.
Ur question is r u a surgical candidate and do u need further eval.....
The expected overcrowding may refer to a retroflexed odontoid, so I would suggest sending ur copies of ur MRI's to a chiari specialist as they will know what to do.....this issue is far more important then the length of ur herniation.
At this point u should be seeing neuro surgeons that r well experienced with chiari not neurologists as they dx, u have a dx now u need to know who can do what for u......
I feel scared, because of how sick I feel sometimes, and alone and AFRAID
of the unknown. Yes I am working on finding a CHiar specialist, I think I have not alot but, enough knowledge, in that at the least I have to be my own advocate.
I have gathered a list and will start contacting specialist. I know they are other that have far worse, and I pray each and everyone of you . And that my situation maybe peanuts in comparison. But I know in my heart there is something wrong and will kill me , if I dont kill it first. Im sorry that was alot, sorry... MY soul is in pain too...
I felt alone too, until I found this forum....know u r not alone as long as u come here : )
And to be afraid of the unknown is normal, we r all afraid and this is y it is so important to educate urself as much as u can, if not to help u find the right Dr, but to also help u understand what they r talking about.
Never apologize for saying how u feel, that is y this forum is here, we all understand and have been where u r and felt the same.....when I first came I felt my issues were nothing like what some of the others deal with, we should not be comparing our symptoms to others , but how we feel and how it has changed.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.