Chiari Malformation Community
CHIARI DRS LIST ~~~~CANADA
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CHIARI DRS LIST ~~~~CANADA

Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists, but found their names listed on another chiari site.Please RESEARCH all drs and do not take this list as a reference.
Let us know if u saw ne of these drs and what  thought.


CANADA

Dr. Rudolph Arts
Neurologist
Barrie, Ontario
(ph) 705.721.1060

Dr. Paul Muller
Chief of Neurosurgery
St. Michael's Hospital
Toronto, Ontario
(ph) 416.864.5590

Dr Hurlbert
Neurosurgeon
Foothills Hospital
Calgary, AB, Canada

Dr. Rutka
Neurosurgeon
Sick Children's Hospital
Toronto, Ontario

Dr. Ramesh Sahjpaul
Neurological Sciences
339 Windermere Road,
London, Ontario N6A 5A5
(ph) 519.663.3706
(fax) 519.663.3753
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56 Comments Post a Comment
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Hi

I guess I should add mine to this thread too:

Dr. Richard Reid
605 Discovery St.
Victoria, BC
25-383-3638

A really great person and an excellent surgeon, comes highly recommended!! I don't think he is considered a "chiari" specialist but he had a really good knowledge of Chiari and what effects it can cause...in my case he was also the one who dx'd it.

Carolyn
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by 4_mama, 3 minutes ago
[delete]
This is the neurosurgeon who completed my husband's decompression surgery May/10 in Ontario, Canada.

Dr Ronald Pokrupa
Areas of Clinical Interest:
Neurosurgery, Chiari Malformation and Syringomyelia, CNS Neoplasia, Cervical Spine Surgery

Contact Information:
Department of Surgery
Kingston General Hospital, Victory 3-361
Kingston, ON K7L 2V7
Tel: 613.549.6666 x. 6282
Fax: 613.548.1346
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Dr Fred Gentili
Telephone: (416) 603-5250
Address: 399 Bathurst Street,
Toronto ON, Canada
M5T 2S8

Dr. R. Loch Macdonald
Phone: 416-864-5452
Fax: 416-864-5634
E-mail: ***@****
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620923_tn?1405964489
Thanks for the add on of names...soon this list will be as large as the US one : )
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Doctor Iftikhar Ul Haq

Address:
Thunder Bay Health Sciences Centre
Division of Neurosurgery
980 Oliver Road Room 1020
Thunder Bay
Ontario
P7B 6V4

Phone: (807) 684-6722
Fax: (807) 684-5811
Gender: Male
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Hi, I'm going in Monday for my Surgery (so hopefully he's good! -LOL)

Dr. Richard Perrin
St. Michael's Hospital
Toronto, Ontario
(ph) 416.864.5503
Neurosurgeon
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Good luck!  I know another person who had their decompression surgery at St. Michaels, I hope everything goes well!  Please let us know how everything goes,
jessbee82
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bumping up for new members
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Bumping up for new members and whoever might have a specialist to add to the list!

Carolyn
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I just had my surgery March 27 2010.
Dr Shamisa who is the top neurologist and also works out of Hotel Dieu hospital in Windsor Ontario preformed my surgery. He is very compassionate & caring individual who takes his time and explains things thouroghly to you and your family. He is great and I would recommend him to anybody!

Neurosurgical Associates
1106 Ouellette Ave # 205
Windsor, Ontario, N9A-1C9
Canada
Phone: 519 973-8771  Abdalla Shamisa
  
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http://www.ratemds.com/doctor-ratings/105827/Dr-A.-Shamisa-Windsor-ON.html
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1179332_tn?1297482590
Thanks so much for adding that to our list! There is such a need for NS experienced in Chiari in Canada!
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Are there any in Eastern Canada?
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Hello,

I think most of the Canadian members here are from back East (except myself). Hopefully, this will bump this post to the top and they will see it!!

Stormy
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Is there a Chiari specialist in the maritime provinces: New-Brunswick or Nova-Scotia?
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620923_tn?1405964489

  Hi there may well be, but our list is only of the drs that the members have been to and liked....this is not a referral, but a means to help u get started with ur research of Drs.

  I have found soooooooooo many lists of Drs online only to find that  the Dr is retired , or is not a chiari specialist.By creating our own list we know these Drs  treat chiari....and we do try to update it when we hear of a Dr that retires.
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I just wanted to add a name of the neurologist I saw today, who was totally amazing, and actually officially diagnosed me with symptomatic Chiari Type 1.  He was totally knowledgeable about Chiari (he actually brought it up before I did) and reviewed my MRIs, confirming that I have definite crowding at the foramen magnum, and most importantly finding a 2mm syrinx at the C2 level that two other neurologists and various hospital staff had managed to miss, even though it's definitely visible on all three of my MRIs!  He also sent in a referral for me to see a neurosurgeon today, too.  Amazing doctor, can't recommend him enough!

Dr Zahir Dhalla
Neurologist
1 Centrepointe Dr  (#301)
Ottawa, ON
K2G 6E2
(613) 225-2131
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620923_tn?1405964489

  Thanks for adding this name, I am sure fellow Canadians will also appreciate u sharing this info : )
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Yeah, I figured it could help out a bit; info for any neuros in Ottawa is basically impossible to come by, so hopefully if someone out there is stumbling around looking for a neuro in Ottawa that knows his stuff and doesn't have to google Chiari, they'll at least have a lead. :)
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I guess I'll add mine, too...

Dr. Mark Hamilton
Department of Neurology
Foothills Medical Center &
Alberta Children's Hospital
Calgary, Alberta
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620923_tn?1405964489

  Thanks for adding to this list....the more names, the more choices for future members looking for help...thanks again for sharing : )
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mdavid...can you tell me about him, in a PM or something...I'm trying to get into him right now!
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Hi,  
I just wanted to inform you that Dr. Ramesh Sajhpaul is now in North Vancouver BC.  He is the neurosurgeon who I was sent to.  I am due to go back and see him again in a couple of months.  He was informative ( I now know more about my condition than I have in over ten years).  
The address is:
Dr. Ramesh Sajhpaul
#405 - 125E 13th Street
North Vancouver, BC   V7L 2L3
(604) 904 - 7467
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Just had the Chiari decompression surgery with duraplasty. Done at the Calgary Foothills Hospital,  by Dr Jacobs Bradley. Surgery was on a Friday, I wanted to leave Saturday but he said to wait one more day, which I did & left Sunday.  Kicked back at home for a few weeks & all is good. Had a sryinx between my neck and shoulder blades which made my whole back hurt, needed heating pad for hours aday, as far as I know all pain has gone not sure about pressure head aches, because I have not done any physical activity yet.        Darrrich

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620923_tn?1405964489

  Hi and welcome to the Chiari forum.

May I caution u to do too much, as it is typical to feel so much better directly post op, but as u begin the healing process u may experience some of ur symptoms resurface...this is common and normal.

Just do not count ur chicks b4 all the eggs hatch, if u know what I mean...take it slow, do not over do it, and give ur body time to heal even if u feel better then b4 surgery, other wise u may suffer a set back.

Glad to have u join us, sorry for the reason that brings u....
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Thanks I should have joined sooner, lol.
Did have a slight set back three days after surgery, by doing too much. NOT the doctors fault, but MINE.  Spinal fluid started to leak from the patch inside. Two days of not doing anything stopped the pain. Lesson learnt. Kicked back for a few weeks now. Surgery was May 4th, 2012. Just a note, I found,  opening the blinds and getting off the couch is just as hard as the surgery.  Oh & getting off pain meds that I'd been on for 6 years. Not sure if this is alot to other people with my condition but all i 'm taking now is 10mg morph at 9am & same at 7pm.  Will cut that back to 5mg for a week then hopefully zero a week after that.
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620923_tn?1405964489

  Sounds like u r on target for the pain meds...and it is sooooo easy to over do it bcuz we have pain meds in us we do not feel all that may be affected by what we do, once u do stop all meds is when u may feel things, so go slow, and allow urself to heal.

I am 3 yrs post op as of yesterday, and I am still seeing improvements, compared to last yr....it is amazing how we continue to heal and grow stronger...mind u, I do not do much as I listen to my body and mine screams at me as I do have other related issues too...but I feel soooo much better.

Continue to kick back : )
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Whats strange is, I feel good for couple days, each day I do a little more. Then for two days i can barely move because i'm sooo tired. Any who just wanted to hi and thank you for your info. You are very busy with this website & I'm sure everyone thanks you & love's you for being so.
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620923_tn?1405964489

  Well that is common as chiari symptoms do cycle so it may be that as u r healing u r still in the cycle mode.

It may be that way for a while...u learn to gauge what u can do and what u have to do and how to reserve ur energy to be able to do what is needed and u can rest up to do what u want...and save days to rest up  after....

Just know it will get better : )
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hey there,

i just had my surgery early november, and already i'm feeling pretty fab, even if recovery is still a huge pain...  :)

i had Dr Amin Kassam at the Ottawa Hospital - Civic Campus on Carling Avenue.  he's a super nice guy, and an amazing surgeon.  very busy but well worth the wait!
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  Thanks for the update on urself and the info on this Dr...I hope u r able to add more info on ur recovery.
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my pleasure!  i've actually created a facebook page to centralize everything (lots of friends and family were asking, so this made it simpler for me) and i mentioned this on my profile page on here - should i put it up anywhere else, you think?  i also added some pics on my profile here, my scar's healing super fast!  :)
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Not necessary, but u could copy and paste some of that info in a journal here....I saw ur pics and ur scar is looking great !!

Or u can add links to ur FB page under ur pics.....
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awesome, thanks!
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620923_tn?1405964489

  BUMP
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  BUMP
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Re: Dr. Fred Gentilli

I was referred to him but didn't feel he took my symptoms seriously or was of great help. Did you feel otherwise?

Following that I requested:

Dr. Julian Spears
Julian Spears, MD, SM, FRCSC, FACS
Tel: 416 864-5667
Fax: 416 864-5644
Email: ***@****

I felt better with him as he took more time to speak with me and was concerned about my quality of life.
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just an update

Dr Paul Muller in toronto st. michael"s hospital is retired.
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  Thanks for the update : )
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My neurologist is

Dr Rabinovitch
1 Centrepointe Dr   Suite 406
Ottawa, ON K2G 6E2

(613) 228-4298

I would recommend Dr Kassam as well. I have met most of the surgeons in Ottawa and he is one of the top! (if not at the top!)
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Hey Everyone,

http://www.uhnresearch.ca/researchers/profile.php?lookup=5950

Dr. Tator at the Toronto Western Hospital only does consults but I am sure if surgery is warranted that someone else took over.  His consult is worth every minute of your time.  He knows the protocol and will issue further testing if needed (I'd know as the Oakville hospital sent me home with a low dose of tricyclic a/ds which I of course did not take, instead of a spinal MRI to follow up on my 12mm herniation).

Dr. Tator's Contact #:
416-603-5889
His receptionist's name is Maria and she's very proactive and pleasant.

Good luck...





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  Hi thanks for the info.

How are u doing?
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Hi,
I am new to this site.  I had a MRI years ago, and my family doctor at the time didn't take my symptoms seriously.  My symptoms are worse now, have a new doctor due to the sudden passing of my former family doctor.
Whats the best way to get my family doctor to refer me to a neurologist that specializes in Arnold Chiari?
I live in South Western Ontario, so the London area would be the best location for me.
Also, what is the most popular pain relief medication that people find work best for them?
Thanks for your input.

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620923_tn?1405964489

Hi and welcome to the Chiari forum.

I can't help u with Drs in the area u r looking for, but I can tell u that u may have to travel out of ur local area to find a Dr well experienced with Chiari....this above list is compiled by members of Drs they went to and liked so it is not a complete list, u can use this to research Drs, mayb one of these Drs knows of one in ur area.

As for meds, for myself and many of the members no med really helps the pain pre op...and if u r a surgical candidate u will find that we need pain meds post op too....Chiari is life altering....and depending on the symptoms u r dealing with meds do not always help.....
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Hello, I am newly diagnosed, following a rear end car accident.  I am in my fifties, & have been healthy & active ( skiing, cycling, swimming etc. ) until this accident changed my life.  I also live in Victoria B.C. & noticed your surgeon is here in our city.  I was wondering how you are doing & if you still recommend your surgeon. I really hope you are still doing well.
Hope to hear from you soon, thank you so much.  I am frightened by all this, & appreciate support from anyone.
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Hello, I also live in Victoria B.C., am wondering how you are doing & if you still recommend the surgeon you had .  I hope you are doing well.
I am newly diagnosed & am of course frightened by this.
Thank you so much.
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Hello

I definitely still recommend Dr. Reid, he is an amazing person. Please feel free to PM me, I would be happy to share any info I have.  I will be here for 5 more days and then away for two weeks so if I don't answer right away that is why. I do know a few more people with Chiari in Victoria, believe it or not. It is very scary being diagnosed with this but I am hoping I can help you with that by answering questions you may have. I am now 31/2 years post op and though there are ups and downs, I am doing well:)
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My NS is in Calgary as well. I can't call these people specialists in Chiari, at least by my definition. I believe they can do the surgeries required, but in my opinion they don't now a lot about the condition itself other than how to fix it. I asked my surgeon a few questions and all she would tell me was there is no absolute cure and nothing you can take to make it better. Surgery is the best option if you have a blockage of fluid and that's about where we left it. I saw two surgeons for second opinions before I made my decision. That being said I consider her a competent surgeon and she will be operating on me in 6 - 8 weeks.
Dr Clare Gallagher
Foothills Hospital
Calgary, AB
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,Can you tell me more about Dr. Pokrupa.. My husband has him at this time after being told for over 4 years his leak was just a complex case.. I would appreciate any and all information.. It has been a very long 4 years for us.. He started with a leak, went to Chiari malformation and syringomyelia x 2.. these are so very dangerous. thanks so much
Anne
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620923_tn?1405964489

  Hi as I mentioned in ur other thread, the names of these Drs are added as members have reported they have been to, treated by and liked the Dr....that is all the info I can offer since I am not from Canada and have not met this Dr.

I would advise u to research the Dr...best way..call the office, when u ask if they treat Chiari , syringomyelia, tethered cord, ehlers-danlos?....if they ask u to spell ne of it or repeatedly as u to repeat it, it may be that office does not handle these issues that much....or it could be a new office person, so do try and see what the Dr has to say...so educate urself so u can better identify a Dr well informed and experienced.


May I ask, did ur DH have a CSF leak with no known cause? and it developed into Chiari or is it congenital?
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I am from Ontario.. having little luck and not much support so far on my husband.. any help is appreciated here.. the NS we are seeing is not interested in explaining much.
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620923_tn?1405964489

  On the other post I suggested a few areas in FL u might want to look for a Dr, ur profile indicates u r in FL....sorry for my mistake....*Stormy* is no longer an active member, but u can try sending her a PM (private message) which will generate an e-mail informing her of the PM....

Sorry the list for Canada is so small....not many come back and add their Drs to this list....but we do try : )
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How did you find Pokrupa.. he does not seem to want to find the root of the problem with Jim.. thanks any help will be great
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  Sorry for any confusion, I am not in Canada and have not been to this Dr....I am trying to contact one of the members for u.....

and I am so sorry this Dr is not helping, may I ask what all are ur DH's symptoms?
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1179332_tn?1297482590
Hello

I wish I could help but I live in BC on Vancouver Island so I have not heard of this DR. Generally though, I am told there is a lot more choice where you live when it comes to knowledgeable Chiari Drs. If your NS is not giving you the info you need then I recommend getting a second opinion. I will see what I can dig up on him and any other good NS and get back to you.

Take care, your hubby is lucky to have you in his side:)
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  Thanks *Stormy* <3
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