Can chiari affect your heart?

[Samanthab259]

I went to the doctor today since its so much of a change in my heart rate whenever I stand or put my hands above my head I have to have a echo. Has anyone else had the same issues?

[selmaS]

  BTW- it can cause issues with rejection and cause leaks....so those with EDS can have a more diff time with a dura patch then others....and zygy u had issues in this area, so it makes me wonder all the more.....

[selmaS]

  Did they ever test u for EDS....I was the first to say I could not possibly have it, yet I do...so do not be too quick to dismiss EDS....and it does not mean u will have all the symptoms listed, they mention a few more common ones, but there are many....I heal fine, just slower then most...but to me, it is my normal....so, do have it checked.....

  Same to u Samantha...get checked rule it out!

[zygy2]

Hi Samantha :)  They diagnosed me with POTS, I guess it was something that I thought was there so dealing with it is no big deal now.  Can be annoying at times but I have felt this way for a long time.  My NS said the POTS stuff would not go away with surgery.    Really important to watch your BP though and keep track of it to show them!  I had not read about EDS being related to POTS, I know they tell me loose joints but I have no issues with healing so I don't think EDS is a problem for me.  After surgery though they could not get my heart rate down and even though I had mentioned POTS before to people no one ever listened and after days of a crazy pulse the NS finally came to me and said "I think this is POTS" I just laughed!!! :)  Just accept it Samantha, we have lots of crazy stuff :)

[selmaS]

  Keep in mind not all heart palps are POTS symptoms...Chiari can cause them as well....this is just another Ave to explore if u had surgery and r still having the issue.

Always keep records of ur BP and  all vitals when u see the Dr....it is easy to see if there is a pattern.

I write all mine down in a book that has all my visits in it...weight, temp, and BP...always!!

   Also note POTS is related to EDS...so if u do not have EDS , then there is a even better chance u do not have POTS.....ICP should then be looked at.....

  We r soooooooo complicated...sigh

[drewlevas]

Wow. POTS is somthing complicated and scary!

My hearth goes weird to something it goes a 120 when I'm resting witha lot of PVC and something I can be walking and I will feel all weird and take my pulse and it stands at 36 to 45 pbm!

I'm suppose to have a follow up ecco in a few months, I had a stress test done 2 years ago and everything was fine! and I had an ecco 9 month ago and they said it was good. Latter my doc told me that my heart was at 60%, I'm not sure wath it meens but I'll belive the doc when she says that's she not worried.

[bookworm79]

Wow, I can apply 99% of the symptoms on that list to me...of course some of them are on the symptom list for Chiari and also anxiety.  I think it's just easier for the doctors to just lable you an anxious person and be done with you.  Frustrating.  And yep, Selma, sure enough, I was "diagnosed" as having GAD as well.  And what the doctors don't understand is that I don't lay around or lay awake worrying, I just can't freaking breathe.   That's it.  But apparently to these jerks I've seen JUST having breathing issues is enough to slap a mental health issue on you.  Sorry.  I'm having an off day.  Actually to be honest, I've always been a very meek person, non-confrontational, stay in the background, afraid to make waves or make my voice heard type of person.  Boy has my personality changed since I started having symptoms in the last 3 years.  I think you can acurately say I'm a very angry person now - I can still be nice, I'm still compassionate, but it does not take much to tick me off.  It's like I walk around now daring anyone to say anything to me.  So not who I was 3 years ago.  Don't know whether it's a blessing or curse.