Do I have chiari malformations?

[courtneybreaud24]

I have been diagnose with a connective tissue disorder and I been having chiari symptoms for awhile now,
Severe Headache and Neck Pain
Dizziness
Vertigo
Ringing in the ears
Difficulty swallowing
Palpitations
Muscle weakness
Impaired fine motor skills
Tinnitus
Chronic fatigue
Painful tingling of the hands and feet
Scoliosis
and tachycardia to name a few, I been to numerous doctors cardiologists, rheumatologist, geneticist, and an orthrepedic surgeon. I been wanting to get the mri, but no doctor has ordered one, I am running out of options the only one that seems to listen is the genecticist and I never heard back from him in a month, oh I do have other diagnosis fibromyalgia, osteoarthritus and vitamin d deficient, being tested for marfans and dysautomia. Any advice would sure help!!!!!!!!!

[selmaS]

  Hi...not sure if it is a hole or a flap that does not work correctly....mitral valve prolapse could be an issue...and that is related to Ehlers-Danlos which is a condition many with Chiari have, but not all have the mitral valve issue,

Do keep me posted on what u find out.

[courtneybreaud24]

Well more news, my new test I took measured my blood flow, was fine to my head, but was told I had an opening to my heart, is that the same as a hole, it would explain all my symptoms.

[selmaS]

  No meds that can help with ur symptoms?.....I understand avoiding surgery it should always be the last resort, not the first choice....

Do keep us posted on how u r doing <3

[courtneybreaud24]

nothing much they can do I could therapy, but that doesn't help I tried it, their is a shunt surgery but it is too risky they don't do it where I am from it too risky of a surgery because it may cause more harm to do the surgery.

[selmaS]

  Is a treatment plan available to u and in place?

[courtneybreaud24]

he looked at the MRI he did the test and my I had trouble walking and with my motor skills he noticed part of my cerebellum was not their, also the fluid that wasn't supposed to be there, very fortunate to not have the hydrocephalus that 90% of cases do.