My daughter had decompression surgery in May 2010. Her neck pain is getting progressively worse, and now she can't sit up to read or study. She had to take a medical leave of absence from college. Her MRI last August showed 2 herniated discs in her neck, but the MRI from two weeks ago shows 4 problem areas. Her neurologist has no answers as to the cause and only recommends pain meds or epidurals. I'm looking for the closest Chiari specialist (we live in NJ) who can help. Did anyone else have cervical disc problems after the surgery, and is there a doctor on the east coast who is "amazing?" I've read posts about Dr. Oro (where is he?) and the Chiari Institute in Colorado. We would travel if I felt they could really do something. By the way, she doesn't have overt signs of Ehlers-Danlos Syndrome, but maybe it's not easy to detect?
Hi....the decompression does not cause bulging disks, but in a weakened area will allow more to slip post op as they r moving things around, and what may have been holding them in place is shifted to make room for CSF flow, may just be the catalyst to have them move.
For those with EDS disk issues and cerviocranial instabilty can get worse, and I know 6 months post op my disks that were bulging shifted more so that at my 1 yr post op I was told I need surgery on that now too.
Not all with EDS is evident and all of us should be checked and have it ruled out.
So, again, not the surgery itself, but an underlying issue that was there b4 and the surgery triggers it.
Hi, there r different ways to be evaluated for EDS, there r some typical symptoms or signs, but there r several types of EDS so not everyone may have those and it is not the only or best way to rule this condition out.
SO, I would suggest u take a look at a few videos I posted in the EDS group.....they r by a Dr that also has EDS, u may find it helpful.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.