getting chiari noticed....

[Sexybare]

Why are so many drs ignorant and blind to chiari? How are we suppose to educate about chiari when it seems drs don't even care to listen. My er dr on thurs didn't even bother to ask why I had brain surgerry. Was it because he was afraid I knew more than he does? Hmmm. I'm soo tired of drs not understanding or even hearing of chiari. If I had money I would have my own tv show and invite everyone her to join. Then maybe people could watch and drs could learn from us...I'm sooo iritated by this issue. We shouldn't have to keep explaining it to drs. Its just as common as strokes, heart attacks, cancer, etc.....how are we suppose to make them know chiari? UUGGHH

[selmaS]

  I have to differ u to my answer to this thread -


http://www.medhelp.org/posts/Chiari-Malformation/How-you-know-you-need-a-new-doc/show/1800122

[Viva001]

Good question!  All I can say is that it was always so w/docs.  
I was one of those pesky women who fought w/them to allow fathers in the operating room in 1977.  They kept my baby from me so that I couldn't even nurse properly.
4 yr later, a different ob/gyn told me that I "couldn't possibly know" when I conceived.  I changed drs in my 9th month, because he refused to use the birthing room or allow me to immediately bond with my baby.

At least giving birth is better!

As I said before, most are technicians; they could just as easily be car mechanics.  A humane, caring doctor is a real blessing!

[ryssamac]

I agree.  I've been bounced around between Neurologist, Rheumatologist, ENT, and my PCP finally said enough.  MRI showed Chiari and my Neurologist said ' don't worry about that, its a birth defect so it's always been there" he didn't even ask if I had a previous MRI.  Turns out I did and the brain stem and cerebellum was intact.  PCP sent me to a neurosurgeon who said 'you aren't falling down or losing consciousness so you don't need me' and sent me away.  I feel awful, i get black out but don't lose consiousness, have headaches, lose voice, hands and feet go numb, can't concentrate... I feel like a shell of my former self.  Finally have an appt with a heurosurgeon who has done decompression surgeries and knows about Chiari.