I have recently been diagnosed with CM. I am scheduled tohave an epidural steroid injection for an injury in my neck about 3 inches lower than the CM. I have 2 degenerated dics and a bulging disc that presses on my spinal cord causing cervical canal stenosis. I am afraid to get the injection because no one seems to know enough about CM. My neurologist appt. is not supposed to be for a couple of months because they are too few neuros in my area. They aren't sure what is causing me to have headaches for 3 mos. that are getting worse. Any advice out there? Thanks
U r right to worry...if the techs giving the epidural do not know enuff about chiari, u may be best to avoid the injection as it can lead to a CSF leak and that will only make u feel worse.
There are a few Chiari specialists in TX, not sure how close u might be, u may have to travel..but it is well worth it to get to a dr well experienced with chiari.
Please see our members list of their drs...this list is not a referral,it is just a means to help u with ur research of drs.
The list can be found in the Health Pages located on the bottom right of this forum page.
Seeing a specialist no matter how far away is better then letting someone that does not have the knowledge or experience to touch u.....too many go for a quick fix, and there is none....chiari is life altering....so ne dr that gives u a promise of a fix...run the other way....
I have had the decompression surgery and I still am dealing with pain. I did go in and have steroid injection's in the back of my head, but when it was suggested for the neck. I said NO WAY. I feel as Selma, having Chairi and some one not knowing about it could be very serious. When I expressed this to the pain clinic they also agreed because there are not a lot of us Chairian out there that hospitals, clinic's understand the seriousness in this. I hope you find your answer's, but I totally agree with Selma having injection's in the neck could cause more damage. Sorry just my opion though.
WOW! For a year and half my Dr. has been trying to get me to do the epidural blocks. I was so weary of it jsut because I know it can build scar tissue and of my age. I also thought of the Chiari, and something kept holding me back, and now I am super glad I didnt go 2 years ago when my pcp ordered it and havent let my pm dr convince me to try it. This is very helpful to me! Ty for asking this ? and ty for answering it so thoroughly.
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