Friendly Challenge (FINISH your timeline)

Who needs to finish their timeline??? I do :D

Background: I was dx with CM1 in 2008. Also dx with a TIA (mini stroke) at same time. My NL told me the "tail on my brain was nothing to worry about, probably had it my entire life...." So I ignored it since there were no real symptoms to worry about. BUT, In April 2010 my symptoms became so severe that it has affected my career. Chiari Monster equals BOO. Luckily, I am still working. Actually just took a promotion; however, it's VERY hard for me to function most days. It's bittersweet :(

NOW, I realize the importance of finishing my timeline to take to specialists. My goal is to have one that has EVERYTHING in it for me and to help on here. And a bullet point (absolute worst) symptom list and dates for the drs.

So who is with me? Anyone???

I would think 31 days is a decent number. Maybe I'm wrong. It usually takes my drs about 7-10 days to send records.

Thanks everyone, LOVE YOU.

[Dr. A. Srivastava]

Hi, Thank you for your question. I can understand your worrying concerns about post-stroke recovery. Unfortunately, rehabilitation is the only effective way to help the patient regain function to the possible extent and prevent from permanent losses. If rehabilitation program is appropriately instituted, most of the stroke patients can regain maximum functions with appropriate therapy, training and support services. For coordinated rehabilitation program a team of a neurologist, a physiotherapist, an occupational therapist and a speech-language pathologist, a nutritionist work together to help you in your recovery. Therefore, I would suggest following the suggestion made by them and recovery will be although slow but most of the functions may be restored. In addition, it is essential to know that risk of stroke recurrence may be reduced such as by quitting smoking and controlling blood pressure. Hope this helps.

[theasian]

Hi
I have a timeline that I created. It's been going on nonstop for a year and 3 months now. I think it's just good to have it so that you always have a reference especially when you have to change doctors, then it can prove to be really handy. Unfortunately though my timeline is not helping much at the moment because the doctors still don't know what's wrong. I'm sure it will be helpful in the future though so I still keep it updated, at least every week just to monitor my "progress"
Take care

[selmaS]

I do not have a timeline per say but I do have a book with all my appointments and I keep all records of tests...blood labs ect.....along with weight and BP each time I visit my PCP or ne other dr....It helps to have all the info in one place...plus one section has all my drs listed with addresses and phone numbers....u always get the forms to fill and they want that and I never had it with me...now I always do.

I also keep a current med list with meds I am allergic to was well...so the dr can photo copy it....

My PCP now asks for my book when I go in...lol....he knows I will have my lab report b4 him, so he makes copies....this works well for me...and the idea was from shane99 !!!

"selma"

[*Stormy*]

Hi

I totally have a timeline and I found it extremely useful. For me I started it from where I first found my symptoms most noticeable so mine is about a year ago long!! I think it's really important for them to see when and where it started and how it progressed. You never know what is the most important symptoms for them to know so it is really important to get all of them down.

Of course, now I realize that it started many, many years ago but my timeline reflects the worst progression..

Carolyn

PS( Selma...HUH????..lol)

[keepswimming]

bumping up for others asking about timelines