HA and now difficulty with walking!!!

[drewlevas]

I started to have a HD on top of my head on the left side around 5h pm and went to my DD recital practice for the show of saturday and sunday. My HA didnt die of it just got worst. When I finaly got to my mum to get my other DD I sat down for a few minutes, but when I got up my left leg could not work! It hurts when I walk and it feels like it was a block of ice! I dont want to go to the ER. I feel like the doctors are so ... (I prefer not to venture there). Could it be Chiari related? I'm so confuse to how my body feels sometime!

[linnielou232]

I have an item I would suggest to all who get's HA after social events.  EARPLUGS.  They have saved me so much.  I now put them in when I know there will be a lot of noise and it muffles out the noise.  You can still hear, it just quiets things down, and no one knows you have them in.  Hope this helps.

[drewlevas]

I have an appointment with NS on the 21st of june.

[irislita]

Hey jen...i am so glad u r better now.i was living out of bed too before surgery.i was not able to even cook anymor....nothing.
Drew...i can draw a certain parallel development between our cases...my gait problems came along with the never ending fatigue...i am so sorry...please go to a specialist.i am worried

[drewlevas]

I'm kind of relieved that I'm not the only one to experience this kind of symptomes. My HA is still there today, but I can now walk, but not straight. One of my mothers neighbourd was suprise to see me limping today.

I'm realy tired today and I have difficulty to digest my food.

[sweetjen680]

Mine was complicated with a severe case of hydrocephalus.  The pressure caused nerve damage n my eye.  I am 6 months post op of decompression and ETV( to drain fluid  from my ventricles), but still waiting for my eye surgery to correct my double vision.  Head still hurts every day, but is hardly noticeable most of the time, compared to what I was living with before.


I had to or three episodes in the last 2 months or so before my diagnosis and surgery.  I wouldn't be able to get out of bed...doing anything was so painful.  The jarring neck pain.....ohhhhj...it hurt so bad!  I couldn't walk down the stairs to my kitchen.  I basically lived out of my bed.

[irislita]

Oh wow...i am freaking about u having the same experience although i would hope none had to go thru this...exactly i started walking like a drunk and couldnt make my way from the cantine...then was laid down on a doctor bed:((

[sweetjen680]

Me too....exactly.  I felt like I was drunk all the time and was very embarrassed to be around people because I did t know what was wrong with me.  I also had "neck" pain....basically, the exact place where the tonsils are pushing through...that was really my first symptom.

[irislita]

Mmmhhhh strange...thats how my chiari journey started.i had a massive ha on the left side of my head next to my eye...nothing worked against it.an our later i was not able to walk straight anymore and was getting dizzy!!!

[selmaS]

  Hi...I had issues with my legs and I feel my issues r TC and EDS related , and they r chiari related...not sure if u have those issues, but it is worth checking as it is to check for bulging disks, I had a bulging disk that shifted 6 months post op and began to create more issues  for me then it did prior to my PFD....so things can change...so do talk with ur Dr and find out what is going on.