I was givin tramadol and gabapentin. Didnt work. Im waiting til jan to see my neurologist for something else. With my horrible headaches and only like 2days a week free from them its a long wait. Id like to know what works for them also. That way im prepared when i go?!
Also this is for anyone willing to answer... what works for your headaches.. I am to the point this week that I feel like I could just chop off my head feel so much better... They have given me Flexeril and Fiorcet.
They work for a few hours and its back.. like the mad hatter... {{{ Help}}} Im calling tomorrow morning.. I cant even lay down.. its killing me... :(
Selma,
He said he would not risk a lumbar puncture for fear of suction to the cerebellum. He said LP's are very dangerous to people with Chiari.
I asked the same thing. I had thought a spinal study would have been in need. And that they should check the pressure or levels of CSF.
That was the explanation given to me... I would love to hear what you guys think.. Especially since this is all new.
If u have more pressure when u lie down it is an indication if ICP....try to elevate the head of ur bed so u r not lying flat....
Since u had the leak from pressure in a plane, I am curious as to what ur Drs had to say ....what they did next?
I would suspect they would RX a LP to check for ICP.
"selma"
My last MRI was in JULY 2011. They havent done anymore. I only experience this when my headaches as I described above, horrible pressure. And I'll sitting there, or lying there in pain, and the next thing I know I feel like my ears are draining??? It is by the far the strangest feeling. I get a q-tip, and its damp when I check my ear(ears).
The dr. had told me he had wished I had "tasted" the liquid, which was odd for me. I never would have thought to do this? I dont know if CSF has certain taste to it??
I have experienced this twice myself, tho I have not had surgery. I didnt realize the CM connection...just thought it was weird my ears were draining.
jiggle93
I forgot to mention my headaches have been horrible lately. Im lucky if i get 2 days a week without one. Is it weather? Idk
I have the same issue with the headaches lately and the feeling of wet ears. I know we can get water in our ears and thats what ive been told. But we know the difference of that. I had surgery in aug and i have this feeling all the time lately too. I had my last csf flow study in oct and theres no known leak for me. But ive been told the mri is your laying down relaxing so its harder to find a leak. As to when we are upright. When was the last mri for you?