What u do at work can be the reason ur symptoms have flared and u feel worse.....lifting, straining, can all lead to increased symptoms.
As for the Dr u see being on the list, as I have said the list is not an endorsement or a referral, it is here merely for u to use to research Drs.....it is not meant for u to select one to go to...please research the Dr and make sure he/she is the right one for u.
Size of ur herniation is not really of concern, if u have a CSF obstruction or ne other related conditions ....that is what u need to focus on now.
Oops.. should have mentioned I have a 6mm herniation
Hi there,
thanks for the advice. The neurologist I've been seeing is already on the list and the only one anywhere close to me. I haven't had a new MRI in about 2 years so I'll make an appointment and request one. He's a fairly nice man but I always feel like I'm being rushed through appointments and every time I go in he just asks me to track my symptoms for the next visit but hasn't looked at anything I've been writing down yet. I've been doing it for a year and he usually quickly flips through a couple pages hands it back and says good keep it up.
I'll ask him about a new MRI and mention the CINE MRI. Do symptoms typically get worse over time? I have a very physical job in the developmental services field which I know is not ideal. Could that be the cause of worsening symptoms? Sorry I haven't done much research over the last couple years as things weren't unbearable for me. Thank you all for your help. :)
Hi Kate,
It certainly sounds like Chiari is causing your symptoms, based on my experience and others I have met or spoken with. selmaS is right about needing a CINE MRI. The length of your herniation does not impact your symptoms, but the CSF does.
http://www.conquerchiari.org/subs%20only/Volume%202/Issue%202(3)/Cine%20MRI%202(3).html
Have they looked for a possible syrinx? When was your last MRI? If you haven't had one since talking with your neurologist or shortly before that, then you should request one.
Hi and welcome to the Chiari forum.
Many with Chiari are not surgical candidates and for them, not much can be done even if they have symptoms, but if ur symptoms are changing in intensity and u r getting new ones, u should have a CINE MRI to see if ur herniation has changed that it is blocking CSF....if u have an obstruction, surgery can restore flow.
We do have a list of Chiari specialists in Canada, I know ur Dr will not refer u, but mayb he is willing to consult with one?
If by doing that he may find there are ways to get u some help and then refer u....use the list to research the Drs as the list is not a referral or endorsement....they are just Drs of members here, that have used them.