I am out if options

[soccero]

I had surgery aug 17, 2009 then a redo on July 22, 2010 am still in so much pain and was in the we last night. I am so sick of living this way. I dnt no what to do
Molly

[redkim]

I am not sure what is causing you pain, I imagine headaches...An aquantance (sp) who has Chiari and had two surgeries still got headahces and got botox, he said it helps for about three weeks which is better then trying nothing.  I hope you're able to find some therapies that give ou releif, I know you're tired, but just keep looking.  And give it time.  I will be thinking of you.

[trippmusic]

Molly, I am so sorry that you're still in so much pain. Jonathan and I have been praying for you ever since meeting you in WI. I do hope and pray that things get better for you soon.  Know that we are here for you anytime you need to talk. I understand the pain and not being able to get out of bed. There are many days that I feel like a horrible mother because I can't function enough to do all the things I used to do with them.

You are a very special girl who deserves so much more than this pain. Our continued prayers are headed your way.

Penny

[ChiariWolf]

:-) You are so right there Molly! But as I told my son; for someone to understand would mean that they themselves are going through it. I don't wish that on anyone.

Parents have a way of 'wanting' their children to be just fine, in good mental and physical health... to see them suffer well is a very difficult thing. So difficult in fact that for a time it can cause us to go through a phase of denial. Give them some time, give them all the hugs and understanding that you want for yourself.

Glad to see a hint of a smile in your words.

[soccero]

thanks so much. And I guess I should change my mood LOL cause that was from two weeks ago LOL u did make me smile on that one. And I am praying for u and ur wife also. As for my parents they kinda are but they dnt really get it and they dnt get that I have to live this way but I can't really blaim them. Nobody gets it unless u r going thru it.
Molly

[ChiariWolf]

:-\ Well for what is worth Molly... my heart really does go out to you. Crying on your behalf even. I understand the frustration all too well.

Is your mom or dad empathetic towards all of this going on? I do wish my wife and I where closer.... not that we could do much but from my wife and I just feel the big hugs we are throwing your way.

I noticed earlier your 'mood' says you'll see the Doc on Monday. We'll pray that goes well on your behalf. Try your best to laugh at me or watch a funny show or something so as not to allow you time to think. My wife loves to watch 'What About Bob' when she needs a pick me up. She doesn't have chiari but suffers from depression due to Fibro, psoratic arthritis and osteo arthritis. A different kind of pain entirely but it does amout to whole body pain which gets her down at times. That show always gets a laugh out of her though.

Wolf .... signing off but still thinking good thoughts your way ....

[soccero]

thanks for ur comments. And I ment to say I was in the er last night but my iPod corrected it and put "we" for er. It's just so frustrating. I had my first pfd and felt horrible for a whole year then in June went to dr heffez where he said the surgery hadn't been done right andi had another one in July and my ha's plus everything else is so much worse. I have alot of days where I dnt even get out of bed. I can't function like this and I am not about to live the year like last year again.
Molly

[ChiariWolf]

Molly, so sorry to hear how you are doing. or not doing.

Please don't give up! Difficult some days I know, we all do. Yes, you are right difficult isn't the right word not sure what is the right word. Try to focus away... easy to say I know, but it really does help.

As for feeling worse after... not sure where that is coming from and I can't speak for others but there is no way I feel worse. I don't feel 100% either but much much much better than pre-op. Still have some bad days but that is one thing I tend to recall is "hey it's better than it was".  I suppose each one will have their own results.


Wolf

[dermarfx]

Molly,
I havent had the "surgery",
    But would like to say, if you search from this forums home page,most people feel worse after the surgery than before,then it gets a little better at a time...I wish yo the best....