I have an autoimmune based gastro-intestinal disorder, which fall under the generic IBS category.
I also have a hiatal hernia induced acid reflux.
Hello and Welcome!
Totally agree with Selma...I would get your Chiari checked out soon, preferrably with a NS.
I have all kinds of problems with GERD and IBS as well...one of the cranial nerves, the vagus nerve, that can be damaged from Chiari and is the only cranial nerve that travels into the thoracic and abdominal cavities. To me it makes sense that if you have damage to that nerve it can affect your throat, swallowing and your stomach. That is my theory anyway!!
I hope you get it looked into soon!
Carolyn
Hi and welcome to the Chiari Forum.
It is highly possible that the chiari is responsible.....many of us chiarians do have these issues. Since u r dx'd with chiari seeing a NL is not always a good thing unless they r connected to a true chiari NS....that is who u need to see!!
NL= neurologist NS = neurosurgeon
U really need to talk to ur parents about getting to a chiari dr ...and getting more testing done to see what is truly going on for u.
We r happy to have u our little family here, sorry for the reason u had to seek us out.
"selma"
I was diagnosed with Chiari 1 malformation in 7th grade after a concussion from a soccer injury was not improving. Ive had the normal symptoms (headache, eye problems, dizziness). The symptoms were all manageable. About a year ago I started having stomach problems. I had nausea, vomitting, and diarehha. I was 106 pounds at the time and I'm currently 94. I have a real hard time eating, I get really nauseous right after I eat. My symptoms are also much worse in the morning. I cannot eat or drink anything before 11. Ive had an edoscopy, colonoscopy, gastric emptying, small bowel xray, and a ct scan. All came back perfectly normal. My blood work is all normal except for my C-reactive protien and total protien were high, but my white blood cell count was normal. Ive been on prilosec, previced, zantac, and im currently on protonix and NuLev. I take NuLev 6 times a day to keep my food down. Ive been "diagnosed" with lactose intolerance and acid reflux but again there was no evidence of any of those conditions. Ive seen about 3 doctors and every single time I'm told to increase my medicine and check back in 4 months. I cannot afford to lose any more weight so that doesnt really work for me. I recently saw a pediatric GI doctor at the University of Rochester's Gallisano Children's Hospital. He was the one who suggested that my stomach problems are related to my Chiari. He ordered a hydrogen breath test, and cathater stomach test. He also refered me to a neurologist to re-examine my Chiari.
i also have both and am taking prilosec and nothing really for ibs i was told by my doctor it was stress related
Hi, yes I have IBS and acid refux. I am on prilosec, and a certain diet for my IBS. I also take colace twice a day.