I finally had my dr visit with a neurologist !! He was great Listened to everything i had to say and explained everything multiple times so i could understand. He said besides my Chiari i could have something called Idiopathic Intracranial Hypertension . He thinks i may have this too because my optic nerve in my right eye was swollen. He ordered a CINE , a MRI of my head ( i never had a full mri of my head done..they found my chiari during an mri of my neck), and an EEG (because i keep passing out when i sneeze cough strain...r just randomly ). He said that if he thinks my Chiari isnt whats causing my symptoms and the scans show nothing else wrong that he wants to do a spinal tap because its the only way to diagnose Idiopathic Intracranial Hypertension. He also said that either one can cause the other. Has anyone been told this ?
Hi...I did reply to this but there was a glitch and it did not post.
This is very common, as I mention many times that we shoulsd be tested for ICP which is what the Dr feels u have and a LP is the best way to rule this out, ICP can cause the cerebral tonsils to herniate when chiari is not congenital....so u would have acquired chiari.
As long as the techs and Drs r all well aware of ur herniation and u follow directions to lay flat for 48 hrs afterward, no lifting etc... u should be able to have this testing,
Not all NS's and techs r aware of how this can affect us and may draw the fluid too fast causing the tonsils to herniate further...
he did mention how he had to do it slowly cause of the herniation. He explained all of this. (: Hes getting all the scans first to get a better look at my chiari because my last dr didnt do it ..he just seen it and wanted to operate. I wanted another opinion so i switched to this dr. who is the first one to actually order the right tests and check for other conditions as well.
Im very glad i switched also. I know i been fighting with it my whole life..whats another few months to a year . Just want to make sure i have all the right test done before i decide on anything. I think its important to have all the information in front of me.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.