Chiari Malformation Community
Instability?????
About This Community:

This patient support community is for discussions relating to Chiari Malformation and Living with Chiari Malformation.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Instability?????

Can someone tell me what cranial instability is? Is it related to chiari?
Related Discussions
7 Comments Post a Comment
Blank
620923_tn?1405964489
Hi.....yes, cranial instability is generally related to EDS...but basically it is best described like Dr Menzese had noted......imagine a pumpkin put ontop of a tall pointed stick.....what will happen overtime is the pupmkin will bobble and slowly slide down onto the stick and the stick is forced into the pumpkin.

The resolution is cranial fusion......many of the severe HA's can be due to this problem.

There r a few chiarians doing diff type of streghtening exercises to avoid the fusion which will limit mobility of the neck.

I was told I had this instability, but at this point I am doing fine.

Driving in a car u may want to wear a neck brace to keep ur head as still as possible.

If u would like more info please ask .

"selma"
Blank
1002315_tn?1250163099
my understanding of "cranial instability" is excessive mobility in the neck/cranial area that demonstrates abnormal movement and potentially applies pressures upon cranial nerves, etc.

i was described the "pumpkin on a stick syndrome" as a description for "cranial settling" which I think is frequently associated with "cranial instability" but also creates problems with cranial nerves, etc.

Hope this helps.

keith
Blank
959034_tn?1253675076
Thank you!!!!! Very helpful!
Blank
959034_tn?1253675076
So how do you get official dx cranial instability? If the one dr is saying maybe. A test? Thx!!!!!
Blank
620923_tn?1405964489
Invasive cervical traction (ICT) is a definitive test for establishing the diagnosis of
craniocervical instability with functional cranial settling. Currently available
radiographic studies including cervical MRI and flexion/extension X-rays are not
sufficient to make the diagnosis. Typical candidates for ICT are patients with
symptoms and signs of lower brainstem dysfunction occurring in association with
the following conditions: failed Chiari surgery; hereditary disorders of connective
tissue (e.g., Ehlers-Danlos syndrome, MASS phenotype, Marfans syndrome);
rheumatoid arthritis; osseous disorders of the craniocervical junction; and
posttraumatic whiplash injuries.

Technique: ICT is performed in the operating room under strict medical
supervision. Patients are anesthetized briefly using MAC and cranial tongs and
implanted under local anesthesia. After awakening, the patient is placed in a
sitting position in a hospital bed with an overhead frame and a pulley system.
The head is extracted upon the neck in neutral position with 5o extension using
graduated weights under fluoroscopic guidance. With each 5 lb. increment, the
patient’s presenting symptoms, neurological findings, and fluoroscopic anatomy
of the craniocervical junction are recorded and entered into a database. Patients
with highly positive ICT tests typically experience a complete relief of symptoms
and signs at a specific extraction weight that correlates with anatomic findings
such as reduction of the odontoid tip within the ring of C1 and reduction of the C1
arch below the base of the skull that can be measured precisely.

Objective: The goals of ICT are as follows: (1) to establish or rule out the
diagnosis of craniocervical instability with functional cranial settling; (2) to identify
patients who do not require craniocervical fusion, thereby avoiding an
unnecessary surgical step; (3) to identify patients who are potential candidates
for craniocervical fusion - in extraction and (4) to acquire precise radiographic
and extraction weight measurements that can be reproduced at the time of the
craniocervical fusion to maximize the likelihood of optimal outcome. It is TCI
policy that all patients with clinical suspicion of craniocervical instability/functional
cranial settling undergo ICT prior to surgery.
Blank
959034_tn?1253675076
An official dx is sounding less appealing. Thx again for the info though!!!!!
Blank
1069889_tn?1280626151
the ICT test really isn't that bad...i had 3 of them now...go to Dr. Bolognese at the Chiari Institute on long island new york or dr fraser henderson bethesda maryland...
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
9931813_tn?1406746748
Blank
Jeannean_ChiariMom, and selmaS commented on selmaS's status
9 hrs ago
9906907_tn?1406604905
Blank
shushil commented on Attention All Mouth B...
Jul 29
Avatar_f_tn
Blank
Alex1872 commented on When Your Cold Is Not...
Jul 28
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH
Chiari Malformation Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
242532_tn?1269553979
Blank
3 Reasons Why You are Still Binge E...
Jul 14 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating: What Your Closet ...
Jul 09 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
979826_tn?1389039958
Blank
soccero
germantown, MD
992677_tn?1337358095
Blank
ChiariWolf
OH
5640779_tn?1375816966
Blank
desertstorm2009
AZ
7530528_tn?1405298278
Blank
AKC_75
TX
1667208_tn?1333111449
Blank
zygy2
NH