Hello I was diagnosed with Chiari Malformation 1 a few months ago with 4-5 mm herniation below the foramen magnum. My symptoms are as following: daily debilitating migraines since july-august 2015, insomnia, anorexia, nausea, vomitting, chronic fatigue, neck pain, occipital pressure and pain, thoracic back pinching/radiation bolts, upper back and shoulder pain, double vision, blurry vision, light and noise sensitive, ringing in ears, random numbness on right side of body, and general feeling of head "heaviness" and swelling. My neurologist is treating me with a combination of 400 mg of lamactil, magnesium, daily vitamin, vitamin D, zofran, maxalt (only can take 3 a week/ 2 in 24 hrs) and melatonin as needed, PCP has me on effexor 75 mg, buspar 20 mg, singulair, albuterol inhaler, and sleep specialist has me on trazadone 75 mg. With a combination of all of these medicines I have found absolutely no relief. Some days I get by with the pain, and other days are horrible. On my worst days they recommend going to the ER for the migraine cocktail. Well I've had the mixture of toridol and benedryl plus fulids and I leave with the migraine. My Neurologist keeps saying these are refactory migraines that have nothing to do with my chiari as it is congenial. Everything I've researched says that the chiari symptoms will start to present itself mid 20s to 30s or after trauma. I am 25 and had a pretty bad birth experience in 2015 with preeclampsia and placenta accreta and my baby being born 6 weeks early. What I'm wondering is are there any specialists in or around columbus oh? What medicines are you taking that actually combat the pain? At my next appointment he said if nothing has changed he is referring me to a neurosurgeon and this won't happen until February next year.