My dad has chiari malformation

[Tinkerpen10]

My dad has chiari malformation I am 22 and had a MRI but they said they couldn't see anything wrong I have a lot ov the Symptoms and was wondering if I could still get it in the future any feed back would be grateful as doctors wasn't that helpful and couldn't tell me thanks xx

[*Stormy*]

Agreed. I would go after the MRI reports yourself and then try and get seen by a NS. I had Chiari that showed up on my first MRI and both the radiologist and my NL said that everything was normal. I had a multitude of symptoms, some debilitating...and I just couldn't accept that. Finally, I was able to see a NS who dx'd the Chiari and did the surgery...I am much better off b/c of it.

Some NS (including mine) will say that there is not hereditary connection but I have heard of tons of stories where two kids have it or a parent and a child so I do believe it can be hereditary. If the skull malformation is congenital, then who's to say it can't be passed down. I know when it comes to my children's health when I mention that I have CM1, they take my concerns much more seriously...I honestly don't think they have enough research done to know..

So take the safe route and look into this, either way you will be glad you did, it will either ease your mind or give you some valuable info for the future.

Stormy

[selmaS]

  Hi and welcome to the Chiari forum.

Since there is a family history if I were u, I would request copies of the MRI and reports u had .....this way u can get a second opinion. Make copies once u get the MRI and the report and seek out true chiari specialists.

Too many drs go by old standards to consider if u have chiari and do not look at how u r being affected but by the size of the herniation...which is the length...and that is not really the more important issue the width is more important. U want to know if ur herniation is creating a CSF obstruction, and over crowding and compression causing the symptoms.

  We do have a list of chiari drs for u to use to research them to find the right one for u and ur dad if he is in need of one too.

   See the Health pages or our drs list thread...this list is not meant as a referral, just a means to help u get started.

    "selma"