It i has been a month or more since I posted on here, mainly because it hurts my head and neck something awful to sit at a computer, so I am going to have to try and hurry with this cause it already is hurting me enough..As some of yall know from my previous post I had surgery January 4, 2011 and I feel worse now then I did before surgery! I had a surgeon that didnt like me, I believe it was cause I told him I hurt more after the surgery and that I felt worse rather then better. He let me know, he did nothing wrong! (You would have to read my prior post) I filed for my disability back in October I think, and was denied. I have since got a lawyer and pray to God I get it! Has anyone else had any luck getting disability with Chiari? I have other issues as well..Fibro, anxiety, post traumatic stress disorder, tmj, sinus tachycardia, and etc..The chiari and symptoms from chiari being the worst..
I have done nothing but hurt and feel bad since surgery. I have an appointment with a neurologist at UAB in B'ham, Alabama on March 6th, since my surgeon decided he no longer wanted to be my doctor anymore! I live about 4 hours away (Mobile, Alabama)..This while ordeal has been awful to me..I felt bad before surgery but thought I'd feel some better, but no! I see a pain specialist now, I actually go back to him on Monday..He has me on oxycodone 10mg and oxycontin 40mg time released and phenergan. (and I hate pills, but I have to take these)
Physical therapy has been coming but they have used up what visits insurance would pay for and occupational therapy only has 2 more visits, which is ok, they havent helped me much because I hurt and cant do alot. Some of my family and friends seem to think I dont really hurt like I do, I wish they could feel what I feel for a few minutes. Don't get me wrong, I have semi good days, but not a day with out pain! My balance was not good before surgery but now it is worse. I walk holding on to something or someone. My neck feels like it is on fire sometimes. The pressure in the back of my head is also worse, especially when I stand. I still have the sharp pains behind my eyes and the constant ringing in my ears. My neck and shoulders hurt tremendously. And of course, the chronic headaces/migraines. I told all my surgeon this after the surgery and he did not want to listen to me, and here I was crying and hurting. I am NOT looking for sympathy, just sharing my experience. I have other symptoms but I can't sit here to long. Anyone have any ideas I should tell this other doctor when I go? I am afraid of what my surgeon has told him since he was the one who had to refer me to him..All I want is to feel better and live a somewhat normal life! And YES, I know I could have it worse, people tell me this, and I know it is true, but it doesn't lessen my problems and pain. I am blessed and still thankful for everyday. I hope I am making sense as I am trying to hurrry and type this. Any help is appreciated. Has anyone of yall got disability? And any questions I should ask this doctor on March 6th? Please anyone that knows respond, I kinda feel desperate for answers. I tired of feeling rotten all the time. I want to be able to enjoy life. Thank y'all in advance.