New article (August 2013 pub) re. Chiari Symptom Profile

[geargarage]

Would love to read this (hot off the press):
The Chiari symptom profile: development and validation of a Chiari-/syringomyelia-specific questionnaire

Published by the Journal of Neuroscience Nursing (by Mueller and Oro - Neurosurgery Center of Colorado) - appears in the August 2013 edition

Wish I had access to this. Perhaps some of you out there can access this, and if so, enjoy! :)
http://www.ncbi.nlm.nih.gov/pubmed/23812050

[czpdx]

I would love to get a look at the actual questionnaire...
cz

[selmaS]

Here it is- http://www.ncbi.nlm.nih.gov/pubmed/23812050

The Chiari symptom profile: development and validation of a Chiari-/syringomyelia-specific questionnaire.
Mueller DM, Oro' JJ.
Source
Questions or comments about this article may be directed to Diane M. Mueller, ND RN FNP, at Diane.***@****. She is a Doctor of Nursing Practice at the Neurosurgery Center of Colorado, Aurora, CO. John J. Oro', MD, is the Director of the Neurosurgery Center of Colorado, Aurora, CO.



OBJECTIVE:
The Chiari Symptom Profile (CSP) was developed to provide a quantitative assessment of self-reported Chiari (CMI)-related symptoms and their impact on the individual's quality of life.
METHODS:
The instrument was developed in three phases. Phase I consisted of instrument development using exploratory item analysis from the literature and direct patient evaluations. The item pool was then analyzed and tested on a convenience sample of eight CMI patients. Interitem correlation matrix suggested redundancy of 13 questions. These items were discarded, resulting in a final questionnaire consisting of 57 items, measuring four realms: physical, functional, psychological, and social. Phases II and III tested the reliability and validity of the instrument using a large sample of patients diagnosed with Chiari/syringomyelia.
RESULTS:
Statistical analysis confirmed that the CSP has excellent validity and reliability with a Cronbach's alpha of .958 (p = .0001) and factor loadings ranging from .784 to .321.
CONCLUSION:
The CSP is a self-reported, Chiari-/syringomyelia-specific instrument intended to provide a quantitative analysis of symptoms and their impact on the individual's quality of life. The CSP has shown statistically significant content validity, internal consistency, and test-retest reliability. The CSP will enhance the provider's understanding of Chiari-/syringomyelia-related symptoms, quantify the impact of self-reported symptoms on quality of life, help to determine if interventions are of benefit, and allow comparison of symptomatic improvement/outcome following different surgical techniques.