PRAYER THREAD~~~ NOAH-Cynthum's DS

Question

Hi all please wear ur purple to show awareness as our members DS heads in to tethered cord release surgery tomorrow Jan 27th.....

 Sending good vibes for Noah and his mom~~~~ and prayers for him and all in charge of his care <3

Sending prayers for a smooth recovery as well.

Rahe28 · Answer

TY for keeping us posted !! Lots of prayer and wishes that he will be feeling better soon !!

Rylanesmom · Answer

Thank you for the update.  I am glad they were able to get him comfortable.  I will keep praying!

Cynthum · Answer

Thank you everyone for the prayers for my ds.  His surgery went well but fragile tissue required 48 hrs. flat instead of the normal 24.  Today has been his worst day by far.  He has been in A LOT of pain today and threw up all of his meds.  So they had to resort back to IV meds.  At 2pm we were going to take the head of his bed to 30° bit we only made it to 10° and he was complaining.  So we stopped and gave him more pain medication.  We were finally able to get it to 30° after the pain meds kicked in and he fell asleep.  They are going to hold off getting him up until tomorrow.  Once agian, thank you all for the prayers.  My family really appreciates it.

Rahe28 · Answer

ty Selma/ I cant wait to check it out!

selmaS · Answer

I have a machine that u can embroider with....I need good hoops....the first ones that came out for machines were magnetized and messed with the metal bobbins if u have them,(which I do) ...this one is not magnetic so I am hopeful it  is what I need : )

 I found them on Amazon.....here is the link, the price is down to $88 today....
http://www.amazon.com/gp/product/B004G8XAUE/ref=s9_wishx_gw_g201_ir03?ie=UTF8&coliid=I1SFCYYN5UK8YP&colid=BU5CQUPKLDAK&pf_rd_m=ATVPDKIKX0DER&pf_rd_s=center-3&pf_rd_r=0BFRG6F7AYVN04T06XY9&pf_rd_t=101&pf_rd_p=470938811&pf_rd_i=507846

Rahe28 · Answer

I have always wanted to get into embroidery, but havent been able to save the money for the machine yet. I didnt know you could get the kit for the machine ! If the kit is 90.00 or so, I may be able to save for that compared to the 650.00 for the actual machine. If you tell me what you need I'll check around here for you too. New orleans always has crazy crafting expos

selmaS · Answer

I know there r some for sale, but u have to be careful who u r buying from even on razzel, there is a group that was selling shirts on there that was not a non profit and they were told to cease and desists and they r still selling on that site....so, just be careful.

Rylanesmom · Answer

Praying!  For tshirts look at zazzle.com just punch in chiari.  I found some great ones:)

selmaS · Answer

Indeed they do : )

 I am trying to create my own patch...u know like the letters they used to get for letter sweaters?....made from felt...I have all the stuff...but only can work on one project at a time....I was hoping for the octagon hoops for embroidery on a sewing machine for Christmas, and I didn't get it....so, I am looking for a sale...it is close to $90.00 for the kit....

Rahe28 · Answer

I was telling my friend today that I wanted to have a shirt made or make one myself so that people would know what it was for and it would help raise awareness. Great "brains" think alike :)- LIS

selmaS · Answer

I have my purple hoodie  on today as well,.....I want to add the chiari ribbon and  info to my jacket to help bring awareness each time I wear it.

Rahe28 · Answer

me and a good friend of mine wore our purple shirts and our NEW chiari ribbons today for Noah!

selmaS · Answer

Praying all is going well <3

linnielou232 · Answer

Praying for them also.  I need to get a purple shirt made up for Chairi, so I can get the understanding out there more.  Thanks Selma they are in my prayer's.