strange symptoms

[boogiesmom07]

so i had these strange symptoms today dont know if they r do to the chiari r not but let me tell u a little about what has been going on then ill tell u what the symptoms r
  first i have been under extreem stress for the past yr off on on been running none stop for past month and half with few days staying home here an there and yesturday just got back from taking my daughter to doc appt 140 miles away shes 3 yrs old and has health probs herself and has been having mini heat strokes and has a heart problem so i have been worring about her and i just got dx with chiari
  ok so my symptoms i woke up this morning with real bad weakness now i also have fibro but i have never been this weak i stood up and i felt i was drunk ok i know dizziness is part of this ive been living with it 24/7 but seeing things then not seeing things ive never had before it was like someone kept putting there hands over my eyes and moving them so i finally got into living room and sat down and boy did i make the mistake of putting my head back all of a suden it felt as if there was pressure in the back of my head i heard ringing and i started getting a pressure headache but when i straightened my neck it all went away including the pressure so i couldnt sit all weird anymore i felt horrible my body was hurting so i went to go lay down well i woke up gagging i couldnt breath that good now ive had some problems with coughing while sleeping to were i needed my inhaler but i actualy was gasping for air this is like really freaking me out i called my doc and he couldnt tell me much cause its just my pcp but he called someone at barnes jewish and i have an appt for the 12 which is 140 miles away  but i guess my question is has anyone had this happen an if so what do i do? its not bad enough to go to the er i was able to catch my breath i didnt turn colors r anything r
  is this something that stress is causing?

[selmaS]

So glad to hear they r chiari drs u r being sent to....let us know how it goes and let us know if these drs r on our list!!

Good luck
"selma"

[*Stormy*]

Good luck with the NS appt...please let us know how it goes!!

Carolyn

[boogiesmom07]

ty all that easess my mind knowing that this is normal i have had these probs before but not all at same time and not as severe as they was yesturday rite now getting rid of the stress is not possible but trying to lessin it is an thats something i have to work on
  jacmurphy sry to hear about ur son having problems it scared me and im an adult i dont even want to imagine a child/teen going through it
  it is very diffilcult to see my baby with health problems at such a young age then worring about the problems i have that r hereditery and if shes going to have to suffer with that also when she gets older so i TRY to keep myself going so she can see that but it is to hard and it is hurting me more then helping her but 1 good thing i have a really good support system that helps me with her
  selma the doc that i am getting sent to knows about chiari that is the first thing i asked when they called to set the appt they specailize in rare disarederes (cant spell lol)  i also looked it up on net and unlike other neuero in this state that was one of the things it said they specailize in so i am so happy about that and i am really suprized i got in so quik cause this is in st louis at a top hospital these docs r also part of childrens hospital  
  well agian ty everyone it easess my mind knowing im not the only one sry this is so long its weird even though i didnt vent i feel my strees is relived alittle weird lol except while im typing im getting pins an needles in shoulder blade so im done but ty everyone and hope everyone is having a good evening and pain free r almost pain free day

[*Stormy*]

I'm sorry you're dealing with a sick child....I know how stressful that can be and we tend to worry about our kids 10x's than we worry about ourselves.

I believe stress does certainly make symptoms worse,  a lot because our blood pressure goes up which causes more throbbing in the head, more ear ringing etc..my ears always ring louder after a warm shower or if I get high strung.

I remember getting that drunk feeling for no reason at all and it would last all day, everytime I would bend over things would swoon around me. I also would get very bad sleep apnea or breath holding as I like to call it.

So, even though a lot of us have experienced this, I would make note of it b/c it could mean that your symptoms are progressing. I would definitely write this down and show it to your Dr. I agree with Selma, if you can access a Chiari Dr..that would be the best way to go.

I hope your day is better today!
Carolyn

[selmaS]

HI...so sorry ur little one is sick as well...and I am sure that stress is  added to ur issues.

AS for the coughing and gasping for breathe...if u were asleep it could be sleep apnea which  is not uncommon for chiarians to develop...so talk to ur Dr asap to discuss this possibility.

And it sounds like u may have blocked the CSF flow when u tilted ur head back so far....that would explain the pressure build up and the ringing in ur ears ect....

I am not sure if the dr u r set to see is a true chiari specialist, but u deff do need to see one that is.Mayb send copies of ur MRI to a few that r for a review?Some charge a nonminal fee, and it is worth getting that opinion.

"selma"

[rod44]

I get some thing like this, it happens if I am doing something that involves straining like lifting, I get a sound like water gushing in my head and everything goes fuzzy, it only lasts for a short time though (thankfully) but some of the symptoms stay like the dizziness & vertigo....

Ray

[jacmurphy]

Hi.
I'm sorry your having all this happening to you.
My 14 year old gets that drunk feeling a lot, especially when he's overtired or stressed. Lately he gets a thing with his breathing were he feels like he has to concentrate to make himself breath. On a couple of occasions he's had problems with seeing and not seeing things too.
I'm no expert. But I do know that when my son gets tired or stressed it triggers symptoms.
Keeping you and your little girl in my prayers and thoughts.