update

[irislita]

So i.dont have a syrinx...my ha are cervical from laminectomia...too bad i had them before surgery.its the 4th time having a different diagnose of my ha!!!! All the other symptoms like shaky legs,bouncing flooe,swaying sensation in legs are all from chiari the ns told me...he left me with no medication...no further answers and ibuprofen for my ha...it doesnt do anything by the way...i give up now on doctors...i dont believe no one 100percent...but nicely the ns told me i will never be alright again...uuuuyggghhhhh

[selmaS]

  Hi...so sorry this is going on....was this dx by ur NS?

  Crazy what all we go thru pre and post op.

Praying things get better for u soon <3

[linnielou232]

I'm thinking of you and praying you find the answer's and the right Dr. to help you.  No one know's until they walk through a Charian day.  Hope for the best with a better HA day.
Linda :)

[cash242]

So sorry that youth went through that your right I wish they could see our experience the ha we have. I am at pain dr again nothing seems to help so frustrating! Hang in there and know your not alone!

[irislita]

Funny story i got my hearf control thing for one day...didnt know you have to leave ur bra off and they put a net around you...i told the woman well i didnt wAnt to be lady gaga or a fetish looking madonna...we had a laugh.i just expected the nl to try other medicine...cervical ha are not 24/7.i bought pills with codein now...lets see

[Rahe28]

I am so sorry that you are still getting the run around my sweet friend. Wish we were closer so I could give you a big hug. I have to get kids to school but know I will be htinking of you all day today !!!

[zygy2]

I am so sorry you are having this much difficulty!!!  It is so frustrating to never even know when answers are correct.  It really stinks that they can't see headaches... it is just guess work and that does not work well.  Ibuprofen for headaches is a waste of my time too.  I find Excederine helps more.  Makes my stomach upset but at least helps headaches!  Do you have a PCP that will follow you at least... it sounds like this guy is done with you???  Hugs to you!