Hi Everyone,
I've been lurking in this forum for a little more than a week, and I think I'm ready to introduce myself and join the community. My name is Michele and I have been a medical mystery for quite a while :) I haven't received an official diagnosis of Chiari yet, but an MRI done for occasional fainting episodes showed, "mild cerebellar tonsil ectopia." No measurements were given, so I don't know how many millimeters or anything. I do know a diagnosis of Chiari would explain a lot. I have daily headaches, difficulty swallowing, scoliosis, fibromyalgia (joint pain, fatigue, and trouble sleeping), and my rheumatologist diagnosed me with "hypermobile joints", although he didn't explicitly say Ehlers Danlos. And I've had issues originating from the back of my head for as long as I can remember.
My doctor was concerned that some of the symptoms surrounding my fainting episodes might indicate seizures, so we're still waiting for my EEG results to come in before we come up with a game plan.
Anyway, thanks for reading!
- Michele